Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,505 public posts
Filter results
Wegener flare ups
My Doctor wants me back on prednisone and
rituximab
. Is all this necessary ? Any comments, concerns or experience sharing would be great ! thank you
My Doctor wants me back on prednisone and
rituximab
. Is all this necessary ? Any comments, concerns or experience sharing would be great ! thank you
Natalia_91
in
Vasculitis UK
7 years ago
Vaccination
The only time I did vaccinations was before
rituximab
and I was already in relapse at that point. Many thanks!
The only time I did vaccinations was before
rituximab
and I was already in relapse at that point. Many thanks!
lc12345
in
ITP Support Association
7 years ago
Reaction to Rituximab
A few months ago I had quite a severe flare and was put forward for a
Rituximab
infusion. The first infusion went perfectly fine however two weeks later was a different story.
A few months ago I had quite a severe flare and was put forward for a
Rituximab
infusion. The first infusion went perfectly fine however two weeks later was a different story.
wotshernameagain
in
LUPUS UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Need for irradiated transfusions following FCR
Hi everyone, just been given irradiated transfusion owing to aenemia. Was told that because I had fluradabin years ago that this is the procedure. Does FCR contain fluradabin.?
Hi everyone, just been given irradiated transfusion owing to aenemia. Was told that because I had fluradabin years ago that this is the procedure. Does FCR contain fluradabin.?
Broadbent
in
CLL Support
7 years ago
2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation
Starting Bendeka +
rituximab
+ allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks!
Starting Bendeka +
rituximab
+ allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks!
Howie40
in
CLL Support
7 years ago
Zydelig (idelalisib) first line... NO!
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i]
[i]Zydelig is indicated, in combination with
, for the treatment of patients with relapsed chronic lymphocytic leukemia (CLL) for whom
rituximab
alone would be considered appropriate therapy due
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i]
[i]Zydelig is indicated, in combination with
, for the treatment of patients with relapsed chronic lymphocytic leukemia (CLL) for whom
rituximab
alone would be considered appropriate therapy due
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
Rituxan (Rituximab) round two three for and five
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
wotshernameagain
in
LUPUS UK
7 years ago
Sugars up following steroid infusions and Christmas
I'm trying to get on top of my blood sugars after two steroid infusions in December (connected to
rituximab
for my RA) and carelessness over Christmas. I'm sticking to my normal meds, but trying to radically control my diet following online advice from Diabetes UK.
I'm trying to get on top of my blood sugars after two steroid infusions in December (connected to
rituximab
for my RA) and carelessness over Christmas. I'm sticking to my normal meds, but trying to radically control my diet following online advice from Diabetes UK.
cathie
in
Diabetes & Hypertension Help Society
7 years ago
Blood clots after chemo?
I completed 5 months of FCR in September. This was a difficult period but successful and I returned to work after a 2 month recuperation. I was slowly recovering strength and even started light workouts. Then 3 weeks ago I had terrible pain in my flank and went to the ER. Diagnosed with lung embolisms
I completed 5 months of FCR in September. This was a difficult period but successful and I returned to work after a 2 month recuperation. I was slowly recovering strength and even started light workouts. Then 3 weeks ago I had terrible pain in my flank and went to the ER. Diagnosed with lung embolisms
brian_in_Seattle
in
CLL Support
7 years ago
Pottery workshop.?
I have been invited to a pottery workshop to make a couple of pots. At end of cycle 1 of FCR. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
I have been invited to a pottery workshop to make a couple of pots. At end of cycle 1 of FCR. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
abikaasa
in
CLL Support
7 years ago
Ask the expert Ohio state talk. Slide 46. PFS for treatment naïve patients on imbruvica Vs TN FCR patients.
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
Hoffy
in
CLL Support
7 years ago
ITP
I have tried a lot of treatments from medication, infusions and
Rituximab
but unfortunately nothing is working, is anyone else having problems x
I have tried a lot of treatments from medication, infusions and
Rituximab
but unfortunately nothing is working, is anyone else having problems x
Manclady61
in
LUPUS UK
7 years ago
Muscle Ache
I have given infusions of
Rituximab
recently but had these aches before that. Just wondered if the infusion will help settle this down. I have been told the infusion takes 12-16 weeks to take effect so it is still early days for that.
I have given infusions of
Rituximab
recently but had these aches before that. Just wondered if the infusion will help settle this down. I have been told the infusion takes 12-16 weeks to take effect so it is still early days for that.
Ellieellie
in
NRAS
7 years ago
too short of w & w
I will try and keep this short but need some advice on talking to our doctor. My husband Brett finished FCR 15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active
I will try and keep this short but need some advice on talking to our doctor. My husband Brett finished FCR 15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active
jules_c
in
CLL Support
7 years ago
Key questions to ask your consultant
What sort of treatments would be open to me (e.g. new ones like many discussed on the list - I even forget the name of the front line drugs now, I almost said ibuprofen ;-) As I cannot remember the spelling I cut and paste them:
Rituximab
(Rituxan) - Ibrutinib (Imbruvica)giving away my secrets.
What sort of treatments would be open to me (e.g. new ones like many discussed on the list - I even forget the name of the front line drugs now, I almost said ibuprofen ;-) As I cannot remember the spelling I cut and paste them:
Rituximab
(Rituxan) - Ibrutinib (Imbruvica)giving away my secrets.
Davdow
in
CLL Support
7 years ago
High Altitude and CLL: Risk?
I have monitored your support group for a while now and appreciate all the shared information that can be found here. It has been very helpful over the last couple of years. First time writing. My husband is 61 years of age, diagnosed with CLL officially Oct. 2014, but high white counts as far back as
I have monitored your support group for a while now and appreciate all the shared information that can be found here. It has been very helpful over the last couple of years. First time writing. My husband is 61 years of age, diagnosed with CLL officially Oct. 2014, but high white counts as far back as
AGreenwoods
in
CLL Support
7 years ago
Bendamustine vs FCR
He is suggesting that Bendamustine with
Rituximab
will be a better option for me than FCR because of some particular presentation of my condition. Does anyone have experience of Bendamustine to share? Thanks
He is suggesting that Bendamustine with
Rituximab
will be a better option for me than FCR because of some particular presentation of my condition. Does anyone have experience of Bendamustine to share? Thanks
Clovelly
in
CLL Support
7 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
Wondering
Well I had my second infusion of
Rituximab
on Thursday. Took six attempts to get the cannula in so am a bit bruised. I know they said it can take up to 12 weeks to see a difference. What they haven't said is what sort of difference.
Well I had my second infusion of
Rituximab
on Thursday. Took six attempts to get the cannula in so am a bit bruised. I know they said it can take up to 12 weeks to see a difference. What they haven't said is what sort of difference.
Ellieellie
in
NRAS
7 years ago
Chemotherapy vs Ibrutinib for CLL Frontline Treatment - Dr Susan O'Brien. 12 to 24% of FCR patients effectively cured 6 years after FCR
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
AussieNeil
Administrator
in
CLL Support
7 years ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1009 results
NRAS
558 results
Vasculitis UK
326 results
View top 10 communities
Sort by
Most Relevant
Newest