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I have joined this group because my adult son is living with Stage 4 Chronic Kidney Disease and Type 2 diabetes and has learning disabilities. He lives independently with support for an hour or so each day. He had a home visit from his Renal Nurse to begin the conversation about dialysis. I would be
I have joined this group because my adult son is living with Stage 4 Chronic Kidney Disease and Type 2 diabetes and has learning disabilities. He lives independently with support for an hour or so each day. He had a home visit from his Renal Nurse to begin the conversation about dialysis. I would be
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Mencap
4 years ago
LSD acid on Dialysis
My teen is ESRD and has been for two years. He has also struggled with Leukemia, and anxiety/depression. He has a friend that's telling him to use LSD! He's been doing research online and he's convinced he wants to try it... I'm worried sick. I've seen online that acid is metabolized in the liver, so
My teen is ESRD and has been for two years. He has also struggled with Leukemia, and anxiety/depression. He has a friend that's telling him to use LSD! He's been doing research online and he's convinced he wants to try it... I'm worried sick. I've seen online that acid is metabolized in the liver, so
Firefingers
in
Kidney Dialysis
4 years ago
Diet changes, it is complicated
I had a slip in my GFR in November. I had an gastritis this fall and although I did not take anything, it may have impacted me. I also had fallen away from my diet as we sometimes do in time. I thought it was appropriate for a tune up. I went to see the renal dietician I saw 3 years ago. She is an expert
I had a slip in my GFR in November. I had an gastritis this fall and although I did not take anything, it may have impacted me. I also had fallen away from my diet as we sometimes do in time. I thought it was appropriate for a tune up. I went to see the renal dietician I saw 3 years ago. She is an expert
Bassetmommer
NKF Ambassador
in
Kidney Disease
4 years ago
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A long-awaited letter
In 2015 I gave a talk to a TUK forum on the poor quality control and performance of free T4 and free T3 assays then used. The situation hasn't changed in the meantime, but I got a letter accepted in a journal on this very subject: It will appear very soon but since it will be behind a paywall I'm giving
In 2015 I gave a talk to a TUK forum on the poor quality control and performance of free T4 and free T3 assays then used. The situation hasn't changed in the meantime, but I got a letter accepted in a journal on this very subject: It will appear very soon but since it will be behind a paywall I'm giving
diogenes
in
Thyroid UK
4 years ago
lifetime of hard work
Hello, My name is Richard. I've worked in a plastic factory with toxic chemicals and breathed toxic welding fumes for 30 years until my lower back discs were worn out and my prostate became enlarge. Doctors useless treatments for the prostate lead to my kidneys going bad. I been on dialysis for 3
Hello, My name is Richard. I've worked in a plastic factory with toxic chemicals and breathed toxic welding fumes for 30 years until my lower back discs were worn out and my prostate became enlarge. Doctors useless treatments for the prostate lead to my kidneys going bad. I been on dialysis for 3
RichardOtt
in
Kidney Dialysis
4 years ago
Living donors
For those of you who have gotten a living donor, how did you start the conversation? I am struggling with sharing my need, and my more immediate family has not been very receptive to the thought of donating. I am not currently on dialysis, but that is probably only a few months away. Thanks, Paul
For those of you who have gotten a living donor, how did you start the conversation? I am struggling with sharing my need, and my more immediate family has not been very receptive to the thought of donating. I am not currently on dialysis, but that is probably only a few months away. Thanks, Paul
PTS520
in
Kidney Transplant
4 years ago
Need help
Hi I'm on dialysis and have mental health problems to I feel frustrated all time because of my high blood pressure n mental health im havein relly bad problems sleeping aswel if anyone could talk or would like to give me a few tips I b thankfull and I'm happy to listen n help back thankyou
Hi I'm on dialysis and have mental health problems to I feel frustrated all time because of my high blood pressure n mental health im havein relly bad problems sleeping aswel if anyone could talk or would like to give me a few tips I b thankfull and I'm happy to listen n help back thankyou
Needafreind
in
Kidney Disease
4 years ago
Peripheral Neuropathy in feet
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Weimarador
in
Kidney Transplant Patient Support
4 years ago
Doctors to make decision in 24hours
My husband has been in icu for 28days now, since 12th of January due to covid, was sedated and on ventilator, after 7 days he had tracheostomy, planning to wean him off he wasn't tolerating. Few days after had infection and then sepsis, then he deteriorated. For more than 5 days now has ben on 95
My husband has been in icu for 28days now, since 12th of January due to covid, was sedated and on ventilator, after 7 days he had tracheostomy, planning to wean him off he wasn't tolerating. Few days after had infection and then sepsis, then he deteriorated. For more than 5 days now has ben on 95
esteeossy
in
ICUsteps
4 years ago
Dialysis
Hi I would like to introduce myself I am a 45 yr old woman who’s been diagnosed with lupus in 2009 . I have been told only today my kidney function as dropped to 9 % so I will have to go on dialysis till I get a transplant. And I was wondering if anyone else is on home dialysis as that’s where my minds
Hi I would like to introduce myself I am a 45 yr old woman who’s been diagnosed with lupus in 2009 . I have been told only today my kidney function as dropped to 9 % so I will have to go on dialysis till I get a transplant. And I was wondering if anyone else is on home dialysis as that’s where my minds
Basilbonce
in
LUPUS UK
4 years ago
Kidney Transplant process
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
brynat2
in
Kidney Disease
4 years ago
COVID Stats...
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Any chance of survival? On 100% ventilator and 88% saturation
Update on my husband . This is the second time the doctor is calling me to come see my husband as he may no pass the night. His ventilator settings is 100% oxygen now, PEEP 16, pressure 56, co2 5.2, blood pressure 102/61 though fluctuating. The consern is his saturation which is 87 - 88%. . They said
Update on my husband . This is the second time the doctor is calling me to come see my husband as he may no pass the night. His ventilator settings is 100% oxygen now, PEEP 16, pressure 56, co2 5.2, blood pressure 102/61 though fluctuating. The consern is his saturation which is 87 - 88%. . They said
esteeossy
in
ICUsteps
4 years ago
PD Newbie
I just started home cycler peritoneal dialysis and would like to hear people's experiences with different products. Am considering a dialysis belt instead of daily use of tape, which eventually irritates my skin. What features do you look for in a belt? Have you used a transfer set holder on a neck
I just started home cycler peritoneal dialysis and would like to hear people's experiences with different products. Am considering a dialysis belt instead of daily use of tape, which eventually irritates my skin. What features do you look for in a belt? Have you used a transfer set holder on a neck
Quercusalba
in
Kidney Disease
4 years ago
Subcutaneous access.
Does anyone have any experience with the new subcutaneous endovascular dialysis access?
Does anyone have any experience with the new subcutaneous endovascular dialysis access?
Suuperbird
in
Kidney Disease
4 years ago
Lung stiff, and on 95% oxygen on ventilator
Can stiff lungs reverse Please as anyone been in this case? My husband has been in icu for 24days now. Heavily sedated, on paralysis drug, on ventilator. Doctor called me in the morning to come over as he may not make it. I went to see him. They said they have adjusted the ventilator settings to the
Can stiff lungs reverse Please as anyone been in this case? My husband has been in icu for 24days now. Heavily sedated, on paralysis drug, on ventilator. Doctor called me in the morning to come over as he may not make it. I went to see him. They said they have adjusted the ventilator settings to the
esteeossy
in
ICUsteps
4 years ago
Encouragement and a question
Hi. I've been waiting at home whilst my husband recovers from Covid. The history is: 5 weeks fully sedated ICU; tracheostomy fitted; 3 weeks to fully wake up; 2 weeks with MRSA; transfer to Renal unit for 3 weeks. Weakness on right side - no grip in hand and sore shoulder. Kidneys not working well
Hi. I've been waiting at home whilst my husband recovers from Covid. The history is: 5 weeks fully sedated ICU; tracheostomy fitted; 3 weeks to fully wake up; 2 weeks with MRSA; transfer to Renal unit for 3 weeks. Weakness on right side - no grip in hand and sore shoulder. Kidneys not working well
Mumptie
in
ICUsteps
4 years ago
Post transplant problem
I still have my pd tube from dialysis . Twelve months ago I had a transplant. But I still have my tube because I have to drain off at least 3 to4 litres of fluid every 3days. This fluid is known as chyle. Anyone else experiencing this problem and is there a cure ? LATEST: Had an appointment with surgeon
I still have my pd tube from dialysis . Twelve months ago I had a transplant. But I still have my tube because I have to drain off at least 3 to4 litres of fluid every 3days. This fluid is known as chyle. Anyone else experiencing this problem and is there a cure ? LATEST: Had an appointment with surgeon
BarryWright
in
Early CKD Support
4 years ago
What are the chances that the transplanted kidney will fail?
I am scheduled for my transplant surgery on 2/8/21. I’m very excited about getting off of dialysis and feeling normal again but, there is always a but, what are the chances that my new kidney will come down with the same diseases that took out my original kidneys? My kidneys failed because of microscopic
I am scheduled for my transplant surgery on 2/8/21. I’m very excited about getting off of dialysis and feeling normal again but, there is always a but, what are the chances that my new kidney will come down with the same diseases that took out my original kidneys? My kidneys failed because of microscopic
bisley
in
Kidney Transplant
4 years ago
My Dad is fighting Covid on a ventilator
Hi, I hope you can help me. I am really struggling now, I miss my Dad so much. He was admitted to hospital in January 8th and has been on a ventilator since the 11th. He has contracted pneumonia twice and managed to fight it off both times. He had 2 mild heart attacks, one of which required a stent.
Hi, I hope you can help me. I am really struggling now, I miss my Dad so much. He was admitted to hospital in January 8th and has been on a ventilator since the 11th. He has contracted pneumonia twice and managed to fight it off both times. He had 2 mild heart attacks, one of which required a stent.
Peggystars1
in
ICUsteps
4 years ago
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