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Tocilizumab
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Phenmonai jab nd tocilizumab
Hi how does it work I'm due the phenmonai on the 16th..can anyone advise me please?
Hi how does it work I'm due the phenmonai on the 16th..can anyone advise me please?
Vonnie10
in
NRAS
3 years ago
Injection Reaction
hi everyone, I’ve been on the
tocilizumab
injection for over 12 weeks now and for the last 3 injections I’ve been having reactions the size of a table spoon on the injection site. It goes almost 3D and very red, hot and sore. Is there any advice on how I can stop this?
hi everyone, I’ve been on the
tocilizumab
injection for over 12 weeks now and for the last 3 injections I’ve been having reactions the size of a table spoon on the injection site. It goes almost 3D and very red, hot and sore. Is there any advice on how I can stop this?
conniegraham
in
NRAS
3 years ago
Tocilizumab
I'm interested in everyone's opinion My doctor is seeing if I'm suitable
I'm interested in everyone's opinion My doctor is seeing if I'm suitable
Simsey
in
NRAS
3 years ago
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Is Omeprazole prescribed for Tocilizumab or steroid only related ?
Hi is anyone taking TCZ on its own (so no steroid involved) also still prescribed omeprazole (or equivalent) ? Thanks.
Hi is anyone taking TCZ on its own (so no steroid involved) also still prescribed omeprazole (or equivalent) ? Thanks.
Sefu
in
PMRGCAuk
3 years ago
How soon is Tocilizumab supposed to work?
I have been moved to
tocilizumab
and am in my 5th week, i.e., I have had 2 IV infusions. It doesn't appear to be working (although my ESR has dropped) as my hands and wrists are still inflammed. Should I be more patient?
I have been moved to
tocilizumab
and am in my 5th week, i.e., I have had 2 IV infusions. It doesn't appear to be working (although my ESR has dropped) as my hands and wrists are still inflammed. Should I be more patient?
rebs48
in
NRAS
3 years ago
Pred Tablets or Depo Injection?
I'm due to start
tocilizumab
shortly but need to wait for a day case appt. I called the rheumy line on Monday and asked for a repeat script for 5mg steroid for 8 weeks to get me through xmas and until the toc kicks in. My God, what a response.
I'm due to start
tocilizumab
shortly but need to wait for a day case appt. I called the rheumy line on Monday and asked for a repeat script for 5mg steroid for 8 weeks to get me through xmas and until the toc kicks in. My God, what a response.
Maggsie
in
NRAS
3 years ago
Tocilizumab
Hi is
tocilizumab
in the sheilding group I did put a post up before about this but I cant find it my post only go down so far and then they finish Thanks in advance
Hi is
tocilizumab
in the sheilding group I did put a post up before about this but I cant find it my post only go down so far and then they finish Thanks in advance
Vonnie10
in
NRAS
4 years ago
High Cholesterol
Hi ..l am on
Tocilizumab
which has been brilliant for me..the side effects can be high cholesterol..mine is raised a little so GP has put me on Atorvastin to lower it ..l am only getting a couple of hours sleep and through the day l feel dreadful...is anyone else on this ..not good at all x
Hi ..l am on
Tocilizumab
which has been brilliant for me..the side effects can be high cholesterol..mine is raised a little so GP has put me on Atorvastin to lower it ..l am only getting a couple of hours sleep and through the day l feel dreadful...is anyone else on this ..not good at all x
Swimming20
in
NRAS
3 years ago
Shingles and vaccinations
Unfortunately, I had just started injections of
Tocilizumab
and so could not have the live Shingles vaccination. (Whilst on
Tocilizumab
, I have had a mild Shingles outbreak, but knowing what to look for, I immediately got my GP to prescribe Aciclovir which cleared it up in 8 days).
Unfortunately, I had just started injections of
Tocilizumab
and so could not have the live Shingles vaccination. (Whilst on
Tocilizumab
, I have had a mild Shingles outbreak, but knowing what to look for, I immediately got my GP to prescribe Aciclovir which cleared it up in 8 days).
Suzita76
in
PMRGCAuk
3 years ago
Tocilizumab causing Raised blood pressure!
Hi all, I have taken my 7th injection of
Tocilizumab
and my blood pressure has gone up to 127/87. Have read that this treatment can raise BP. Has this happened to anyone else in this treatment and if so, do you have to stop the treatment? Would appreciate any advice regarding g this. Many thanks!
Hi all, I have taken my 7th injection of
Tocilizumab
and my blood pressure has gone up to 127/87. Have read that this treatment can raise BP. Has this happened to anyone else in this treatment and if so, do you have to stop the treatment? Would appreciate any advice regarding g this. Many thanks!
Florida100
in
NRAS
4 years ago
Flu Jab
Hi I was wondering has anyone has had a flu jab while taking
Tocilizumab
should consult a doctor before having the vaccine.
Hi I was wondering has anyone has had a flu jab while taking
Tocilizumab
should consult a doctor before having the vaccine.
pau1
in
NRAS
4 years ago
Tocilizumab and weight gain
One of the common side effects of
Tocilizumab
is listed in the product information as being weight gain. I am interested to know if anyone on this forum who is either taking TCZ for PMR/GCA, or has done in the past, found this to be the case?
One of the common side effects of
Tocilizumab
is listed in the product information as being weight gain. I am interested to know if anyone on this forum who is either taking TCZ for PMR/GCA, or has done in the past, found this to be the case?
LizMitchell
in
PMRGCAuk
4 years ago
Tocilizumab/atlizumab/Actemra and exercise intolerance
I've posted before explaining all my AI conditions and the current treatment with CellCept, hydroxychloroquine, and Rituxan. As a side, I apparently developed a new AI condition too... now, I can't help but laugh after each visit :-) . Anyway, my rheumatologist talked with me about what we will do
I've posted before explaining all my AI conditions and the current treatment with CellCept, hydroxychloroquine, and Rituxan. As a side, I apparently developed a new AI condition too... now, I can't help but laugh after each visit :-) . Anyway, my rheumatologist talked with me about what we will do
TiredNerd
in
NRAS
3 years ago
Tocilizumab
Hi hope you lovely people are doing well on this gloomy friday....I put a post up last week cant find it ...it was about this drug tocz mostly everyone had great things to say. Me been me I've had diaharreah couple of times bad irritation and pains.. I thought it may settle..woke up today same again
Hi hope you lovely people are doing well on this gloomy friday....I put a post up last week cant find it ...it was about this drug tocz mostly everyone had great things to say. Me been me I've had diaharreah couple of times bad irritation and pains.. I thought it may settle..woke up today same again
Vonnie10
in
NRAS
4 years ago
Tocilizumab
Hi I started my
tocilizumab
injectiins yesterday was woken up by upper stomache pain that is not going away and needed the toliet a few times.. if anyone is on this did this settle down for them..
Hi I started my
tocilizumab
injectiins yesterday was woken up by upper stomache pain that is not going away and needed the toliet a few times.. if anyone is on this did this settle down for them..
Vonnie10
in
NRAS
4 years ago
Ro-Actemra/Tocilizumab Patients advice/ experiences please.
I am on
Tocilizumab
( for GCA with Pred) ( 13th self administered injection due Friday). I have had a cold type virus for a week that seems to have eased off now. For some weeks I have had a swollen watering right eye and an infection in one nostril ( same side).
I am on
Tocilizumab
( for GCA with Pred) ( 13th self administered injection due Friday). I have had a cold type virus for a week that seems to have eased off now. For some weeks I have had a swollen watering right eye and an infection in one nostril ( same side).
SheffieldJane
in
PMRGCAuk
4 years ago
LVV Does a flare come on suddenly?
Hi I have been doing really well down to3mg pred and weekly
tocilizumab
. Felt fine until midday today, I was bending over and suddenly felt nauseous, stood up and nausea subsided but pain / numbness in left side of face and crawling sensation under scalp.
Hi I have been doing really well down to3mg pred and weekly
tocilizumab
. Felt fine until midday today, I was bending over and suddenly felt nauseous, stood up and nausea subsided but pain / numbness in left side of face and crawling sensation under scalp.
Devoid
in
PMRGCAuk
4 years ago
RA and migraine
I've been on
tocilizumab
now for 3 months which has thankfully kept pain at bay. I'm very careful what I eat and don't generally have anything sugary, much as I'd love to.
I've been on
tocilizumab
now for 3 months which has thankfully kept pain at bay. I'm very careful what I eat and don't generally have anything sugary, much as I'd love to.
Bluepegasus
in
NRAS
4 years ago
tocilizumab
I'm due to start
tocilizumab
injections, I'm really nervous as i struggle with the metoject injections. How does everyone find the
tocilizumab
injections? X
I'm due to start
tocilizumab
injections, I'm really nervous as i struggle with the metoject injections. How does everyone find the
tocilizumab
injections? X
LJRT
in
NRAS
4 years ago
Tocilizumab and steroid injection
Are these drugs not in the shielding group ?
Are these drugs not in the shielding group ?
Vonnie10
in
NRAS
4 years ago
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