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recent cirrhosis diagnosis scared
Hi I’m new to this so not sure I can post this here , yesterday I received bad news about my liver , having cirrhosis NAFL metabolic dysfunction related liver disease I haven’t been given a prognosis however I am so scared , I am an alcoholic and morbidly obese , I have been given guidance ( brief
Hi I’m new to this so not sure I can post this here , yesterday I received bad news about my liver , having cirrhosis NAFL metabolic dysfunction related liver disease I haven’t been given a prognosis however I am so scared , I am an alcoholic and morbidly obese , I have been given guidance ( brief
Charlotteb1991
in
British Liver Trust
3 months ago
What a difference a year makes!
This is probably a post for those who are fairly new to the site, I still consider myself one of those people. This isn’t a post about reversing cirrhosis. Or some miracle I’ve experienced. It’s purely to provide my experience, the questions I had at the start, the complete hopeless feelings I experienced
This is probably a post for those who are fairly new to the site, I still consider myself one of those people. This isn’t a post about reversing cirrhosis. Or some miracle I’ve experienced. It’s purely to provide my experience, the questions I had at the start, the complete hopeless feelings I experienced
DaveQ67
in
British Liver Trust
3 months ago
in remission and stable
I have AIH/PBC and Barrett’s oesophagus I have been in remission for about 18months , interested to hear how long anyone else has stayed in remission? I am still on 3mg budesonide, mycophenolate and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with
I have AIH/PBC and Barrett’s oesophagus I have been in remission for about 18months , interested to hear how long anyone else has stayed in remission? I am still on 3mg budesonide, mycophenolate and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with
Suecong
in
British Liver Trust
3 months ago
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Continued Journey
Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations
Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations
FiArt12X
in
CLL Support
3 months ago
liver cirrhosis
my partner was admitted to hospital via A&E after being ill for weeks with a swollen abdomen He was diagnosed with cirrhosis and ascites and remained in hospital for 4 weeks, treatment was albumin and terrepressin, some issues with kidney failure too he’s been home over a week and he doesn’t seem
my partner was admitted to hospital via A&E after being ill for weeks with a swollen abdomen He was diagnosed with cirrhosis and ascites and remained in hospital for 4 weeks, treatment was albumin and terrepressin, some issues with kidney failure too he’s been home over a week and he doesn’t seem
Powley
in
British Liver Trust
3 months ago
Wednesday's Word
[i]
Autoimmune hepatitis (AIH)
[/i] This is an autoimmune disease where the attack is on the hepatocytes (cells of the liver) rather than the biliary cells (bile ducts). It presents very differently and is treated very differently as well. When both diseases are present this is called 'AIH overlap
[i]
Autoimmune hepatitis (AIH)
[/i] This is an autoimmune disease where the attack is on the hepatocytes (cells of the liver) rather than the biliary cells (bile ducts). It presents very differently and is treated very differently as well. When both diseases are present this is called 'AIH overlap
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Ultrasound result and am now panicking
Hi, I wonder if anyone could offer some words of wisdom, I had an ultrasound yesterday and the sonographer said I had some fat in my liver, nothing to worry about. A week for results to GP. Phone call today from receptionist for urgent bloods, in a week and appt with GP, in 2 weeks. Asked to speak to
Hi, I wonder if anyone could offer some words of wisdom, I had an ultrasound yesterday and the sonographer said I had some fat in my liver, nothing to worry about. A week for results to GP. Phone call today from receptionist for urgent bloods, in a week and appt with GP, in 2 weeks. Asked to speak to
Owlie
in
British Liver Trust
3 months ago
results
good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷♀️ meld score down to 12, so all is good news, am done with google I honestly
good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷♀️ meld score down to 12, so all is good news, am done with google I honestly
Kingbilly3
in
British Liver Trust
3 months ago
some PBC general pieces of information
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
normal gamma-gt and cirrhosis?
hello, I went to the GP today to discuss concerns about drinking. I’ve cut down significantly but am concerned about having already done irreversible damage. Historically my results have always been normal (last blood test in March). She said that if gamma-gt is normal, cirrhosis is unlikely, but did
hello, I went to the GP today to discuss concerns about drinking. I’ve cut down significantly but am concerned about having already done irreversible damage. Historically my results have always been normal (last blood test in March). She said that if gamma-gt is normal, cirrhosis is unlikely, but did
Soph9987
in
British Liver Trust
3 months ago
can loading doses cause liver enzymes to go up
hello All, I received some blood work back and I noticed my liver enzymes are high alt and ast. I am injecting EOD now and on 6th week. just curious because thats the only thing that has changed since my last blood work is I am now doing injections not just oral liquid sublingual. thank you for any
hello All, I received some blood work back and I noticed my liver enzymes are high alt and ast. I am injecting EOD now and on 6th week. just curious because thats the only thing that has changed since my last blood work is I am now doing injections not just oral liquid sublingual. thank you for any
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
raised AST (SGOT) levels and your history with CLL
when i was DX 7 years ago, my AST levels were at around 30. my oncologist hasn't said much about the fluctuations, which have gone up to 50 on occasion. so when i went to see my GP who worked in oncology in another country, told me that i have mild fatty liver, i was shocked as i was obviously unaware
when i was DX 7 years ago, my AST levels were at around 30. my oncologist hasn't said much about the fluctuations, which have gone up to 50 on occasion. so when i went to see my GP who worked in oncology in another country, told me that i have mild fatty liver, i was shocked as i was obviously unaware
ninap
in
CLL Support
3 months ago
Ascites
I’m going through the diagnosis process at the mo. Had CT scan last week. Follow up appointment isn’t until a week on Monday. I’m quite sure I’m suffering with ascites. Do I wait til that appointment to find out or should I call someone (consultant’s secretary or my own GP) to ask for it to be drained
I’m going through the diagnosis process at the mo. Had CT scan last week. Follow up appointment isn’t until a week on Monday. I’m quite sure I’m suffering with ascites. Do I wait til that appointment to find out or should I call someone (consultant’s secretary or my own GP) to ask for it to be drained
K-Bear88
in
My Ovacome
3 months ago
MRI HCC Scan and bloods.
Hi guys.I have just received my 6 months routine MRI Scan results . Like the other 5 scans I've had they've shown no features of concern and my next routine scan is booked for 6 months. The monitoring liver blood result was normal ( AFP <1). On the blood form for the next scan it shows Cirrhosis CPT
Hi guys.I have just received my 6 months routine MRI Scan results . Like the other 5 scans I've had they've shown no features of concern and my next routine scan is booked for 6 months. The monitoring liver blood result was normal ( AFP <1). On the blood form for the next scan it shows Cirrhosis CPT
Nip1
in
British Liver Trust
3 months ago
Fibroscan Frequency
I had a Fibroscan 3 months ago as an earlier US diagnosed I had cirrhosis. I have fatty liver and a LSM of 28.2 . I have given up alcohol completely since then. I asked the consultant when will I have another Fibroscan . He told me in about a year. I was hoping to have another one much sooner so
I had a Fibroscan 3 months ago as an earlier US diagnosed I had cirrhosis. I have fatty liver and a LSM of 28.2 . I have given up alcohol completely since then. I asked the consultant when will I have another Fibroscan . He told me in about a year. I was hoping to have another one much sooner so
Oldtag
in
British Liver Trust
3 months ago
Encouraging results
Went for 6 monthly US today and they also fitted me in for a fibroscan. Well...the US showed a regular shaped, smooth liver with no nodules and only mild fatty liver. Fibroscan was still high at 40, but much better than 10 months ago when it was 74. My liver is recovering from the years of alcohol I
Went for 6 monthly US today and they also fitted me in for a fibroscan. Well...the US showed a regular shaped, smooth liver with no nodules and only mild fatty liver. Fibroscan was still high at 40, but much better than 10 months ago when it was 74. My liver is recovering from the years of alcohol I
Ilovedavid
in
British Liver Trust
3 months ago
Seven years later.
hi all, Im 7 years post transplant.some bile duct problems, but a good recovery after the main operation. I unfortunately still have fatigue and others symptoms but am alive and kicking 🤣 In the 7years since my transplant I have been lucky enough to become nanna to 7 grandchildren… One for each
hi all, Im 7 years post transplant.some bile duct problems, but a good recovery after the main operation. I unfortunately still have fatigue and others symptoms but am alive and kicking 🤣 In the 7years since my transplant I have been lucky enough to become nanna to 7 grandchildren… One for each
Singlady
in
PBC Foundation
3 months ago
cirrhosis and Pip
Hi everyone, I was just wondering if anyone had experience of giving up work and claiming pip with compensated cirrhosis. My story is I’ve been in quite a stressful role for nearly 24 years and was diagnosed with cirrhosis about 18 months ago. I am feeling increasingly tired with considerable joint
Hi everyone, I was just wondering if anyone had experience of giving up work and claiming pip with compensated cirrhosis. My story is I’ve been in quite a stressful role for nearly 24 years and was diagnosed with cirrhosis about 18 months ago. I am feeling increasingly tired with considerable joint
0range5520
in
British Liver Trust
3 months ago
to anyone new to the group.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Wednesday's Word
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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