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LasVegasLover
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
LasVegasLover
in
Kidney Dialysis
3 months ago
Humbly (considering the 1/3rd's) I have to say I am very happy to say I responded to Pluvicto. Updated my BIO finally.
Doesnt take long I think to realize in the journey that just getting a response to a treatment is what you want because the flip side there may be no response at all to any particular treatment. The sorcerer is standing over me having just waved his/her wand over my head. Since the beginning 11/2019
Doesnt take long I think to realize in the journey that just getting a response to a treatment is what you want because the flip side there may be no response at all to any particular treatment. The sorcerer is standing over me having just waved his/her wand over my head. Since the beginning 11/2019
CAMPSOUPS
in
Advanced Prostate Cancer
3 months ago
Webinar on Atypical Parkinsonism from PCLA (Parkinson's Community Los Angeles)
Atypical Parkinsonisms (www.pcla.org) Date & Time
July 12 11am PST // GMT - 8
https://pcla.us13.list-manage.com/track/click?u=f98a2ddbff31f952712a71bf0&id=60a1a1735e&e=b75464422e Description from the advert : Atypical Parkinsonisms present with some of the signs and symptoms of Parkinson's
Atypical Parkinsonisms (www.pcla.org) Date & Time
July 12 11am PST // GMT - 8
https://pcla.us13.list-manage.com/track/click?u=f98a2ddbff31f952712a71bf0&id=60a1a1735e&e=b75464422e Description from the advert : Atypical Parkinsonisms present with some of the signs and symptoms of Parkinson's
pdpatient
in
Cure Parkinson's
3 months ago
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Back after a long time
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
mymomhaspd
in
Cure Parkinson's
3 months ago
PARP inhibitor Olaparib, phase 3 study findings (PROpel)
While we wait for the next generation PARP inhibitors to become available (I have written about it few weeks ago and I will soon have some first hand data), here are the results of Olaparib +Abiraterone It actually has decent effect also for people with no HRR mutations, but it works at its best with
While we wait for the next generation PARP inhibitors to become available (I have written about it few weeks ago and I will soon have some first hand data), here are the results of Olaparib +Abiraterone It actually has decent effect also for people with no HRR mutations, but it works at its best with
Maxone73
in
Advanced Prostate Cancer
3 months ago
Liver cancer
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
oap74
in
British Liver Trust
3 months ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
3 months ago
Xtandi did not work.
Hi all, I'm new to this board but would love some feedback. My father, 80, has been dealing with prostate cancer for a few years. He had initially had radiation plus Lupron injections. His PSA started rising again a few years ago and he wound up on Lupron regularly. His PSA has been slowly rising
Hi all, I'm new to this board but would love some feedback. My father, 80, has been dealing with prostate cancer for a few years. He had initially had radiation plus Lupron injections. His PSA started rising again a few years ago and he wound up on Lupron regularly. His PSA has been slowly rising
Estivez71
in
Advanced Prostate Cancer
3 months ago
Running on Hope! What??
And suddenly yestarday, can't explain why, my ebook becomes a bestseller on Amazon brain diseases category.😃 I wrote this book with the intent to help others, specially more recent diagnosed people, trying to leave some clues and to show that we can still have a fullfiled life with Parkinson's. This
And suddenly yestarday, can't explain why, my ebook becomes a bestseller on Amazon brain diseases category.😃 I wrote this book with the intent to help others, specially more recent diagnosed people, trying to leave some clues and to show that we can still have a fullfiled life with Parkinson's. This
Markbit
in
Cure Parkinson's
3 months ago
Weight issues Graves remission
I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results. After 1 year on carbamozole my thyroid results are
I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results. After 1 year on carbamozole my thyroid results are
PsmS
in
Thyroid UK
3 months ago
Yet another question about cirrhosis.
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
puddy68
in
British Liver Trust
3 months ago
Dad’s blood reports. PSA and testosterone down but ALP up
Did some blood tests for day today The last blood tests were done on 2nd May - PSA 18 Alk Phos 180 which led to the prostate cancer diagnosis. Was diagnosed with bone mets to a few bones. Initially the plan was to do lupron and he was started on bicalutamide which he took for 3 weeks uptil 7th
Did some blood tests for day today The last blood tests were done on 2nd May - PSA 18 Alk Phos 180 which led to the prostate cancer diagnosis. Was diagnosed with bone mets to a few bones. Initially the plan was to do lupron and he was started on bicalutamide which he took for 3 weeks uptil 7th
Tinkudi
in
Advanced Prostate Cancer
3 months ago
Advanced Prostate Cancer to bone and liver
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
swelnetz
in
Advanced Prostate Cancer
3 months ago
Annovis Bio Files Patent for New Composition of Matter for Buntanetap
Interesting....see the fourth (4th) paragraph... MALVERN, Pa., June 26, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s
Interesting....see the fourth (4th) paragraph... MALVERN, Pa., June 26, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s
Canddy
in
Cure Parkinson's
3 months ago
Liver Biopsy Soon.
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Lmm4
in
British Liver Trust
3 months ago
Just a few more questions about Cirrhosis
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
puddy68
in
British Liver Trust
3 months ago
Rising PSA
I turned 87 just 3 days' ago. My QOL is still good: no pain, and a lot of physical activity. Fatigue is mostly annoying, but I generally can work through it. The issue is my concern with a slowly rising PSA. Today's blood test showed a PSA of 1.5. How concerned should I be, and are there steps to
I turned 87 just 3 days' ago. My QOL is still good: no pain, and a lot of physical activity. Fatigue is mostly annoying, but I generally can work through it. The issue is my concern with a slowly rising PSA. Today's blood test showed a PSA of 1.5. How concerned should I be, and are there steps to
Poollover
in
Advanced Prostate Cancer
3 months ago
Trust in Healthcare session links for Wednesday June 26
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Darryl
Partner
in
Advanced Prostate Cancer
3 months ago
Exercise
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
DiamondSparkles
in
British Liver Trust
3 months ago
Annovis Bio Inc. (NYSE: ANVS) Schedules Investor Webcast to Discuss Parkinson’s Disease Data
For those who may be interested... MALVERN, Pa., June 25, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s Disease (AD)
For those who may be interested... MALVERN, Pa., June 25, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s Disease (AD)
Canddy
in
Cure Parkinson's
3 months ago
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