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Cardiac issues
Hi CD, Following on from your comments re MSK specialist and my reply. Since Sept/Oct 2023 my BP has progressively worsened while HR is beautifully spot on. BP is gradually trending up to around the 166/80 whereas in October and earlier it was a comfortable 132/70 with a beautiful steady HR. Whilst
Hi CD, Following on from your comments re MSK specialist and my reply. Since Sept/Oct 2023 my BP has progressively worsened while HR is beautifully spot on. BP is gradually trending up to around the 166/80 whereas in October and earlier it was a comfortable 132/70 with a beautiful steady HR. Whilst
BenHall1
in
Atrial Fibrillation Support
5 months ago
Update following catheter ablation.
Well, those 6 weeks (on Tuesday) have flown and the heart continues to behave 🤞😊Still getting a feeling of trapped wind when I swallow especially when I lie down at night. My GP thinks this may be the esomoprazole as it's notorious for causing gas. I also have a bit of a sore tongue of all things,
Well, those 6 weeks (on Tuesday) have flown and the heart continues to behave 🤞😊Still getting a feeling of trapped wind when I swallow especially when I lie down at night. My GP thinks this may be the esomoprazole as it's notorious for causing gas. I also have a bit of a sore tongue of all things,
Karendeena
in
Atrial Fibrillation Support
5 months ago
Experience with Disopyramid please.
My AF has returned at about 3 bouts a month. My EP has suggested a change from Sotalol to Disopyramid. Any experience or comments about Disopyramid would be helpful.
My AF has returned at about 3 bouts a month. My EP has suggested a change from Sotalol to Disopyramid. Any experience or comments about Disopyramid would be helpful.
AFCyclist
in
Atrial Fibrillation Support
5 months ago
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Taxol
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Adele_Julia
in
My Breast Cancer Community
2 months ago
Taxol
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Adele_Julia
in
My Breast Cancer Community
2 months ago
Sotalol causing Insomnia
I am taking 80 mg of Sotalol twice daily since 2022, and I have been experiencing insomnia. Typically, I would wake up after 2 or 3 hours of sleep, and not able fall asleep. Of late, I have not been able to fall asleep at all. Have any of you had a similar experience?
I am taking 80 mg of Sotalol twice daily since 2022, and I have been experiencing insomnia. Typically, I would wake up after 2 or 3 hours of sleep, and not able fall asleep. Of late, I have not been able to fall asleep at all. Have any of you had a similar experience?
Hearsehorse
in
Atrial Fibrillation Support
5 months ago
CA125 rising steadily
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Norelo8
in
My Ovacome
2 months ago
Dronedarone - thoughts ?
I wondered if anyone could share their experience with dronedarone please ? I'm 4 years into my AF journey and as well as 2 unsuccessful ablations I've tried all of the first line AAD's including sotalol, propafenone and flecainide. Unfortunately the beast just won't go away and the burden is getting
I wondered if anyone could share their experience with dronedarone please ? I'm 4 years into my AF journey and as well as 2 unsuccessful ablations I've tried all of the first line AAD's including sotalol, propafenone and flecainide. Unfortunately the beast just won't go away and the burden is getting
Dyldog
in
Atrial Fibrillation Support
5 months ago
Taxol-Anyone had experience with Taxol
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
DinNorCal
in
SHARE Metastatic Breast Cancer
3 months ago
fear and loathing afib
so glad to have found this forum. I have had persistent afib for at least 10 years which has contributed to a couple of strokes, a multitude of TIA’s, heart attacks and an anxiety disorder which destroyed my mental health. In the last year I have had a pace maker installed. To treat my afib I had
so glad to have found this forum. I have had persistent afib for at least 10 years which has contributed to a couple of strokes, a multitude of TIA’s, heart attacks and an anxiety disorder which destroyed my mental health. In the last year I have had a pace maker installed. To treat my afib I had
Scotf
in
Atrial Fibrillation Support
5 months ago
pertinieum and ascites
hi. I’m looking to chat with someone that took weekly taxol to help with pertinieum Mets and ascites. Thanks so much. Marianne
hi. I’m looking to chat with someone that took weekly taxol to help with pertinieum Mets and ascites. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
3 months ago
Avastin V Niraparib-clear cell cancer
Morning all Still got my head in the clouds after finding out I have no evidence of disease this week after 1st line treatment for stage 4 clear cell! 😊 Had a lovely BBQ celebration & a glass of wine with my family last night. Today my mind is turning to ongoing maintenance treatment & I'd like to
Morning all Still got my head in the clouds after finding out I have no evidence of disease this week after 1st line treatment for stage 4 clear cell! 😊 Had a lovely BBQ celebration & a glass of wine with my family last night. Today my mind is turning to ongoing maintenance treatment & I'd like to
Kazzh
in
My Ovacome
3 months ago
Brain Fog
Do Beta Blockers have side effect of brain fog? I have been taking Sotalol and I seriously feel like I have dementia. I am 48 and have been forgetting bizarre things and it is kind of a big deal because I am a nurse in an ER!!! Is that a side effect? Eek!! I just seriously suddenly cannot remember
Do Beta Blockers have side effect of brain fog? I have been taking Sotalol and I seriously feel like I have dementia. I am 48 and have been forgetting bizarre things and it is kind of a big deal because I am a nurse in an ER!!! Is that a side effect? Eek!! I just seriously suddenly cannot remember
MeganMN
in
Atrial Fibrillation Support
5 months ago
Wondering what to do
Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which have been successful for a while. I also had surgery in 2020 when I was diagnosed. My last lot of single carbo chemo have me a stable few months
Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which have been successful for a while. I also had surgery in 2020 when I was diagnosed. My last lot of single carbo chemo have me a stable few months
BadgerBright
in
My Ovacome
3 months ago
taxol for pertinieum mets
hi. I just started taxol for pertinieum Mets and wondering if anyone is doing this treatment. I have 3 weeks on and 1 week off. Can’t eat much cause I have small bowel blockage. How is everyone doing in this treatment. I am really nervous. Thanks. Marianne
hi. I just started taxol for pertinieum Mets and wondering if anyone is doing this treatment. I have 3 weeks on and 1 week off. Can’t eat much cause I have small bowel blockage. How is everyone doing in this treatment. I am really nervous. Thanks. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
3 months ago
Enhertu
Good morning. Has anyone taken Enhertu for breast cancer? What are your pros/cons? Little back story: dx stage 4 metastatic breast cancer, ER/PR +, HERS2 -, but I am considered HERS2 low w/ a count of 1, in April 2022, I was 44 at the time. Left breast, lymph node in left armpit, multiple spots in my
Good morning. Has anyone taken Enhertu for breast cancer? What are your pros/cons? Little back story: dx stage 4 metastatic breast cancer, ER/PR +, HERS2 -, but I am considered HERS2 low w/ a count of 1, in April 2022, I was 44 at the time. Left breast, lymph node in left armpit, multiple spots in my
Felicia1228
in
SHARE Metastatic Breast Cancer
3 months ago
low heart rates
Good morning all My cardiologist changed my medication last week as still having regular high heart rate. He’s put me on 40mg Sotalol twice a day and going to be doubling it next week. My problem is I’ve been having a low heart rate of 41/43 every night on and off during the night and I’m exhausted
Good morning all My cardiologist changed my medication last week as still having regular high heart rate. He’s put me on 40mg Sotalol twice a day and going to be doubling it next week. My problem is I’ve been having a low heart rate of 41/43 every night on and off during the night and I’m exhausted
Bertieboy1
in
Atrial Fibrillation Support
6 months ago
Looking for feedback regarding Asymptomatic Afib
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
DrBook
in
Atrial Fibrillation Support
6 months ago
Letrozole alone after a year of chemo
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Shumawy
in
SHARE Metastatic Breast Cancer
4 months ago
Change of Tablets
Good Morning hope you are all enjoying some rest.I am 52 years old and have been dealing with SVT for about 1 year and things have improved but not cured, I have been referred to Glenfield for a possible Ablation. Diet, Caffeine, Alcohol & Exercise all addressed. Recently my Meds have been changed from
Good Morning hope you are all enjoying some rest.I am 52 years old and have been dealing with SVT for about 1 year and things have improved but not cured, I have been referred to Glenfield for a possible Ablation. Diet, Caffeine, Alcohol & Exercise all addressed. Recently my Meds have been changed from
RagdollRagdoll
in
Atrial Fibrillation Support
6 months ago
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