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When to consider Chemo?
I’ve just started my journey fighting advanced PCa and am hoping for some advice from you guys who have lots of knowledge and experience. After a PSA result of 13.0, I had an MRI of the pelvic area and was diagnosed with Stage 4 advanced PCa in May 2022. Gleason 8, LN involvement and a quite large (
I’ve just started my journey fighting advanced PCa and am hoping for some advice from you guys who have lots of knowledge and experience. After a PSA result of 13.0, I had an MRI of the pelvic area and was diagnosed with Stage 4 advanced PCa in May 2022. Gleason 8, LN involvement and a quite large (
Benkaymel
in
Advanced Prostate Cancer
2 years ago
difficulty getting Prostap injection
hello fellow Endo patients. Is anyone else stuck in the middle of the ridiculous scenario of not being able to have their 3rd Prostap injection. I was told by Preston Gynae it had to be them,they cancelled the appointment the day before I was due to attend are now refusing and stating my GP should
hello fellow Endo patients. Is anyone else stuck in the middle of the ridiculous scenario of not being able to have their 3rd Prostap injection. I was told by Preston Gynae it had to be them,they cancelled the appointment the day before I was due to attend are now refusing and stating my GP should
SLIB
in
Endometriosis UK
2 years ago
What now?
So I finally had my gynae apt yesterday. I have had pain in my left pelvic area for more than 2 years now, this pain takes on a new level during my period. I say period but since being on the mirena coil my bleeding is sporadic bleeding for 14 days a month on and off. So gastroenterology felt that
So I finally had my gynae apt yesterday. I have had pain in my left pelvic area for more than 2 years now, this pain takes on a new level during my period. I say period but since being on the mirena coil my bleeding is sporadic bleeding for 14 days a month on and off. So gastroenterology felt that
JujuB77
in
Endometriosis UK
2 years ago
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I hate this bloating so much
i am having Prostrap injections every month (2 so far) I was told the injections would help the Endo belly symptoms, I am normally this bloated for about two weeks of the month and usually can predict it nowit seems permanent! Does anybody know if Prostap injections actually help or am I being fobbed
i am having Prostrap injections every month (2 so far) I was told the injections would help the Endo belly symptoms, I am normally this bloated for about two weeks of the month and usually can predict it nowit seems permanent! Does anybody know if Prostap injections actually help or am I being fobbed
Prettythings1
in
Endometriosis UK
2 years ago
Prostap injection instead of Buserelin
Hi Ladies I had my call with the private clinic yesterday to do all the consent forms and talk about the medication I will be on - we start next week! 😊 Due to the shortage of Buserelin they have told me I will be doing one injection of Prostap followed by Menopur injections until egg collection.
Hi Ladies I had my call with the private clinic yesterday to do all the consent forms and talk about the medication I will be on - we start next week! 😊 Due to the shortage of Buserelin they have told me I will be doing one injection of Prostap followed by Menopur injections until egg collection.
Luamber
in
Fertility Network UK
2 years ago
Fertility after Prostap
Hi all, I’ve started spotting/period 8weeks after my 3rd Prostap injection. Just wondered if anybody is aware of fertility/what happened next. I’ve had a Myomectomy and wondered if any of has been in the same boat. Thank you in advance x
Hi all, I’ve started spotting/period 8weeks after my 3rd Prostap injection. Just wondered if anybody is aware of fertility/what happened next. I’ve had a Myomectomy and wondered if any of has been in the same boat. Thank you in advance x
Banana77
in
Endometriosis UK
2 years ago
Weight gain on prostap injections
I have just had my second injection and definitely noticed a lot of weight gain with the last month Other than joining something like Slimming World and doing the Endo diet has anybody got any idea what can help please The weight is all on my stomach I am more bloated than ever I look about nine months
I have just had my second injection and definitely noticed a lot of weight gain with the last month Other than joining something like Slimming World and doing the Endo diet has anybody got any idea what can help please The weight is all on my stomach I am more bloated than ever I look about nine months
Prettythings1
in
Endometriosis UK
2 years ago
Periods post Prostap SR
Hi, I had x3 Prostap SR, with my last one finishing on 23/05/2022 then I had a Myomectomy on 14/06/2022. Anyone have an ideas as to when my periods will be making an appearance please?
Hi, I had x3 Prostap SR, with my last one finishing on 23/05/2022 then I had a Myomectomy on 14/06/2022. Anyone have an ideas as to when my periods will be making an appearance please?
Yellowbird9
in
Endometriosis UK
2 years ago
Prostap
Can anyone help are we allowed to have prostap injections 5 weeks apart and then 3 weeks later..I have tired to contact my consultant be he has not got back to me I always thought they had to be 4 weeks apart. Help my injection is due today. Kerry
Can anyone help are we allowed to have prostap injections 5 weeks apart and then 3 weeks later..I have tired to contact my consultant be he has not got back to me I always thought they had to be 4 weeks apart. Help my injection is due today. Kerry
Bewrabbit
in
Endometriosis UK
2 years ago
Operation date came through 😳
Hi Ladies , I’m so nervous I have my operation booked for august to remove ovaries and have a mirena coil fitted I’m getting so scared about it, this is my second month on prostap and my moods are all over the place will it settled down after my op? X
Hi Ladies , I’m so nervous I have my operation booked for august to remove ovaries and have a mirena coil fitted I’m getting so scared about it, this is my second month on prostap and my moods are all over the place will it settled down after my op? X
Hidden
in
Endometriosis UK
2 years ago
Prostap advice
Hi i recently had endometrial ablation due to severe period pains but it hasnt eased the pain My consultant has just recommended me to try prostap and livial hrt rather than a hysterectomy , has anyone tried this and did it work? Im that fed up i feel like just going for the full hysterectomy and having
Hi i recently had endometrial ablation due to severe period pains but it hasnt eased the pain My consultant has just recommended me to try prostap and livial hrt rather than a hysterectomy , has anyone tried this and did it work? Im that fed up i feel like just going for the full hysterectomy and having
Ruby14
in
Endometriosis UK
2 years ago
Surgery date is finally here
Hi there, I am really nervous.. I have my pre surgery on Tuesday and my surgery is on 7th July for endometriosis removal through key hole surgery. I just want to know what I need to pack and what happens during the day. I will be staying at the hospital for 3 nights. It’s a cyst removal I am having
Hi there, I am really nervous.. I have my pre surgery on Tuesday and my surgery is on 7th July for endometriosis removal through key hole surgery. I just want to know what I need to pack and what happens during the day. I will be staying at the hospital for 3 nights. It’s a cyst removal I am having
FMohammed
in
Fertility Network UK
2 years ago
Prostap injection
Hi ladies 💕 I’m about to start my 3rd IVF cycle. My Fallopian tubes have blockages and possibly also a question mark over egg quality but husband has been told his sperm are top notch 🙄 The first cycle I used Ovaleap and Ganirelix but none of our 5 fertilised eggs developed normally and we weren’t
Hi ladies 💕 I’m about to start my 3rd IVF cycle. My Fallopian tubes have blockages and possibly also a question mark over egg quality but husband has been told his sperm are top notch 🙄 The first cycle I used Ovaleap and Ganirelix but none of our 5 fertilised eggs developed normally and we weren’t
haylady
in
Fertility Network UK
2 years ago
Prostap SR - Will my heavy periods and clotting stop?
Hi, i am looking for advise and people who have experience with the Prostap SR injections. I got diagnosed with Fibroids in February 2022 and they started me on various medications to stop my periods (Provera & Norethisterone) both of which didnt work. I started my Prostap SR injections 4 days ago and
Hi, i am looking for advise and people who have experience with the Prostap SR injections. I got diagnosed with Fibroids in February 2022 and they started me on various medications to stop my periods (Provera & Norethisterone) both of which didnt work. I started my Prostap SR injections 4 days ago and
Kya1410
in
Women's Health
2 years ago
Pain with the Mirena Coil
Hello, I had the Mirena Coil fitted on 8 June to treat Endo after I couldn't tolerate the side effects of Prostap. My consultant insisted that the Mirena is "the number one treatment for pelvic pain and painful periods". I had braced myself for terrible pain when it was fitted and was advised that I'd
Hello, I had the Mirena Coil fitted on 8 June to treat Endo after I couldn't tolerate the side effects of Prostap. My consultant insisted that the Mirena is "the number one treatment for pelvic pain and painful periods". I had braced myself for terrible pain when it was fitted and was advised that I'd
Aussie79
in
Endometriosis UK
2 years ago
Estradiol Clinical Trial in UK?
Since my diagnosis of hormone-resistant and metastatic, I've been researching my options, beyond SOC (my onco wants me to start enzalutamide + Leuprorolin immediately) . Having seen E2-Guy post on Estradiol, I saw that there is a clinical trial taking place in the UK, so I am interested in joining
Since my diagnosis of hormone-resistant and metastatic, I've been researching my options, beyond SOC (my onco wants me to start enzalutamide + Leuprorolin immediately) . Having seen E2-Guy post on Estradiol, I saw that there is a clinical trial taking place in the UK, so I am interested in joining
CrocodileShoes
in
Advanced Prostate Cancer
2 years ago
Prostap (Lupron) Effects
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Jon1923
in
Advanced Prostate Cancer
2 years ago
Pain Threshold Used Against You
Just had my review appt after being on Prostap for the last year. I had intermittent bleeding while on prostap so had a few appts in the last year and it had been mentioned that I could possibly try it for another year as I had noticed an improvement in symptoms. Today I was told that’s not an option
Just had my review appt after being on Prostap for the last year. I had intermittent bleeding while on prostap so had a few appts in the last year and it had been mentioned that I could possibly try it for another year as I had noticed an improvement in symptoms. Today I was told that’s not an option
NNNurse
in
Endometriosis UK
2 years ago
Prostap update
Tomorrow will be 3 weeks on prostap, it’s been very up and down during these 3 weeks. I have lupus so my joint pain has been very bad needing to take extra meds on top of my slow release tramadol. Had nearly two weeks of not being able to do much but finally working out some kind of routine with it all
Tomorrow will be 3 weeks on prostap, it’s been very up and down during these 3 weeks. I have lupus so my joint pain has been very bad needing to take extra meds on top of my slow release tramadol. Had nearly two weeks of not being able to do much but finally working out some kind of routine with it all
Leenie0811
in
Endometriosis UK
2 years ago
Prostap and smear test
Hello Ladies, I’m back on Prostap to help with endos pains but have a smear test in a few weeks anybody had one done while on this treatment as my downstairs has got a lot smaller im worried they won’t be able to do it? Any advice would be greatly appreciated 🌸 xx
Hello Ladies, I’m back on Prostap to help with endos pains but have a smear test in a few weeks anybody had one done while on this treatment as my downstairs has got a lot smaller im worried they won’t be able to do it? Any advice would be greatly appreciated 🌸 xx
Hidden
in
Endometriosis UK
2 years ago
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