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Long term predisolone
I was on mycophenloate and then rituximab but have been advised that just
steroids
will be my recommended medication to control my symptoms now, as I’ve had so many infections over the last few years, so not to have further rituximab.
I was on mycophenloate and then rituximab but have been advised that just
steroids
will be my recommended medication to control my symptoms now, as I’ve had so many infections over the last few years, so not to have further rituximab.
Galaxy2
in
Vasculitis UK
4 months ago
THE END (hopefully)
After 3&1/2 years of PMR , I have finally come off the
steroids
… woo hoo. During that time I have reduced down to 1 mg but each time I had to go back up again due to pain coming back. The journey with PMR has been pretty rubbish but I realised you have to be patient and listen to your body.
After 3&1/2 years of PMR , I have finally come off the
steroids
… woo hoo. During that time I have reduced down to 1 mg but each time I had to go back up again due to pain coming back. The journey with PMR has been pretty rubbish but I realised you have to be patient and listen to your body.
H8062073
in
PMRGCAuk
3 months ago
hiatus hernia
I’ve been told I won’t survive surgery as too much tissue damage caused by
steroids
and if my stomach was brought down, my lungs would pack up. Also my stomach would become redundant because it wouldn’t know how to function. I’ve asked for a second opinion as it just doesn’t seem right to me.
I’ve been told I won’t survive surgery as too much tissue damage caused by
steroids
and if my stomach was brought down, my lungs would pack up. Also my stomach would become redundant because it wouldn’t know how to function. I’ve asked for a second opinion as it just doesn’t seem right to me.
Jollyhockeysticks
in
Acid Reflux Support
6 days ago
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proof of concept CUPID trial finished, moving to 1b/2
Actinium under
steroids
... https://www.prnewswire.com/news-releases/telix-completes-proof-of-concept-study-of-tlx592-targeted-alpha-therapy-in-prostate-cancer-302150652.html
Actinium under
steroids
... https://www.prnewswire.com/news-releases/telix-completes-proof-of-concept-study-of-tlx592-targeted-alpha-therapy-in-prostate-cancer-302150652.html
Maxone73
in
Advanced Prostate Cancer
3 months ago
Mosquitos
I started on methotrexate 4 weeks ago and am slowly reducing
steroids
currently on 5mg daily. I've never had to give mozzies a thought because I only ever got bitten a couple of times but this year I have been eaten alive and am covered in bites .
I started on methotrexate 4 weeks ago and am slowly reducing
steroids
currently on 5mg daily. I've never had to give mozzies a thought because I only ever got bitten a couple of times but this year I have been eaten alive and am covered in bites .
Fenti
in
NRAS
18 days ago
PMR struggles and weight gain.
I was diagnosed with polymyalga Rhumatica November 2023 after a lot of discussion with several professionals as many of you know it was agony.Was put on 15mg of
Steroids
which didn’t touch the pain,this made the doctors think it wasn’t polymyalga.After second opinion put me on 30mg
steroids
which helped
I was diagnosed with polymyalga Rhumatica November 2023 after a lot of discussion with several professionals as many of you know it was agony.Was put on 15mg of
Steroids
which didn’t touch the pain,this made the doctors think it wasn’t polymyalga.After second opinion put me on 30mg
steroids
which helped
Catnap44
in
PMRGCAuk
6 months ago
severe pain with no inflammatory markers
I can hardly weight bare, I am falling frequently and covered in bruises, I cannot sleep and despite the increase in mst to 10 mg twice daily the only thing that takes away the pain and allows me to walk is a course if
steroids
.
I can hardly weight bare, I am falling frequently and covered in bruises, I cannot sleep and despite the increase in mst to 10 mg twice daily the only thing that takes away the pain and allows me to walk is a course if
steroids
.
CecilyParsley
in
Behçet's UK
1 month ago
Covid vaccination
Is there any issue with this and GCA or
steroids
?
Is there any issue with this and GCA or
steroids
?
Gladys911
in
PMRGCAuk
5 months ago
weight gain!
No pain …after just 2
steroids
absolutely amazing My main reason for posting is weight gain .Diet not changed at all…but my goodness I feel I’m going to pop !! Walk a lot always on the go …Boobs and tummy being the problem ..am I alone ? On my way down to 5 on pred …roll on January !
No pain …after just 2
steroids
absolutely amazing My main reason for posting is weight gain .Diet not changed at all…but my goodness I feel I’m going to pop !! Walk a lot always on the go …Boobs and tummy being the problem ..am I alone ? On my way down to 5 on pred …roll on January !
Sallyhumph
in
PMRGCAuk
28 days ago
Just Diagnosed with PMR and Confused
I understand that the PMR is there and
steroids
just help with blocking activity that causes inflammation. So is inflammation still there? I ask because in the morning its still so stiff and painful, takes about 4 hrs to ease up and then around 5pm it starts aching again.
I understand that the PMR is there and
steroids
just help with blocking activity that causes inflammation. So is inflammation still there? I ask because in the morning its still so stiff and painful, takes about 4 hrs to ease up and then around 5pm it starts aching again.
Getmoving4
in
PMRGCAuk
1 month ago
Forum
I suspected the prolong used of
steroids
for keloid was responsible for my glaucoma, facial cosmetic concern for keloid on my face contributed to this this problem but my doctor said I am responding well to treatment. Love you guys. Achile
I suspected the prolong used of
steroids
for keloid was responsible for my glaucoma, facial cosmetic concern for keloid on my face contributed to this this problem but my doctor said I am responding well to treatment. Love you guys. Achile
Tuwodakuka
in
Glaucoma UK
3 months ago
Travelling whilst taking steroids
Anyway, the reason for writing is that I am doing well with my reduction of
steroids
. I am now down to 4mg and don't want to spoil it... I really am feeling well at the moment. Can anyone tell me how I manage my intake with the time difference?
Anyway, the reason for writing is that I am doing well with my reduction of
steroids
. I am now down to 4mg and don't want to spoil it... I really am feeling well at the moment. Can anyone tell me how I manage my intake with the time difference?
Mamamia21
in
PMRGCAuk
7 months ago
Covid booster and steroids
I have been offered my Covid booster for next Monday but I had a steroid injection on March 25th. Does anyone know if I need to leave longer between the two jabs??
I have been offered my Covid booster for next Monday but I had a steroid injection on March 25th. Does anyone know if I need to leave longer between the two jabs??
Spin1959
in
NRAS
5 months ago
Rheumatology visit and prednisone reduction
{Once, when I was hospitalized and had to receive IV
steroids
for three days, larger doses, that necessitated a taper.} The ophthalmologist's exam yesterday showed no new damage.
{Once, when I was hospitalized and had to receive IV
steroids
for three days, larger doses, that necessitated a taper.} The ophthalmologist's exam yesterday showed no new damage.
Grammy80
in
PMRGCAuk
2 months ago
Gooner12
Bit worried about the effects of
steroids
but hopefully can manage without too many symptoms side effects. So pleased the pain has gone during the day look forward to mornings without the agony.
Bit worried about the effects of
steroids
but hopefully can manage without too many symptoms side effects. So pleased the pain has gone during the day look forward to mornings without the agony.
Gooner12
in
PMRGCAuk
4 months ago
Steroids and Phlegm Samples
Hi, Does anyone know if it is ok to start a course of
steroids
, before giving a sample of phlegm. I took a course of antibiotics a few weeks ago and didn't feel the infection was totally cleared up, but I'm very reluctant to start a second course without knowing if I have an infection, or not.
Hi, Does anyone know if it is ok to start a course of
steroids
, before giving a sample of phlegm. I took a course of antibiotics a few weeks ago and didn't feel the infection was totally cleared up, but I'm very reluctant to start a second course without knowing if I have an infection, or not.
anng18
in
Lung Conditions Community Forum
7 months ago
Airway clearance advice?
I ask all this because I feel very much like I have been on a constant cycle of chesty cough and breathlessness, treated with
steroids
and antibiotics, a period of feeling Ok for it to repeat after approximately four or five days since April this year!
I ask all this because I feel very much like I have been on a constant cycle of chesty cough and breathlessness, treated with
steroids
and antibiotics, a period of feeling Ok for it to repeat after approximately four or five days since April this year!
Mama-bear60
in
Lung Conditions Community Forum
5 days ago
Masks
Just wondering how immune suppressed I actually am after 2 yrs on
steroids
. Thanks for any insights/opinions.
Just wondering how immune suppressed I actually am after 2 yrs on
steroids
. Thanks for any insights/opinions.
Pusph
in
PMRGCAuk
6 months ago
Post Moderna covid vaccination
I am on 5mg
steroids
and 12.5 methotrexate. I am due to reduce
steroids
at the end of the week to 4.5 mg. Has any one else had this issue and if so how long before it starts to fade? The sleep issue is worse than any time during my G.C.A.
I am on 5mg
steroids
and 12.5 methotrexate. I am due to reduce
steroids
at the end of the week to 4.5 mg. Has any one else had this issue and if so how long before it starts to fade? The sleep issue is worse than any time during my G.C.A.
KASHMIRI1
in
PMRGCAuk
4 months ago
Extra steroids?
Since I'm getting no sense out of him, is there anyone on here know if using Beconase as well as oral
steroids
can have a bad effect? It doesn't seem to at the moment - usual insomnia problems as I've just tapered, but apart from that ok.
Since I'm getting no sense out of him, is there anyone on here know if using Beconase as well as oral
steroids
can have a bad effect? It doesn't seem to at the moment - usual insomnia problems as I've just tapered, but apart from that ok.
ladygigger
in
PMRGCAuk
8 months ago
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