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Reply from GP re premipraxole and it’s use in treatment of RLS
I have looked up the CKS guidelines for restless legs which were updated in July 2022 and
pramipexole
is still listed as a first line treatment. If you have links then please feel free to attach them to a response.
I have looked up the CKS guidelines for restless legs which were updated in July 2022 and
pramipexole
is still listed as a first line treatment. If you have links then please feel free to attach them to a response.
RestlessMe
in
Restless Legs Syndrome
2 years ago
pramipexole withdrawal ?
I have been on 0.18mg
pramipexole
for about 8 or 9 years now always the same dose and have not experienced any augmentation symptoms like many here.
I have been on 0.18mg
pramipexole
for about 8 or 9 years now always the same dose and have not experienced any augmentation symptoms like many here.
Enable
in
Restless Legs Syndrome
2 years ago
neurologists
seen my neurologist today and he wants me to immediately stop taking
pramipexole
and start taking sinemet, i did ask whether I should gradually come off prami but he assured me there was he need? any thoughts
seen my neurologist today and he wants me to immediately stop taking
pramipexole
and start taking sinemet, i did ask whether I should gradually come off prami but he assured me there was he need? any thoughts
Dsw7
in
Restless Legs Syndrome
2 years ago
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Pramipexole
it’s not possible to manage without taking
pramipexole
, as much as I don’t like taking tablets.
it’s not possible to manage without taking
pramipexole
, as much as I don’t like taking tablets.
Edward567
in
Restless Legs Syndrome
2 years ago
Iron Panel Results High
I hesitate on changing the Ferrous Sulfate to every other day as I am in the process of weening off
Pramipexole
. I prefer to only make one change at a time so I can monitor results. Are these results too high and necessitate urgent follow-up?
I hesitate on changing the Ferrous Sulfate to every other day as I am in the process of weening off
Pramipexole
. I prefer to only make one change at a time so I can monitor results. Are these results too high and necessitate urgent follow-up?
briscc
in
Restless Legs Syndrome
2 years ago
Pramipexole withdrawal - update
Nearly 2 weeks into Pram reduction. So far not too bad. I’m down to 5 1/2 tablets each day. Slight increase in RLS symptoms but minimal. I have a GP review next week when I should also get the results from a full blood screen. I plan to go down to 5 tabs. I’m also reducing Prozac intake and Anti-inflammatories
Nearly 2 weeks into Pram reduction. So far not too bad. I’m down to 5 1/2 tablets each day. Slight increase in RLS symptoms but minimal. I have a GP review next week when I should also get the results from a full blood screen. I plan to go down to 5 tabs. I’m also reducing Prozac intake and Anti-inflammatories
Theonlypetied
in
Restless Legs Syndrome
2 years ago
The Dreaded Pramipexole
Has anyone experienced augmentation symptoms following even a very low dose of
Pramipexole
0.088mg? I am 73 and still quite active. I started with RLS about two years ago. Intermittent at first, but then worsened such that I was experiencing continuous disturbed nights.
Has anyone experienced augmentation symptoms following even a very low dose of
Pramipexole
0.088mg? I am 73 and still quite active. I started with RLS about two years ago. Intermittent at first, but then worsened such that I was experiencing continuous disturbed nights.
Hobscave
in
Restless Legs Syndrome
2 years ago
Just me!!!
I went to my GP, who just prescribed me
Pramipexole
!!!’ I thunk, thinking back,,it was me that told him what I had!!!!
I went to my GP, who just prescribed me
Pramipexole
!!!’ I thunk, thinking back,,it was me that told him what I had!!!!
Noneoftheabove
in
Restless Legs Syndrome
2 years ago
How can reducing antidepressants be making RLS worse?
im on 2x
Pramipexole
daily and have been for quite a few years now and it has worked 90% of the time. i have also been on the antidepressant Citalopram for many years (20mg) and currently coming off it to move to a different a/d.
im on 2x
Pramipexole
daily and have been for quite a few years now and it has worked 90% of the time. i have also been on the antidepressant Citalopram for many years (20mg) and currently coming off it to move to a different a/d.
Soulsister77
in
Restless Legs Syndrome
2 years ago
torticolis or dystonia or fnd
I can just have 2-3days without it. i start a bigger dose of
pramipexole
for my leg and it's been one week without stifness in my neek. I'm preying it gonna stay that way. If it fnd normally medication aren't suppose to work?i still have big doubt it's fnd.
I can just have 2-3days without it. i start a bigger dose of
pramipexole
for my leg and it's been one week without stifness in my neek. I'm preying it gonna stay that way. If it fnd normally medication aren't suppose to work?i still have big doubt it's fnd.
Shadow35
in
Functional Neurological Disorder - FND Hope
2 years ago
Increased dose of Gabapentin.
I recently weaned myself off
Pramipexole
and onto Gabapentin. Must say it was horrendous, now I was taking Gabapentin, 200 in the morning, 200 at lunchtime and 600 at night. My RLS got worse, though I was going through the transition, and my doctor increased the Gabapentin to 900 at night.
I recently weaned myself off
Pramipexole
and onto Gabapentin. Must say it was horrendous, now I was taking Gabapentin, 200 in the morning, 200 at lunchtime and 600 at night. My RLS got worse, though I was going through the transition, and my doctor increased the Gabapentin to 900 at night.
Ex-rugbyplayer
in
Restless Legs Syndrome
2 years ago
Reducing Pramipexole
I am reducing my
pramipexole
, by half a tablet every 2 to 3 weeks. Currently I’ve cut out 2 x half tablets and about to cut out the third half. I’ve also had a full iron panel blood test. I discussed with the Doctor who has diagnosed ferrous fumarate 210 mg tablets.
I am reducing my
pramipexole
, by half a tablet every 2 to 3 weeks. Currently I’ve cut out 2 x half tablets and about to cut out the third half. I’ve also had a full iron panel blood test. I discussed with the Doctor who has diagnosed ferrous fumarate 210 mg tablets.
RestlessMe
in
Restless Legs Syndrome
2 years ago
Coming off pramipexole, withdrawal symptoms
I am coming off
pramipexole
, withdrawing slowly. I am reducing by half a tablet every 2 to 3 weeks. I have now cut out 3 x half tablets. I am suffering all sorts of weird symptoms.
I am coming off
pramipexole
, withdrawing slowly. I am reducing by half a tablet every 2 to 3 weeks. I have now cut out 3 x half tablets. I am suffering all sorts of weird symptoms.
RestlessMe
in
Restless Legs Syndrome
2 years ago
Going totally demented
I’m augmented on
Pramipexole
and my GP is happy to leave me going out of my mind without any support whatsoever, I believe they have zero understanding of RLS.
I’m augmented on
Pramipexole
and my GP is happy to leave me going out of my mind without any support whatsoever, I believe they have zero understanding of RLS.
Felixstowe
in
Restless Legs Syndrome
2 years ago
hi everyone just wanted to give an update. My gp gave me pramipexole .
Itw worked, I felt with in like 30 minutes my body was slowly relaxing. My legs and feet weren't as sore and it helped me get a few hours sleep . i have a neurologist appointment via video link 26th October. Thankyou everyone for your kind words . 🙏
Itw worked, I felt with in like 30 minutes my body was slowly relaxing. My legs and feet weren't as sore and it helped me get a few hours sleep . i have a neurologist appointment via video link 26th October. Thankyou everyone for your kind words . 🙏
Nichole1133
in
Cure Parkinson's
2 years ago
Neurologist appointment tomorrow
I have been on
Pramipexole
0.088 mg x2 for years. I am augmenting on this dose for several months now and won’t increase as I am so afraid and nervous about withdrawing from the 2 I’m on. I take Magnesium daily.
I have been on
Pramipexole
0.088 mg x2 for years. I am augmenting on this dose for several months now and won’t increase as I am so afraid and nervous about withdrawing from the 2 I’m on. I take Magnesium daily.
Jose651
in
Restless Legs Syndrome
2 years ago
pramipexole withdrawal - final stages
I am down to a quarter of 0.88mg of
pramipexole
a night. I have been taking Pregabalin for 4 weeks and now on 75 mg nightly and iron every other night. I went without the
pramipexole
the night before last and was up most of the night, finally getting some sleep at 8 in the morning.
I am down to a quarter of 0.88mg of
pramipexole
a night. I have been taking Pregabalin for 4 weeks and now on 75 mg nightly and iron every other night. I went without the
pramipexole
the night before last and was up most of the night, finally getting some sleep at 8 in the morning.
jumpyjo
in
Restless Legs Syndrome
2 years ago
Completely exhausted
I am slowly cutting out
pramipexole
, by half a tablet every 2 to 3 weeks. I am exhausted, particularly in the mornings. Afternoons are a bit better. Touchwood I seem to sleep, I’m not passing the house in the middle of the night with restless legs. Okay this in itself is a bonus!
I am slowly cutting out
pramipexole
, by half a tablet every 2 to 3 weeks. I am exhausted, particularly in the mornings. Afternoons are a bit better. Touchwood I seem to sleep, I’m not passing the house in the middle of the night with restless legs. Okay this in itself is a bonus!
RestlessMe
in
Restless Legs Syndrome
2 years ago
leg weakness following RLS bout
Pramipexole
worked great for 20 years before suspected augmentation. Currently, I take 1mg Neupro patch (3 months now) and 15 mg Methadone (one year) at 9pm. Lyrica and similar drugs just did not work for me. The muscle weakness is about 50 % causing a wobbly sensation.
Pramipexole
worked great for 20 years before suspected augmentation. Currently, I take 1mg Neupro patch (3 months now) and 15 mg Methadone (one year) at 9pm. Lyrica and similar drugs just did not work for me. The muscle weakness is about 50 % causing a wobbly sensation.
WelbyB
in
Restless Legs Syndrome
2 years ago
Started the dreaded reduction of Pramipexole today.
Thanks in no small part to the advice and support of folk in this group, and the agreement of my GP (who has been amazing in my RLS/PLMD journey), I have begun to try coming of Pram. Also reducing my antidepressants. To help others, I plan to post my experience on here. Watch this space!
Thanks in no small part to the advice and support of folk in this group, and the agreement of my GP (who has been amazing in my RLS/PLMD journey), I have begun to try coming of Pram. Also reducing my antidepressants. To help others, I plan to post my experience on here. Watch this space!
Theonlypetied
in
Restless Legs Syndrome
2 years ago
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