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Newbe
On Monday I will be having my first infusion of
Rituximab
. I've read all the leaflets spoken to consultant and special nurses so now it's down to me. Hope it will be okay? I'm having one flare up after another so must have faith in new treatment.
On Monday I will be having my first infusion of
Rituximab
. I've read all the leaflets spoken to consultant and special nurses so now it's down to me. Hope it will be okay? I'm having one flare up after another so must have faith in new treatment.
Jackie1947
in
NRAS
8 years ago
To Toc or not to Toc? That is the question
They want to try me on
Rituximab
but even with odds of 25000 to 1 against getting PML ( reactivated JC Virus and always fatal) I am not prepared to play Russian Roulette with odds that would be great for the lottery jackpot.
They want to try me on
Rituximab
but even with odds of 25000 to 1 against getting PML ( reactivated JC Virus and always fatal) I am not prepared to play Russian Roulette with odds that would be great for the lottery jackpot.
harryhunt43
in
NRAS
8 years ago
B Cells
Indicators as why
Rituximab
is effective in some though not all cases a research paper that if replicated identifies responders by profile of B cells a phenotype of this disease with a biological marker. http://onlinelibrary.wiley.com/doi/10.1111/cei.12749/abstract
Indicators as why
Rituximab
is effective in some though not all cases a research paper that if replicated identifies responders by profile of B cells a phenotype of this disease with a biological marker. http://onlinelibrary.wiley.com/doi/10.1111/cei.12749/abstract
readerlist
in
Ramsays Disease
8 years ago
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CLL&Dizziness,Cloudy Brain....anyone?
I did 4 round of
Rituximab
and then a year later tried Imbruvica. I truly believe the
Rituximab
caused my random sores. After getting off the Imbruvica which has me more concerned. I have had 'cloudy brain' it is the best way I can explain it, along with dizziness, fatigue and lightheadedness.
I did 4 round of
Rituximab
and then a year later tried Imbruvica. I truly believe the
Rituximab
caused my random sores. After getting off the Imbruvica which has me more concerned. I have had 'cloudy brain' it is the best way I can explain it, along with dizziness, fatigue and lightheadedness.
deanna2289
in
CLL Support
8 years ago
Left sided heart failure and Vasculitis. Anyone else been diagnosed with this ?
I have been receiving
Rituximab
every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old.
I have been receiving
Rituximab
every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old.
Essex-jill
in
Vasculitis UK
8 years ago
Flair trail update Ibrutinib and Rituximab round 4
About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have been suffering increasing joint and muscle pain over the last 2 months. Sometimes vey bad, and very debilitating. Maximum advised painkillers combining paracetemol and codeine do not really affect the pain at all. As mentioned
About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have been suffering increasing joint and muscle pain over the last 2 months. Sometimes vey bad, and very debilitating. Maximum advised painkillers combining paracetemol and codeine do not really affect the pain at all. As mentioned
romarin
in
CLL Support
8 years ago
Giant cell hepatitis
two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets Ivig every two weeks he has had lots of infusions of
rituximab
two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets Ivig every two weeks he has had lots of infusions of
rituximab
Rueben13
in
Children's Liver Disease Foundation
8 years ago
Benlysta/Rituximab
Hi everyone! Has anyone here been treated with any of these 2 drugs? Was reading that there have been some (ongoing) trials with promising results...so i was just wondering. Hope to hear from you, A.
Hi everyone! Has anyone here been treated with any of these 2 drugs? Was reading that there have been some (ongoing) trials with promising results...so i was just wondering. Hope to hear from you, A.
jemozne
in
The Australian Sjögren's Syndrome Association
8 years ago
Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
aking90
in
CLL America Support
8 years ago
Have you been diagnosed with IgG4 Related Disease? If so, please contact John Mills @VUK.
2 ) Have you been diagnosed with IgG4 disease and been given
Rituximab
? If you can answer yes to either question , could you please contact John Mills, chairman of VUK, by 5pm today. john.mills@vasculitis.org.uk Thank you Susan
2 ) Have you been diagnosed with IgG4 disease and been given
Rituximab
? If you can answer yes to either question , could you please contact John Mills, chairman of VUK, by 5pm today. john.mills@vasculitis.org.uk Thank you Susan
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Mr Steven Buckley
GPA Dx Sept 2010 with Kidney involvement.Relapse Nov 2015 with Lung nodule involvement,recently received initial 2
Rituximab
infusions and so far so good apart from the pred of course.
GPA Dx Sept 2010 with Kidney involvement.Relapse Nov 2015 with Lung nodule involvement,recently received initial 2
Rituximab
infusions and so far so good apart from the pred of course.
Steven_buckley1GPA
in
Vasculitis UK
8 years ago
Knee op & rituximab infusion
And the rheumy says that he'll delay my
rituximab
until 2 weeks after the op. The waiting list people say I can expect the op by the end of March beginning of April.
And the rheumy says that he'll delay my
rituximab
until 2 weeks after the op. The waiting list people say I can expect the op by the end of March beginning of April.
cathie
in
NRAS
8 years ago
Azatheoprine
Hi guys, I've recently been under-going treatment for GPA and have responded really well to
rituximab
which I was given about 2 months ago.
Hi guys, I've recently been under-going treatment for GPA and have responded really well to
rituximab
which I was given about 2 months ago.
Marcus1988
in
Vasculitis UK
8 years ago
Rituximab
Hi anyone on or had a
rituximab
infusion, I may be having one shortly and would like any info that you may have, thank you.
Hi anyone on or had a
rituximab
infusion, I may be having one shortly and would like any info that you may have, thank you.
madambutterfly
in
NRAS
8 years ago
Is ibrutinib enough?
Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of irritating side effects. My question is do I continue to be satisfied with where I am in treatment or should I be more aggressive in seeking a complete
Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of irritating side effects. My question is do I continue to be satisfied with where I am in treatment or should I be more aggressive in seeking a complete
kelcorn92
in
CLL Support
8 years ago
discouraged on FLAIR
After
Rituximab
infusion 3, about 3 weeks ago. A lot of muscle pain, paracetamol hardly takes the edge off. Still tired though flashes of normality and desire to work. Some days of depression.
After
Rituximab
infusion 3, about 3 weeks ago. A lot of muscle pain, paracetamol hardly takes the edge off. Still tired though flashes of normality and desire to work. Some days of depression.
romarin
in
CLL Support
8 years ago
Inequality
Normally I can cope with this all, waiting too for the
rituximab
, but someone close to me has private medical insurance (through their partner's business interests) and has had a very quick joint replacement - took them a month to get seen to.
Normally I can cope with this all, waiting too for the
rituximab
, but someone close to me has private medical insurance (through their partner's business interests) and has had a very quick joint replacement - took them a month to get seen to.
cathie
in
NRAS
8 years ago
Transferring treatment to another country
I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April. My haematologist says that they would provide the necessary papers
I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April. My haematologist says that they would provide the necessary papers
bendintheroad1
in
CLL Support
8 years ago
Any way to shrink lymph nodes without full treatment?
Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6 months after a FISH prognostic showed no 'bad' markers. So far so good, apart from the lymph nodes in my neck and jaw. They have been swollen pretty
Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6 months after a FISH prognostic showed no 'bad' markers. So far so good, apart from the lymph nodes in my neck and jaw. They have been swollen pretty
jasonfox
in
CLL Support
8 years ago
Update before starting 2nd FCR treatment v
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Louiej
in
CLL Support
8 years ago
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