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Allele burden results on Pegasys
After 22 months on Pegasys my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with Pegasys. My counts have been normal for about a year and a half, with the exception of monocytes, which run high. I thought that some people might be interested in
After 22 months on Pegasys my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with Pegasys. My counts have been normal for about a year and a half, with the exception of monocytes, which run high. I thought that some people might be interested in
charl17
in
MPN Voice
4 years ago
Eyes and other things.
I get a weekly digest of posts to this forum and was reading the thread re missing travelling, either early this morning or last night. At the time I was too tired to respond. Want to thank all the contributors to that thread, it was an interesting read. Thanks for the tip ? PMRpro regarding spray
I get a weekly digest of posts to this forum and was reading the thread re missing travelling, either early this morning or last night. At the time I was too tired to respond. Want to thank all the contributors to that thread, it was an interesting read. Thanks for the tip ? PMRpro regarding spray
IdasMum
in
PMRGCAuk
4 years ago
Dry Eyes and Eye Fatigue In PwP and Significant Relief
Dry eyes are a common issue for PwP and may actually be one of the earliest symptoms prior to diagnosis as outlined in the following articles : https://pubmed.ncbi.nlm.nih.gov/19336464/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238794/ https://pubmed.ncbi.nlm.nih.gov/16095705/ https://www.ncbi.nlm.nih.gov
Dry eyes are a common issue for PwP and may actually be one of the earliest symptoms prior to diagnosis as outlined in the following articles : https://pubmed.ncbi.nlm.nih.gov/19336464/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238794/ https://pubmed.ncbi.nlm.nih.gov/16095705/ https://www.ncbi.nlm.nih.gov
chartist
in
Cure Parkinson's
4 years ago
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Did you get your full vision back after macular hole surgery?
Has anyone gotten the macular hole operation and recovered vision? If so....How long did it take to recover? At the moment I have the constant distorted view in the center of my right eye. I also have the pulsing dark spot in the middle of my right eye, that I can only see first thing in the morning
Has anyone gotten the macular hole operation and recovered vision? If so....How long did it take to recover? At the moment I have the constant distorted view in the center of my right eye. I also have the pulsing dark spot in the middle of my right eye, that I can only see first thing in the morning
Shawn11
in
Macular Society
4 years ago
Endocrinology appointment with graves
I was diagnosed with graves in dec, finally saw an endo in march started me on carb. Im just wondering how frequently those with graves see there endo when they are in active treatment. I did have my next appointment in dec (would have been a 10 month wait between) but they have cancelled it. I have
I was diagnosed with graves in dec, finally saw an endo in march started me on carb. Im just wondering how frequently those with graves see there endo when they are in active treatment. I did have my next appointment in dec (would have been a 10 month wait between) but they have cancelled it. I have
Hkm2281
in
Thyroid UK
4 years ago
THE EMBATTLED VETERAN: GLAUCOMA OVER A LIFETIME
I read a question from a newly diagnosed glaucoma patient, and began typing out a response. I wanted to be friendly and in fellowship. But the person had said, 'Just diagnosed and scared'. How then could I write any of the things I wanted to say, when my story has brought me to my knees in despair a
I read a question from a newly diagnosed glaucoma patient, and began typing out a response. I wanted to be friendly and in fellowship. But the person had said, 'Just diagnosed and scared'. How then could I write any of the things I wanted to say, when my story has brought me to my knees in despair a
lupusinflight
in
Glaucoma UK
4 years ago
Recent Narrow Angle Diagnosis.
Hi. Last year I was put on Amlodopine and Indapamide, after a few days in hospital with malignant hypertension. I had an Opticians appointment 3 weeks ago, and was diagnosed with narrow angle in my right eye, for which I have been referred to a specialist. I read that Amitriptyline (which I take for
Hi. Last year I was put on Amlodopine and Indapamide, after a few days in hospital with malignant hypertension. I had an Opticians appointment 3 weeks ago, and was diagnosed with narrow angle in my right eye, for which I have been referred to a specialist. I read that Amitriptyline (which I take for
CoconutBay
in
Glaucoma UK
4 years ago
Trabeculectomy reversal
Hi I'm new to the forum. I had a trabeculectomy 13 months ago in my right eye. The pressure lowered well but the bleb leaked causing a blister of liquid to form on the outer corner of my eye. It's painful, debilitating and had such an impact on my life. My consultant suggested having stitches around
Hi I'm new to the forum. I had a trabeculectomy 13 months ago in my right eye. The pressure lowered well but the bleb leaked causing a blister of liquid to form on the outer corner of my eye. It's painful, debilitating and had such an impact on my life. My consultant suggested having stitches around
WickedWhale
in
Glaucoma UK
4 years ago
Another Diagnosis
I had an ophthalmologist appointment today and can now add asteroid hyalosis to my list of medical oddities. Anybody else have this diagnosis? It’s not a big deal, I don’t think. It’s just annoying. In fact, “annoying” is the best description to me for MS in general!
I had an ophthalmologist appointment today and can now add asteroid hyalosis to my list of medical oddities. Anybody else have this diagnosis? It’s not a big deal, I don’t think. It’s just annoying. In fact, “annoying” is the best description to me for MS in general!
Tinker-Belle
in
My MSAA Community
4 years ago
lucentis injection
hello! hope everyone here is safe and well in this time of pandemic. i would like to know if anyone here has severe myopia and have had the lucentis injection; i went through it for the first time 5 days ago and my eye is still blurry; i feel no pain or discomfort, just feel like my eye is still dilated
hello! hope everyone here is safe and well in this time of pandemic. i would like to know if anyone here has severe myopia and have had the lucentis injection; i went through it for the first time 5 days ago and my eye is still blurry; i feel no pain or discomfort, just feel like my eye is still dilated
clnclyblnd
in
Macular Society
4 years ago
Scared of going blind
Im very scared of losing my sight. I've been having worsening eyesight since this past year in my left eye and i've discored that my right is also worsening. I also suffer sometime from eye pain and one night i saw white transparent lines in my vision. Im so scared. Im only 20 years and i love to draw
Im very scared of losing my sight. I've been having worsening eyesight since this past year in my left eye and i've discored that my right is also worsening. I also suffer sometime from eye pain and one night i saw white transparent lines in my vision. Im so scared. Im only 20 years and i love to draw
Nobunoka
in
Anxiety Support
4 years ago
The President of the Royal College of Ophthalmologists answers your questions!
At the end of this month we’re interviewing Prof Bernie Chang who is the latest President of the Royal College of Ophthalmologists for an article for our membership magazine (https://glaucoma.uk/about-us/our-membership-magazine/). He has kindly agreed to answer questions from our members and everyone
At the end of this month we’re interviewing Prof Bernie Chang who is the latest President of the Royal College of Ophthalmologists for an article for our membership magazine (https://glaucoma.uk/about-us/our-membership-magazine/). He has kindly agreed to answer questions from our members and everyone
Rachel_GlaucomaUK
Administrator
in
Glaucoma UK
4 years ago
Wet AMD - problem with Eylea?
Eylea Side Effects? Following 2 years of Lucentis , I was advised to change to Eylea . After 3 injections of Eylea, visual distortion has progressively increased . Faces are unclear and distorted on TV. Written words have become very difficult with wavy lines, moving and missing letters. Has anybody
Eylea Side Effects? Following 2 years of Lucentis , I was advised to change to Eylea . After 3 injections of Eylea, visual distortion has progressively increased . Faces are unclear and distorted on TV. Written words have become very difficult with wavy lines, moving and missing letters. Has anybody
Firestorm77
in
Macular Society
4 years ago
Eylea injections
I have had wet macular degeneration in both eyes for three years and receive Eylea injections. I have had about 30 in all. I often have black floaters after the injections which settle within a few days. However, after my last injections I have been experiencing a different sort of floater. It is
I have had wet macular degeneration in both eyes for three years and receive Eylea injections. I have had about 30 in all. I often have black floaters after the injections which settle within a few days. However, after my last injections I have been experiencing a different sort of floater. It is
Jelbea
in
Macular Society
4 years ago
W9R2 losing motivation 😩
Having read today’s posts of fellow runners completing the programme spurred me on to have a go at R2. Been resting up for a week now with quad pain. So decided it felt a lot better so got ready and did some dynamic stretches . Fine. All good. Started out and could feel a little niggle on the 5min brisk
Having read today’s posts of fellow runners completing the programme spurred me on to have a go at R2. Been resting up for a week now with quad pain. So decided it felt a lot better so got ready and did some dynamic stretches . Fine. All good. Started out and could feel a little niggle on the 5min brisk
Dups
Graduate
in
Couch to 5K
4 years ago
Computer glasses
Hi, What glasses do you recommend to wear for computer? I used to use computer with naked eyes. As you know for people with myopic related macular degeneration reading with naked eyes is much easier. The problem of reading with naked eyes might be the blue light and the eye fatigue. Do you have recommendations
Hi, What glasses do you recommend to wear for computer? I used to use computer with naked eyes. As you know for people with myopic related macular degeneration reading with naked eyes is much easier. The problem of reading with naked eyes might be the blue light and the eye fatigue. Do you have recommendations
myopic-related-md
in
Macular Society
4 years ago
Which magnesium supplement?
I have recently started on flecainide (50mg am and 100mg at night) and dipping in and out of AF. Dr Gupta recommended I try Magnesium glycinate as this has the least negative effects on the bowel and worth trying. Would appreciate your thoughts as to what you take and what brands. Will start of with
I have recently started on flecainide (50mg am and 100mg at night) and dipping in and out of AF. Dr Gupta recommended I try Magnesium glycinate as this has the least negative effects on the bowel and worth trying. Would appreciate your thoughts as to what you take and what brands. Will start of with
Reena09
in
AF Association
4 years ago
NICE appraisal of belimumab (Benlysta) - please complete our anonymous online survey
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence. To help with this and to
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence. To help with this and to
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Inspirational Leadership
https://www.bbc.co.uk/news/uk-england-hampshire-54337929 Blind woman's campaign leads to police ID scheme launch Tina Snow, who is blind, was unable to verify the identity of a police officer when he called at her home A password scheme to help visually impaired people identify police officers has
https://www.bbc.co.uk/news/uk-england-hampshire-54337929 Blind woman's campaign leads to police ID scheme launch Tina Snow, who is blind, was unable to verify the identity of a police officer when he called at her home A password scheme to help visually impaired people identify police officers has
RecoveringH
in
Headway
4 years ago
Sulfasalizine suddenly working after 4 months
Hey all. I've been on sulfasalizine as part of triple therapy (methotrexate + hydroxychloroquine + sulfasalizine) for 4 months now, with seemingly little to no benefit, and am due to start adalimumab in a couple of weeks. However, in the last few days the sulfasalizine seems to have suddenly started
Hey all. I've been on sulfasalizine as part of triple therapy (methotrexate + hydroxychloroquine + sulfasalizine) for 4 months now, with seemingly little to no benefit, and am due to start adalimumab in a couple of weeks. However, in the last few days the sulfasalizine seems to have suddenly started
Smelliott
in
NRAS
4 years ago
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