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dynactin mutation
I am looking for anyone who has or know anyone with a genetic condition called dynactin mutation.My granny,mum,aunt,uncle, and myself all have a
tracheostomy
and my aunt,uncle and myself have muscle and nerve problems.My brother has just been diagnosed and needs a trachoestomy.
I am looking for anyone who has or know anyone with a genetic condition called dynactin mutation.My granny,mum,aunt,uncle, and myself all have a
tracheostomy
and my aunt,uncle and myself have muscle and nerve problems.My brother has just been diagnosed and needs a trachoestomy.
barbs67
in
PSP Association
8 years ago
Waking from medical coma...
She had a
tracheostomy
on Tuesday and they stopped the sedation to bring her out of the medical coma she had been in for 4 days. The cardiologist came and said there was only minimal fluid around the heart now and the renal specialist also stopped the kidney machine to see what her kidneys did.
She had a
tracheostomy
on Tuesday and they stopped the sedation to bring her out of the medical coma she had been in for 4 days. The cardiologist came and said there was only minimal fluid around the heart now and the renal specialist also stopped the kidney machine to see what her kidneys did.
Renusaini9
in
ICUsteps
8 years ago
Trache no Trache
I don't know if it will come up but I'm dreading having to deal with it. It was suggested as my husbands lungs heal opting for a tracheotomy instead of a vent tube. I'm against it the family are for it. I don't want any excess procedures and I've witnessed the risk of a Trache tube. Don't know what
I don't know if it will come up but I'm dreading having to deal with it. It was suggested as my husbands lungs heal opting for a tracheotomy instead of a vent tube. I'm against it the family are for it. I don't want any excess procedures and I've witnessed the risk of a Trache tube. Don't know what
Troubledwife
in
ICUsteps
8 years ago
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Worried and confused
My husband went to the hospital sick and was diagnosed with pneumonia and sepsis. The sepsis seems to be gone but his lungs are damaged leaking air possibly from a chest tube or the vent or the pneumonia. Just when I thought he was getting stable he always seem to move into the critical stage. The
My husband went to the hospital sick and was diagnosed with pneumonia and sepsis. The sepsis seems to be gone but his lungs are damaged leaking air possibly from a chest tube or the vent or the pneumonia. Just when I thought he was getting stable he always seem to move into the critical stage. The
Troubledwife
in
ICUsteps
8 years ago
Delirium whilst in induced coma for 4 weeks. X
Hello. I'm Dorothy and I'm 45, I've just come out of hospital after being in an induced coma for 4 weeks. I had influenza and double pneumonia which resulted in sepsis, renal failure, dialysis, tracheotomy, massive haemorrhage of blood vessels in eyes due to being laid prone. I had incredibly realistic
Hello. I'm Dorothy and I'm 45, I've just come out of hospital after being in an induced coma for 4 weeks. I had influenza and double pneumonia which resulted in sepsis, renal failure, dialysis, tracheotomy, massive haemorrhage of blood vessels in eyes due to being laid prone. I had incredibly realistic
Dollyplum
in
ICUsteps
8 years ago
Dealing with waking up from an induced coma
He cannot speak due to
tracheostomy
nor can he move. I feel very upset seeing his hartrate and bloodpressure rise lang times. It's a difficult balance for his doctors and nurses to try and stop sedation completely. Can anyone relate? And what can I do to help him?
He cannot speak due to
tracheostomy
nor can he move. I feel very upset seeing his hartrate and bloodpressure rise lang times. It's a difficult balance for his doctors and nurses to try and stop sedation completely. Can anyone relate? And what can I do to help him?
Debooorah1985
in
ICUsteps
9 years ago
First post
Quick run down of how he was : right sided weakness (virtually no movement), left eye closed, just started appearing to recognise us around 3 weeks, has a
tracheostomy
although only on minimal humidified oxygen to help with secretions.
Quick run down of how he was : right sided weakness (virtually no movement), left eye closed, just started appearing to recognise us around 3 weeks, has a
tracheostomy
although only on minimal humidified oxygen to help with secretions.
Hidden
in
Headway
9 years ago
Post Sepsis Syndrome
Hi I am Phil and in January 2015 I was struck down with Pneumonia and was in hospital for nine days. My longer stay was thankfully down to a Dr who was not happy with my blood tests and therefore kept me in until they improved. About a month later and without any warning I was fortunately found by my
Hi I am Phil and in January 2015 I was struck down with Pneumonia and was in hospital for nine days. My longer stay was thankfully down to a Dr who was not happy with my blood tests and therefore kept me in until they improved. About a month later and without any warning I was fortunately found by my
Phil112
in
ICUsteps
9 years ago
Life After ICU
Hi all would appreciate some advice. It's been 6 months since my discharge from hospital after a 4 week stay in ICU & 2 weeks on ward. was admitted due to a epileptic seizure and put into a induced coma as doctors cudnt bring me out of it. Was kept under for approx 3 weeks, resulting in pneumonia & kidney
Hi all would appreciate some advice. It's been 6 months since my discharge from hospital after a 4 week stay in ICU & 2 weeks on ward. was admitted due to a epileptic seizure and put into a induced coma as doctors cudnt bring me out of it. Was kept under for approx 3 weeks, resulting in pneumonia & kidney
Lebabes
in
ICUsteps
9 years ago
Does it get easier?
I was in ICU for 3 weeks and had some horrendous hallucinations when I was coming off the sedatives and had a
tracheostomy
. I just wanted to ask other people, do you think it ever gets easier to think about? Will there be a time when it doesn't feel like such a huge part of my life?
I was in ICU for 3 weeks and had some horrendous hallucinations when I was coming off the sedatives and had a
tracheostomy
. I just wanted to ask other people, do you think it ever gets easier to think about? Will there be a time when it doesn't feel like such a huge part of my life?
Helennurse
in
ICUsteps
9 years ago
Back home 👏🏻 / tracheostomy
Unfortunately we have a
tracheostomy
now and a quite a lot weight loss 😔 a more difficult and more care needed days start ... Does anyone experienced
tracheostomy
stage ? Do you have any advice ? I am quite frightened 😱 Thanks in advance Burcu/ Istanbul - Turkey
Unfortunately we have a
tracheostomy
now and a quite a lot weight loss 😔 a more difficult and more care needed days start ... Does anyone experienced
tracheostomy
stage ? Do you have any advice ? I am quite frightened 😱 Thanks in advance Burcu/ Istanbul - Turkey
burcumuslu
in
PSP Association
9 years ago
Hpoxic brain injury 8 week on
40 minutes the ct results say it is catastophic brain injury and at first the doctors gave us worst case scenario with not much hope, but since dale has been making very slow progress but is making progress Dale was in icu for 3 weeks and has since been put on a respiratory ward as he still has his
tracheostomy
40 minutes the ct results say it is catastophic brain injury and at first the doctors gave us worst case scenario with not much hope, but since dale has been making very slow progress but is making progress Dale was in icu for 3 weeks and has since been put on a respiratory ward as he still has his
tracheostomy
Dales-story
in
Headway
9 years ago
Thyroid - life and death
Gebreyes has refused, instead insisting she be given thyroid medication and a
tracheostomy
so she can receive nutrition through her throat, not just fluids through an IV.[/i] This is not a particularly good site: http://app.newsgetter.com/go/?
Gebreyes has refused, instead insisting she be given thyroid medication and a
tracheostomy
so she can receive nutrition through her throat, not just fluids through an IV.[/i] This is not a particularly good site: http://app.newsgetter.com/go/?
helvella
Thyroid UK
in
Thyroid UK
9 years ago
Wheezy night /morning
Bit of a tricky night back to back nebulisers for a while took my steroids (35mg)hopefully will do the trick must be the damp where I had my
tracheostomy
airwaves a bit narrow time for honey and lemon have a good day everyone
Bit of a tricky night back to back nebulisers for a while took my steroids (35mg)hopefully will do the trick must be the damp where I had my
tracheostomy
airwaves a bit narrow time for honey and lemon have a good day everyone
Hidden
in
Asthma Community Forum
9 years ago
User names
As it come up to my 5th anniversary on 18th December of being admitted to ICU I often think why someone has chose the user name they have. For me Luckyone is because I believe I was incredibly lucky to survive, had it not snowed the night before I would not be writing this, as my wife would have gone
As it come up to my 5th anniversary on 18th December of being admitted to ICU I often think why someone has chose the user name they have. For me Luckyone is because I believe I was incredibly lucky to survive, had it not snowed the night before I would not be writing this, as my wife would have gone
Luckyone
in
ICUsteps
9 years ago
My husband had a cardiac arrest 5 weeks ago and he has hypoxia brain damage
He went into icu for 2 weeks where he was in a coma on a ventilator but he improved enough to have a
tracheostomy
which he only had for two days and it was removed because he was able to breathe on his own.
He went into icu for 2 weeks where he was in a coma on a ventilator but he improved enough to have a
tracheostomy
which he only had for two days and it was removed because he was able to breathe on his own.
Curly-sue
in
Headway
9 years ago
Hello
Hello - just joined - have mum in hospital at the moment with copd flare up. Feeling sad that she is struggling with fighting infection which she thinks is in her tracheotomy scar leaving her unable to eat and drink - dr says she doesn't and its anxiety? Anyone with similar experience?
Hello - just joined - have mum in hospital at the moment with copd flare up. Feeling sad that she is struggling with fighting infection which she thinks is in her tracheotomy scar leaving her unable to eat and drink - dr says she doesn't and its anxiety? Anyone with similar experience?
Hidden
in
Lung Conditions Community Forum
9 years ago
Following up from Discharge
Took me a year to get over the physical aspects and 2 years to get over the PTSD after being taken off my ventilator and having a
tracheostomy
tube in place. I had the usual hallucinations and paranoia in ICU and took me ages to come to terms with my experiences.
Took me a year to get over the physical aspects and 2 years to get over the PTSD after being taken off my ventilator and having a
tracheostomy
tube in place. I had the usual hallucinations and paranoia in ICU and took me ages to come to terms with my experiences.
eddie1968
in
ICUsteps
9 years ago
Tracheotomy Trouble
Anyone woke up from their coma and found communication difficult ? Even after 3 days awake they wouldn't put a speaking valve in and expected me to write things down on a piece of paper on a clipboard. After 4 weeks of a coma and ventilation I didn't have the strength to write anything down at all. I
Anyone woke up from their coma and found communication difficult ? Even after 3 days awake they wouldn't put a speaking valve in and expected me to write things down on a piece of paper on a clipboard. After 4 weeks of a coma and ventilation I didn't have the strength to write anything down at all. I
eddie1968
in
ICUsteps
9 years ago
Well Gals & Guys, here we all go once again ?
edges: This newer, and less aggressive procedure is highly successful, with fewer medical complication's: ------------------------------------------------------------------------------------ However, the bad news is that this procedure, will require the patient to also have a "
tracheostomy
edges: This newer, and less aggressive procedure is highly successful, with fewer medical complication's: ------------------------------------------------------------------------------------ However, the bad news is that this procedure, will require the patient to also have a "
tracheostomy
John1945
in
Charcot-Marie-Tooth UK
9 years ago
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