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Webinar: What causes photopsia and photophobia in patients with Stargardt and what impact does it have on their lives?
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Carol_MacularSociety
Partner
in
Macular Society
10 months ago
Vitamin B2 Deficiency Can Cause B6 Toxicity! PWP Are Commonly Deficient In B2.
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
park_bear
in
Cure Parkinson's
10 months ago
Macular Hole
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
doubtfully
in
PMRGCAuk
10 months ago
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wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
8 months ago
Sinemet Plus 25mg/100mg tablets Side effects?
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
Sarah106
in
Cure Parkinson's
10 months ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
5 months ago
sjogens?
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
Yanico
in
MPN Voice
10 months ago
Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
10 months ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
10 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
10 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
11 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
11 months ago
Bam ibs
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
Netbet22
in
IBS Network
11 months ago
Dry mouth
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
veggiefan70
in
Fibromyalgia Action UK
11 months ago
Rainbows in the morning
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
KBIOW
in
Glaucoma UK
11 months ago
Bloodshot eyes
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
Oldbloke1
in
PBC Foundation
11 months ago
High ferritin and high TSH
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
Dylan555
in
Thyroid UK
11 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
11 months ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
11 months ago
Fluid at back of eye
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hidden
in
Glaucoma UK
11 months ago
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