Experiences with

Proton Therapy

Hi. I joined this group because I really need help and advice on how to deal with my health issue and the fact I feel I am not being taken seriously. Throughout my life I've had periods of anxiety and depression, but have otherwise been pretty healthy all in all. About 4 or 5 years ago I began to notice

Hi I had sever back pain yesterday and out of desperation for something to watch I put Freeze the fear with Wim Hoff on the iplayer. This is not my usual fare but it pricked my interest because I have had a long struggle with autoimmune disease and having had read articles about exposure to extreme cold

I've been on ADT for 4.5 years. Lupron and Zytiga. We all know the sexual health problems with that. I was getting depressed quite badly at times so I started Citalopram a few days ago. It's already helping but I have noticed a bit more ED. Maybe I have to give it some time to see. There are other anti

I recently posted about my father who had just completed IMRT and three years of Lupron (no mets seen on bone/CT scans). At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with ADT at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA

So, I have stage 4 de novo prostate CA. On Lupron, in between 5th & 6th docetaxel chemo. Had to stop abiraterone due to elevated bilirubin & will try restarting after chemo is over. Recently diagnosed with MGUS (Monoclonal gammopathy of undetermined significance) which is unrelated to the prostate.

35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the daily trips in the rear view mirror. Head to Mexico in a couple months to celebrate. Fingers crossed for a long time to any new BCR. My hats off to all you warriors enduring your journey.

I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one

Hi, could someone tell me the names of body identical HRT oestrogen? I need to go on a low dose oestrogen (patch or gel?) but I'd like it to be body identical as I also need to go on a body identical progesterone which I know it's called Utrogestan. Thank you!

If you are concerned, perhaps GnRH antagonists (e.g., Firmagon) will fit you better than GnRH agonists (e.g., Lupron). Table 4 Subgroup analysis estimating the risk of MACE associated with GnRH antagonist comparing with GnRH agonist. https://www.nature.com/articles/s41391-022-00596-5/tables/1

Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin

HI All. I have been diagnosed with several meninginoma as I am entering the menopause I am concerned about starting HRT . I have read some studies that it can cause the meninginoma to grow . Does anyone have any experience or come across this ?.Any advise welcome x

MO wants to take me off ADT after 5 mos PSA down .07 from 3.14 June - October Before the treatment began, the PSA had a 2 mo slope, for the first time. This would be my 3 rd vacation, and beginning of 4th year since 2018 salvage robot prost. I was put on degarelix after 6 mos biological recurrence

Hello. I've just joined and I have just eben diagnosed with hyperthyroidism and probable Graves disease. I'm absolutely terrified. I've struggled for the last few years with a very fast heart rate but have been told that it was anxiety despite me saying otherwise. Recently, my HR has been 180+ when

Good afternoon All, Could anyone help me finindng a reputable non-prescription T3 supplier? If you could, please private message me I have been on 125-150 mgrs of Levo for 20 years ( had TT at 17). However, I have never been feeling optimal on T4. I stayed on T4 all these years because I believed in

Has anybody been on a cruise while on targeted therapy

hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was

Dad is now 73. Lives in Sydney, Australia. Ethnicity is Caucasian. PC history below: 2020 May: PSMA test and rising PSA at 4 give rise to biopsy. Reveals Gleason 4+3 stage 2b. 2020 June: Ends up getting robotic RPC. In post surgery biopsy PC did just breach Prostate capsule. But margins negative.

My hospital Oxygen therapy appointment has been cancelled 3 times. I've been waiting to see if this will aid my breathlessness. I've also tried to get an appointment with the Respiratory nurse in my Dr's Surgery to be told there is a months waiting list to speak to her. You would have thought we would

hi there. I'm a newbie here. I'm 49, been on hrt for 7 years now (tablets) but recently swapped over to gel. For the past 3 months I have been getting stuff painful elbows. It's affecting my work and home life. ive been to the osteopath, had acupuncture and now the doctors are trying me on gout

Hi, I joined my father this week for his most recent appointment. He is 5 years post diagnosis and his PSA has started to rise after 2.5 years of stability on enzalutamide and before that 6 rounds of doxetaxel + ADT. His recent scans have showed some enlargement of pelvic lymph nodes which is most