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Kidney Transplant /Dialysis
Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed to outrun most of the nasty effects of Vasculitis but I fear the disease is finally catching up with me. I went to my regular quarterly review/
Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed to outrun most of the nasty effects of Vasculitis but I fear the disease is finally catching up with me. I went to my regular quarterly review/
gibson100
in
Vasculitis UK
5 years ago
Cholesterol
Recently I read a post quoting Washington Post telling pharmaceutical companies extracted USD 2 trillion in the name of cholesterol management and it is the biggest scam after HBA1c parameters of pharmaceutical companies.Any comments ?
Recently I read a post quoting Washington Post telling pharmaceutical companies extracted USD 2 trillion in the name of cholesterol management and it is the biggest scam after HBA1c parameters of pharmaceutical companies.Any comments ?
kamtadale
in
Diabetes India
5 years ago
CAPD and night sweats
I have been on peritoneal dialysis for nearly two months. While things are going well in general, I am suffering from occasional excessive sweats. I wake up with soaking bedsheets and pillow, soggy hair and general sticky, sweaty body. Can anyone throw light on this condition?
I have been on peritoneal dialysis for nearly two months. While things are going well in general, I am suffering from occasional excessive sweats. I wake up with soaking bedsheets and pillow, soggy hair and general sticky, sweaty body. Can anyone throw light on this condition?
Hypochondriac123
in
Kidney Dialysis
5 years ago
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Kidney grumblings post tp
Hi all, Transplanted 6 months ago now, and on day one the team were concerned about my kidney function post op - they had been fine Pre op. Through my follow up surgeon visits, all appeared fine until about 3 months in when it was mentioned. Had a blood test recently for my local consultant, and had
Hi all, Transplanted 6 months ago now, and on day one the team were concerned about my kidney function post op - they had been fine Pre op. Through my follow up surgeon visits, all appeared fine until about 3 months in when it was mentioned. Had a blood test recently for my local consultant, and had
Huggy7614
in
British Liver Trust
5 years ago
Prescription timing.
Good morning. I need help with the timing of my supplements. I have been under the weather so I have gone to different specialists and every one of them prescribes something different. I shall provide the list: Levo 112 mg pantoprazole 40 mg Vitamin D 2000 or 5000 B Complex Magnesium vitamin C Fish
Good morning. I need help with the timing of my supplements. I have been under the weather so I have gone to different specialists and every one of them prescribes something different. I shall provide the list: Levo 112 mg pantoprazole 40 mg Vitamin D 2000 or 5000 B Complex Magnesium vitamin C Fish
Hidden
in
Thyroid UK
5 years ago
Inulin - may help sleep and constipation
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
Ruby1
in
Thyroid UK
5 years ago
CKD
I've recently been diagnosed with Chronic Kidney Disease, mainly due to my high blood pressure which has now stabilised due to medication. Does anyone else have experience of CKD ?
I've recently been diagnosed with Chronic Kidney Disease, mainly due to my high blood pressure which has now stabilised due to medication. Does anyone else have experience of CKD ?
Atomheart
in
LUPUS UK
5 years ago
Dietary Restrictions to Prolong the Life of a Kidney Transplant
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
Falkenhayn
in
Kidney Transplant Patient Support
5 years ago
DIL vs SLE - Anti Histone Antibody
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
katidid
in
LUPUS UK
5 years ago
Newest Test Lab result shows increase of eGFR
Hi everyone, I have done the lab after 3 months of first diagnosed as CKD stage 2 and just received both good news and bad news on it. Good news: eGFR increased from 82 to 97.5 and Albuminuria is no more occurring. Bad news: My HbA1c is 6.4%, which is showing that I am severely at the threshold between
Hi everyone, I have done the lab after 3 months of first diagnosed as CKD stage 2 and just received both good news and bad news on it. Good news: eGFR increased from 82 to 97.5 and Albuminuria is no more occurring. Bad news: My HbA1c is 6.4%, which is showing that I am severely at the threshold between
spiritvan
in
Early CKD Support
5 years ago
Hashimoto’s now Ana positive
Hello I have had Hashimoto’s since I was 16, and never had a positive Ana, I’m now 39 with positive ana of 1:40 and homogeneous pattern has anyone seen this happen with thyroid disease only?
Hello I have had Hashimoto’s since I was 16, and never had a positive Ana, I’m now 39 with positive ana of 1:40 and homogeneous pattern has anyone seen this happen with thyroid disease only?
Litha
in
Thyroid UK
5 years ago
Post transplant tacrolimus doses
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷♀️ - has anyone else experienced this ????
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷♀️ - has anyone else experienced this ????
cherrygirl13
in
British Liver Trust
5 years ago
Buprenorphine update 😴😴🤸🏼♀️💃🧘🏻♂️🙏😄
Absolutely the best RSL drug . My husband is shocked he told the good doctor he has never ever known me be still in bed . He said even on oxycodene and stillnox I was fidgety . So what difference do I notice I feel NORMAL I actually don’t feel like I take medication I can take wafer medication
Absolutely the best RSL drug . My husband is shocked he told the good doctor he has never ever known me be still in bed . He said even on oxycodene and stillnox I was fidgety . So what difference do I notice I feel NORMAL I actually don’t feel like I take medication I can take wafer medication
Shumbah
in
Restless Legs Syndrome
5 years ago
Need expert fertility information & face-face support from others trying to conceive?
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
AliceMatthews
in
Thyroid UK
5 years ago
Slight bad news
Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday. I need a liver scan so I presume when bloods taken not good. Hopefully it can be sopted. I have just come off mycophenolate tablets and have been put on prednisolone again. See what happens. I supposed
Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday. I need a liver scan so I presume when bloods taken not good. Hopefully it can be sopted. I have just come off mycophenolate tablets and have been put on prednisolone again. See what happens. I supposed
Steak
in
British Liver Trust
5 years ago
2 months post kidney transplant
Hello everyone! I am a new member here and was really happy to found this group. I am 27 years old and of my kidneys failed due to HSP (Henoch Schonlein Purpura) April of last year. I was on hemodialysis for a over year and I am super blessed to received a call from my Transplant Center back in July
Hello everyone! I am a new member here and was really happy to found this group. I am 27 years old and of my kidneys failed due to HSP (Henoch Schonlein Purpura) April of last year. I was on hemodialysis for a over year and I am super blessed to received a call from my Transplant Center back in July
Trouper
in
Kidney Transplant Patient Support
5 years ago
Adoport
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
Tourguide
in
British Liver Trust
5 years ago
Kidney transplant
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
Christina1960
in
Vasculitis UK
5 years ago
High creatinine normal bun
Hi there I have iga nephropathy. I got diagnosed with this last year with 1.8 creatinine. Now latest tests showed Bun 17mg and creatinine 3mg/dl.has anyone got any experience as I have heard that if creatinine is high bun is also high. Any comments please.
Hi there I have iga nephropathy. I got diagnosed with this last year with 1.8 creatinine. Now latest tests showed Bun 17mg and creatinine 3mg/dl.has anyone got any experience as I have heard that if creatinine is high bun is also high. Any comments please.
Umerpk
in
Early CKD Support
5 years ago
GRAVES AND THYROTOXICOSIS : URINARY TRACT, ENDOCRINE SYSTEM
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ URINARY TRACT Polyuria and occasionally glycosuria are seen in uncomplicated thyrotoxicosis. Standard clinical renal function tests give normal results. Glycosuria may reflect accelerated
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ URINARY TRACT Polyuria and occasionally glycosuria are seen in uncomplicated thyrotoxicosis. Standard clinical renal function tests give normal results. Glycosuria may reflect accelerated
ling
in
Thyroid UK
5 years ago
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