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Rinvoq 5 days
I started my Rinvoq on Wednesday. The first 3 days I was so tired I could barely get off the couch and couldn't keep my eyes open. This has improved somewhat the past couple of days. This morning some of my joints actually feel less painful. I was able to get up off the toilet without too much
I started my Rinvoq on Wednesday. The first 3 days I was so tired I could barely get off the couch and couldn't keep my eyes open. This has improved somewhat the past couple of days. This morning some of my joints actually feel less painful. I was able to get up off the toilet without too much
ElizabethW
in
NRAS
3 years ago
Headaches
Hi everyone, I’m desperately trying to cut down on pred, for a about 10 days I’ve reduced quite a lot, I’ve got down to 2 or 3 mg per day but have started to get headaches again also feeling very tired, plus started getting very sore tongue, ulcers and pain. I was taking 5mg before I started to reduce
Hi everyone, I’m desperately trying to cut down on pred, for a about 10 days I’ve reduced quite a lot, I’ve got down to 2 or 3 mg per day but have started to get headaches again also feeling very tired, plus started getting very sore tongue, ulcers and pain. I was taking 5mg before I started to reduce
2013mayo
in
PMRGCAuk
3 years ago
Thyroid capsules from Porcine and Bovine side effect
Has any one use Bovine Thyroid capsules and Porcine. What was the different? I think there is some side effect. My tongue tip fells strange. Inflammation in the eyes . special one. I dont know if it is because I am very low? i have got puffy face know.
Has any one use Bovine Thyroid capsules and Porcine. What was the different? I think there is some side effect. My tongue tip fells strange. Inflammation in the eyes . special one. I dont know if it is because I am very low? i have got puffy face know.
Eva56
in
Thyroid UK
3 years ago
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Feels like thin ice....
Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another
Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another
Grammy80
in
PMRGCAuk
3 years ago
Technology - a source of massive stress
Anyone else having this issue? I’m 78, a former university art instructor, and am finding myself increasingly stressed when having to deal with technology to get anything done - especially health care! Everything requires passwords, sign in IDs, and if you mess up you often have to go through the whole
Anyone else having this issue? I’m 78, a former university art instructor, and am finding myself increasingly stressed when having to deal with technology to get anything done - especially health care! Everything requires passwords, sign in IDs, and if you mess up you often have to go through the whole
Mstiles
in
PMRGCAuk
3 years ago
More ?diagnosises more testing - no light at the end of the tunnel just yet.
Hey everyone! Sooo lots has happened since last coming online. Seen rheumatology who was happy to discharge me based on bloods returning back to normal. Then saw dermatology who took one look at my photos and my eyes that were currently in a bad flare and wanted to start me to hydroxy because she’s
Hey everyone! Sooo lots has happened since last coming online. Seen rheumatology who was happy to discharge me based on bloods returning back to normal. Then saw dermatology who took one look at my photos and my eyes that were currently in a bad flare and wanted to start me to hydroxy because she’s
BabyOleg
in
LUPUS UK
3 years ago
Graves & TED - RAI or Thyroidectomy
Hi, I have had Grave Disease for around 5 years now and in the beginning had high doses of Carbimazole, but for the last 3 1/2 years been on 5 mg per day and my thyroid has been completely stable. just as they were about to reduce Carbimazole further (3 years ago) I got Thyroid eye disease, which in
Hi, I have had Grave Disease for around 5 years now and in the beginning had high doses of Carbimazole, but for the last 3 1/2 years been on 5 mg per day and my thyroid has been completely stable. just as they were about to reduce Carbimazole further (3 years ago) I got Thyroid eye disease, which in
Darto76
in
Thyroid UK
3 years ago
The thyroid hormone converting enzyme human deiodinase 1 is inhibited by gold ions from inorganic salts, organic substances, ...
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Worried
Have just had narrow angle glaucoma diagnosed with came as a real shock as I have no family history (identical twin also does not have it) and I lead a healthy life style. I do have dry eyes, and have been prescribed Latanoprost. This product has been really problematic for me and has exacerbated the
Have just had narrow angle glaucoma diagnosed with came as a real shock as I have no family history (identical twin also does not have it) and I lead a healthy life style. I do have dry eyes, and have been prescribed Latanoprost. This product has been really problematic for me and has exacerbated the
Gaulloise
in
Glaucoma UK
3 years ago
Generally feeling down
Hello. I haven't popped in here for ages. I received my TBI in 2005, when I fell off my bicycle in France. After 18 nonths off work, I went back to my job as a university lecturer, and I was happy there for 10 years, but then the department closed down. I tried to move into school teaching, but as I
Hello. I haven't popped in here for ages. I received my TBI in 2005, when I fell off my bicycle in France. After 18 nonths off work, I went back to my job as a university lecturer, and I was happy there for 10 years, but then the department closed down. I tried to move into school teaching, but as I
Flumptious
in
Headway
3 years ago
What a lovely Saturday it is for October..........
Well good morning(well it was still morning when i started tyoing this) ANd how are we all on this warm October day. It is so unseasonal for the time of the year isn't it. Well this morning Bob dropped me up the village while he went down the allotment and did some digging. I got the shopping and came
Well good morning(well it was still morning when i started tyoing this) ANd how are we all on this warm October day. It is so unseasonal for the time of the year isn't it. Well this morning Bob dropped me up the village while he went down the allotment and did some digging. I got the shopping and came
sylvi
in
NRAS
3 years ago
Any help or advice please
Thank you to everyone who answered my first post on here I'm sorry I didn't answer you all . I have been having a lot of different health problems for a long time, years, a lot of which overlap each other, with various different diagnosis and various different specialists and to be honest I am feeling
Thank you to everyone who answered my first post on here I'm sorry I didn't answer you all . I have been having a lot of different health problems for a long time, years, a lot of which overlap each other, with various different diagnosis and various different specialists and to be honest I am feeling
Lucy5555
in
PMRGCAuk
3 years ago
Does anyone know where I can get advice/help/support specific to 'Bile Acid Malabsorption' (aside from Online Sites)?
I am struggling very badly and it is destroying my life alongside with my other health conditions. Am I allowed to ask for personal recommendations? (ignore if not) There are various conflicts with diet regarding diabetes and BAM and my stress is also increased re other conditions. Is there a helpline
I am struggling very badly and it is destroying my life alongside with my other health conditions. Am I allowed to ask for personal recommendations? (ignore if not) There are various conflicts with diet regarding diabetes and BAM and my stress is also increased re other conditions. Is there a helpline
Houseofpain
in
IBS Network
3 years ago
Problems with cataract replacement in 1 eye with multi focal lens …
Hello, I’m new to this community as I usually post on the NRAS as I have rheumatoid arthritis and the lovely souls there’s signposted me to you 😊 I’m hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of
Hello, I’m new to this community as I usually post on the NRAS as I have rheumatoid arthritis and the lovely souls there’s signposted me to you 😊 I’m hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of
Rosie_rabbit
in
Macular Society
3 years ago
Disorientated after cataract replacement in 1 eye with multifocal lens
Very off topic here but hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of a cataract but isn’t impairing my vision right now so the surgeon said that as I’m young for a cataract replacement, 53yrs, it increases
Very off topic here but hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of a cataract but isn’t impairing my vision right now so the surgeon said that as I’m young for a cataract replacement, 53yrs, it increases
Rosie_rabbit
in
NRAS
3 years ago
How are you ?
Hello all my friends on here, are you all keeping well ? My eyesight was slightly blurred pre trab surgery, still is, only a bit worse with the odd ache, dry eye which I am taking drops for, it feels like the eye ball has a slightly obscure film over it, but apart from that quite well, so no real problems
Hello all my friends on here, are you all keeping well ? My eyesight was slightly blurred pre trab surgery, still is, only a bit worse with the odd ache, dry eye which I am taking drops for, it feels like the eye ball has a slightly obscure film over it, but apart from that quite well, so no real problems
floki7
in
Glaucoma UK
3 years ago
Would you recommend EMDR therapy?
I haven’t gone to therapy in awhile. I believe I’ve only tried Cognitive Behavioral Therapy (CBT). I’d love to hear from anyone on your experience or recommendations.
I haven’t gone to therapy in awhile. I believe I’ve only tried Cognitive Behavioral Therapy (CBT). I’d love to hear from anyone on your experience or recommendations.
PastelPink20
in
Anxiety and Depression Support
3 years ago
Pressure on eye while reading and watching tv , is common in GCA ?
My wife 71 on actemra and prednisone from last 3 months for GCA . On watching tv or reading , she get pressure on eye and ear . Eye are checked by two eye dr it seems normal . Is this can be due to GCA ? Is this normally experienced by GCA patients ? What other main irritable symptoms continue and experience
My wife 71 on actemra and prednisone from last 3 months for GCA . On watching tv or reading , she get pressure on eye and ear . Eye are checked by two eye dr it seems normal . Is this can be due to GCA ? Is this normally experienced by GCA patients ? What other main irritable symptoms continue and experience
Rajuguide
in
PMRGCAuk
3 years ago
“Shriveling” and losing fat and muscle
Hello everyone, In the last few months I’ve gotten a lot more wrinkly and my extremities are beginning to resemble toothpicks. Especially noticeable in my thighs and rear. I’ve had trouble with healthy eating during this pandemic and with filling up if I don’t eat carbs. I’ve lost a few pounds
Hello everyone, In the last few months I’ve gotten a lot more wrinkly and my extremities are beginning to resemble toothpicks. Especially noticeable in my thighs and rear. I’ve had trouble with healthy eating during this pandemic and with filling up if I don’t eat carbs. I’ve lost a few pounds
Mstiles
in
PMRGCAuk
3 years ago
Statins for Graves' orbitopathy (STAGO): a phase 2, open-label, adaptive, single centre, randomised clinical trial
https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00238-2/fulltext PAID ACCESS ARTICLES Statins for Graves' orbitopathy: a new tool for prevention and treatment? https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00268-0/fulltext Statin Use Associated with Lower Incidence
https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00238-2/fulltext PAID ACCESS ARTICLES Statins for Graves' orbitopathy: a new tool for prevention and treatment? https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00268-0/fulltext Statin Use Associated with Lower Incidence
ling
in
Thyroid UK
3 years ago
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