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Help please!
Goodmorning, I was first diagnosed with PMR back in 2014, usual treatment with pred, taper etc. Then diagnosed in 2021 with Fibromyalgia aand on 2mg maintenance dose of pred & 60mg Duloxetine plus Co codamol as needed. Then last month caught Covid for first time. Have had all vaccines. It really hit
Goodmorning, I was first diagnosed with PMR back in 2014, usual treatment with pred, taper etc. Then diagnosed in 2021 with Fibromyalgia aand on 2mg maintenance dose of pred & 60mg Duloxetine plus Co codamol as needed. Then last month caught Covid for first time. Have had all vaccines. It really hit
September17
in
PMRGCAuk
7 months ago
Saw Cardiologist today, now more anxious than ever.
Hi Everyone Thank you all for your lovely replies to my original post. I saw the cardiologist today and he says he thinks my PH is primarily caused by my asthma/COPD. He didn't put me on any medications at this stage. He wants an ultra sound done on my heart in September [[2 months away!] to compare
Hi Everyone Thank you all for your lovely replies to my original post. I saw the cardiologist today and he says he thinks my PH is primarily caused by my asthma/COPD. He didn't put me on any medications at this stage. He wants an ultra sound done on my heart in September [[2 months away!] to compare
puddy68
in
Lung Conditions Community Forum
3 months ago
Itchy skin
Hi I have suffered with poly myalgia for about four years. Having been prescribed predisalone 20mg daily the pains went away and I am on a very very slow reduction, now only 1.5 mg daily. Six months ago I started with patches of itchy skin, sides of hands, hairline and round my eyes. GP thought it
Hi I have suffered with poly myalgia for about four years. Having been prescribed predisalone 20mg daily the pains went away and I am on a very very slow reduction, now only 1.5 mg daily. Six months ago I started with patches of itchy skin, sides of hands, hairline and round my eyes. GP thought it
CathieT
in
PMRGCAuk
8 months ago
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Steroids
Hi.i am just wondering when you come off steroids,do you still have to see drs at the hospital,because I haven't see one 8 months.i am am doing well.also does G.C.A.COME BACK.
Hi.i am just wondering when you come off steroids,do you still have to see drs at the hospital,because I haven't see one 8 months.i am am doing well.also does G.C.A.COME BACK.
Flosy
in
PMRGCAuk
11 months ago
New to here
I have had tinnitus for a couple of years now. It started, I believe, with a bout of COVID. I had COVID for the 3rd time in October 2023 and the tinnitus has and is continuing to get worse. It's constant buzzing sound with clicking noises and now earache.
I have had tinnitus for a couple of years now. It started, I believe, with a bout of COVID. I had COVID for the 3rd time in October 2023 and the tinnitus has and is continuing to get worse. It's constant buzzing sound with clicking noises and now earache.
Butbuts
in
Tinnitus UK
7 months ago
looking for a little support
hi everyone I’m on my 3rd round of ICSI, this round I got 6 blastocysts after making some changes with supplements, skin care products and removing certain things from my house (plastics etc) I couldn’t believe it, it was the furthest we got. x1 FET natural cycle and x1 FET short protocol unfortunately
hi everyone I’m on my 3rd round of ICSI, this round I got 6 blastocysts after making some changes with supplements, skin care products and removing certain things from my house (plastics etc) I couldn’t believe it, it was the furthest we got. x1 FET natural cycle and x1 FET short protocol unfortunately
Savannah9
in
Fertility Network UK
2 months ago
There’s no point to this post
Hi everyone, hope you’re all as well as can be. I’m approximately 3 1/2 years into this PMR. Sometimes it gets me down. I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering
Hi everyone, hope you’re all as well as can be. I’m approximately 3 1/2 years into this PMR. Sometimes it gets me down. I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering
Bramble2000
in
PMRGCAuk
11 months ago
Cold Turkey
Hello Everyone, What happens if i just "Cold Turkey" Stop the 6.5 mg of methylprednisolone? I'm so sick of it all. I've gotten very low on meds (even zero for a few days) and the pain and stiffness return so bad i can't function. If i just quit, what's the worst that can happen?
Hello Everyone, What happens if i just "Cold Turkey" Stop the 6.5 mg of methylprednisolone? I'm so sick of it all. I've gotten very low on meds (even zero for a few days) and the pain and stiffness return so bad i can't function. If i just quit, what's the worst that can happen?
ifeelold
in
PMRGCAuk
3 months ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
7 months ago
Inhaler post pneumonia, awaiting lung scarring diagnosis?
Hi first time posting - hoping someone can help! I’m basically after some advice in knowing when to ask for an inhaler. 40 y old female fit and healthy until last September when I got severe pneumonia. One lung was a white out with atelectasis (bits inside the lung dying; they’re still dead) and the
Hi first time posting - hoping someone can help! I’m basically after some advice in knowing when to ask for an inhaler. 40 y old female fit and healthy until last September when I got severe pneumonia. One lung was a white out with atelectasis (bits inside the lung dying; they’re still dead) and the
SirCoughalot
in
Lung Conditions Community Forum
7 months ago
Day 5 call from embryologist
hi all - had ten eggs fertilised with ICSI using partners sperm. Just had our day 5 call from the embryologist and she said that they weren’t developing how they’d like and were going to give it another day. I actually didn’t really want to delve into how many are still about as I’m trying to manage
hi all - had ten eggs fertilised with ICSI using partners sperm. Just had our day 5 call from the embryologist and she said that they weren’t developing how they’d like and were going to give it another day. I actually didn’t really want to delve into how many are still about as I’m trying to manage
cass1063
in
Fertility Network UK
2 months ago
Covid rebound
Hello I’ve just tested positive for Covid again, just finished a curse of Plaxoid Sunday gone. I took a test on the Tuesday it was clear. Still felt fatigued so today I felt shivery took another test and it’s positive 😭 I’m eating for a call back from my Doctor . I have heard it can come back after
Hello I’ve just tested positive for Covid again, just finished a curse of Plaxoid Sunday gone. I took a test on the Tuesday it was clear. Still felt fatigued so today I felt shivery took another test and it’s positive 😭 I’m eating for a call back from my Doctor . I have heard it can come back after
Pekingese
in
CLL Support
7 months ago
First FET - how chilled to be after?
Hi all, Just starting our 2nd IVF attempt with a FET, with our only frozen embryo. We’ve been trying for 2 years, tests show I have a low AMH of around 4, and husband had varicocele causing low motility, count & shape. We had ICSI in spring this year which sadly didn’t implant, so really nervous about
Hi all, Just starting our 2nd IVF attempt with a FET, with our only frozen embryo. We’ve been trying for 2 years, tests show I have a low AMH of around 4, and husband had varicocele causing low motility, count & shape. We had ICSI in spring this year which sadly didn’t implant, so really nervous about
Elderflower48
in
Fertility, Miscarriage & IVF Support
2 months ago
PEG vs Aspirational Pneumonia
Mum has reached a new point in her illness and food intake is now causing her to be sick on occasion which is ultimately leading to seizures and a risk of choking. We have been told the only way to ultimately stop this is via a peg or accept that this will eventually lead to her choking getting pneumonia
Mum has reached a new point in her illness and food intake is now causing her to be sick on occasion which is ultimately leading to seizures and a risk of choking. We have been told the only way to ultimately stop this is via a peg or accept that this will eventually lead to her choking getting pneumonia
bichonbear1
in
PSP Association
3 months ago
Help with "sick day rules"
Hello, It's been a while. I am struggling and need some dose guidance please. My normal dose is 10mg per day. I delivered Mark to hospital on Sunday for a planned Total Knee Replacement which took place on Monday morning. He's doing very well, no pain (typical of him lol) and he was discharged yesterday
Hello, It's been a while. I am struggling and need some dose guidance please. My normal dose is 10mg per day. I delivered Mark to hospital on Sunday for a planned Total Knee Replacement which took place on Monday morning. He's doing very well, no pain (typical of him lol) and he was discharged yesterday
IdasMum
in
PMRGCAuk
11 months ago
Normal cortisol levels
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Bargin_ninja
in
PMRGCAuk
11 months ago
Slow response Gonal f
Hi, this is my first cycle of IVF/ICSI due to male factor infertility. I went for my day 5 scan and my follicles are still very small. I started nasal spray for down regulation day 21 of cycle and stims with gonal f on 12th July (225IU) Has anyone any experience in this? Thanks!
Hi, this is my first cycle of IVF/ICSI due to male factor infertility. I went for my day 5 scan and my follicles are still very small. I started nasal spray for down regulation day 21 of cycle and stims with gonal f on 12th July (225IU) Has anyone any experience in this? Thanks!
Black203
in
Fertility Network UK
2 months ago
Cough
Hi I was in itu intubated but now when I eat I cough and sometimes feels like food gets stuck. Has anyone had this?
Hi I was in itu intubated but now when I eat I cough and sometimes feels like food gets stuck. Has anyone had this?
Tjspindat
in
ICUsteps
3 months ago
when to call your neurologist
I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I contacted my neurologist a few months ago and they (the Pa) ordered a 3 day round of steroids which didn’t help at all. I called them back and
I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I contacted my neurologist a few months ago and they (the Pa) ordered a 3 day round of steroids which didn’t help at all. I called them back and
Littledeer
in
My MSAA Community
11 months ago
Menopur 300 and ovaleap 150
Hi lovely ladies, Has anyone taken menopur and ovaleap on a short protocol before? I had my first follicle scan today and I had 13 follicles showing, 8 follicles which where leading and 5 follicles tailing behind. Apparently clinic have informed me this is the best follicle count in all my rounds.
Hi lovely ladies, Has anyone taken menopur and ovaleap on a short protocol before? I had my first follicle scan today and I had 13 follicles showing, 8 follicles which where leading and 5 follicles tailing behind. Apparently clinic have informed me this is the best follicle count in all my rounds.
Anonymou5
in
Fertility Network UK
2 months ago
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