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Frequently asked about topics - the evidence
Our online community is a way you can get support from others who share your experiences. To support our online community, we’ve summarised the topic areas that people have the most questions about and where it can be hard to understand what the evidence says. We’ve provided the current up to date expert
Our online community is a way you can get support from others who share your experiences. To support our online community, we’ve summarised the topic areas that people have the most questions about and where it can be hard to understand what the evidence says. We’ve provided the current up to date expert
ROSModerator
Partner
in
Bone Health and Osteoporosis UK
3 months ago
Vitamin D and Anemia: Insights into an Emerging Association
Found an interesting study. The conclusion sold it for me. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4659411/ CONCLUSION Vitamin D is associated with anemia in various study populations and recent evidence suggests that the association may differ by race and is likely specific to anemia of inflammation
Found an interesting study. The conclusion sold it for me. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4659411/ CONCLUSION Vitamin D is associated with anemia in various study populations and recent evidence suggests that the association may differ by race and is likely specific to anemia of inflammation
WideBody
in
Restless Legs Syndrome
10 months ago
b12 advice
Hey, So for ten years or so now I’ve suffered with a “on and off” B12/folate deficiency. I had loading doses and then injections in 2017 and my levels were at the lowest of 198, folate was really low aswell then but then they checked my levels a few months later (1803) and obviously they would be high
Hey, So for ten years or so now I’ve suffered with a “on and off” B12/folate deficiency. I had loading doses and then injections in 2017 and my levels were at the lowest of 198, folate was really low aswell then but then they checked my levels a few months later (1803) and obviously they would be high
Em19911
in
Pernicious Anaemia Society
3 months ago
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Iron infusion
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
Charlie27612
in
Pernicious Anaemia Society
3 months ago
worse after b12 injection
really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away
really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away
B12stuff
in
Pernicious Anaemia Society
3 months ago
How does it feel to have too much B12?
I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop and let things settle. How can you tell whether you need more or less B12? I am finding this very confusing...
I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop and let things settle. How can you tell whether you need more or less B12? I am finding this very confusing...
Krysagnes
in
Pernicious Anaemia Society
3 months ago
appointment with doc
T 4. 8.0. Range. 8 -18.0 TSH. 0.17. 0.38-5.33 B12. 277. 180/900 Sodium. 132. 135-146 Ferritin. 23. 11-307 Red blood 3.66 3.80-5.30 Haemoglobin 116 120-150 Message. to book telephone appointment I delayed it by
T 4. 8.0. Range. 8 -18.0 TSH. 0.17. 0.38-5.33 B12. 277. 180/900 Sodium. 132. 135-146 Ferritin. 23. 11-307 Red blood 3.66 3.80-5.30 Haemoglobin 116 120-150 Message. to book telephone appointment I delayed it by
Gcart
in
Thyroid UK
3 months ago
So, reversing out. Why?
I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is the science behind it? Surely healing should get easier, not worse. Just interested to know why we go backwards before recovery.
I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is the science behind it? Surely healing should get easier, not worse. Just interested to know why we go backwards before recovery.
Chickens44
in
Pernicious Anaemia Society
3 months ago
T3 toxicity
Hi, I wonder if anyone could tell me whether it’s possible for T3 to simply ‘not agree’ with me? I’ve posted here before and got lots of great advice. My numbers previously showed me mid range through all the thyroid numbers but not converting well to T3. I was advised to take selenium and zinc
Hi, I wonder if anyone could tell me whether it’s possible for T3 to simply ‘not agree’ with me? I’ve posted here before and got lots of great advice. My numbers previously showed me mid range through all the thyroid numbers but not converting well to T3. I was advised to take selenium and zinc
Peril1504
in
Thyroid UK
3 months ago
Haematologist uk
Hi Please forgive me if this post is inappropriate. I am looking for a good B12/PA understanding Haematologist in the Uk preferably NHS if anyone can recommend I would appreciate it I am in LINCOLNSHIRE but happy to travel. Thank you
Hi Please forgive me if this post is inappropriate. I am looking for a good B12/PA understanding Haematologist in the Uk preferably NHS if anyone can recommend I would appreciate it I am in LINCOLNSHIRE but happy to travel. Thank you
Diane1961
in
Pernicious Anaemia Society
3 months ago
What is the conversion for red blood cell folate from nmol/L to micro g/L?
I'm researching folate and I'm interested to know what blood levels of folate are required to prevent neural tube defects in studies. I found this study that states "red-blood-cell folate levels between 1050 and 1340 nmol/L, optimal for reduction of the neural tube defect risk". https://pubmed.ncbi.nlm.nih.gov
I'm researching folate and I'm interested to know what blood levels of folate are required to prevent neural tube defects in studies. I found this study that states "red-blood-cell folate levels between 1050 and 1340 nmol/L, optimal for reduction of the neural tube defect risk". https://pubmed.ncbi.nlm.nih.gov
Carrie234
in
Pernicious Anaemia Society
3 months ago
Vitamin B6 Dosage?
Hi, I want to take B6 on its own (not in complex). What dosage (in mg and how often) is recommended to take along with folate and SI B12.
Hi, I want to take B6 on its own (not in complex). What dosage (in mg and how often) is recommended to take along with folate and SI B12.
B12again
in
Pernicious Anaemia Society
3 months ago
esomeprazole
I've posted or replied a few times now about my struggle to stop this medication. Now I have a new reason. I've needed a couple of teeth extracted and bled profusely afterwards. Someone tried to tell me it was my B12 injections, but all I found on that subject is the possibility of INCREASED clotting
I've posted or replied a few times now about my struggle to stop this medication. Now I have a new reason. I've needed a couple of teeth extracted and bled profusely afterwards. Someone tried to tell me it was my B12 injections, but all I found on that subject is the possibility of INCREASED clotting
tomdickharry
in
Pernicious Anaemia Society
3 months ago
Struggling with fatigue
Hello everyone, I have started to take quite a bit of vitamins (pregnacare, bio-quinone, folic acid and vit D) in January, but I really struggle at times with fatigue. We had a failed fresh transfer last year, but since we have unexplained infertility, I thought I would try vitamins as well. My mood
Hello everyone, I have started to take quite a bit of vitamins (pregnacare, bio-quinone, folic acid and vit D) in January, but I really struggle at times with fatigue. We had a failed fresh transfer last year, but since we have unexplained infertility, I thought I would try vitamins as well. My mood
Cridog
in
Fertility Network UK
4 months ago
New blood results from Thriva.
I have had an increase in weight of 4kg, from 60kg to 64kg, during a period of 2 months. I am struggling to lose weight. I decided to have my blood tested to see if my thyroid is being properly managed. I have had an increase in weight and have constant fatigue. Can someone help me decipher the results
I have had an increase in weight of 4kg, from 60kg to 64kg, during a period of 2 months. I am struggling to lose weight. I decided to have my blood tested to see if my thyroid is being properly managed. I have had an increase in weight and have constant fatigue. Can someone help me decipher the results
GeorgieandBlu
in
Thyroid UK
11 months ago
Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
6 months ago
For Those Forum Members Taking B1 To Good Effect And Wondering What Other Health Benefit They May Be Getting From Their Use Of B1
Long before Dr. Costantini was using vitamin B1 in his patients with PD, vitamin B1 was already being used as a supplement to help maintain better health. Many on this forum who are using vitamin B1 to good effect, in terms of their PD symptoms, may be wondering what other health benefit B1 may hold
Long before Dr. Costantini was using vitamin B1 in his patients with PD, vitamin B1 was already being used as a supplement to help maintain better health. Many on this forum who are using vitamin B1 to good effect, in terms of their PD symptoms, may be wondering what other health benefit B1 may hold
chartist
in
Cure Parkinson's
3 months ago
Strange, possibly hopeful realisation
This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they haven't prescribed. So, I am dealing with the second recurrence and looking at third line treatment. And wondering why my cancer (clear cell and
This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they haven't prescribed. So, I am dealing with the second recurrence and looking at third line treatment. And wondering why my cancer (clear cell and
candyapplegrey
in
My Ovacome
5 months ago
Sharp Bins
Hi - I have been using B12 patches for years - but found I needed more and more to feel OK. So I went to my GP - who was unhelpful. I found an Aesthetic Practitioner who gave me a number of shots - after filling in an online form for a prescription. She has now stopped her practice for a short time
Hi - I have been using B12 patches for years - but found I needed more and more to feel OK. So I went to my GP - who was unhelpful. I found an Aesthetic Practitioner who gave me a number of shots - after filling in an online form for a prescription. She has now stopped her practice for a short time
Pixie330
in
Pernicious Anaemia Society
3 months ago
B12 advice please
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Ankles
in
Pernicious Anaemia Society
3 months ago
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