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Experiences with
Polycythaemia vera
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Pegasys
He has
Polycythaemia
Vera
He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.
He has
Polycythaemia
Vera
He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.
waddles22
in
MPN Voice
2 months ago
Pegasys is applying for formal approval in MPN treatment
It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of
Polycythaemia
Vera
(PV) and Essential thrombocytopenia (ET) for PEGASYS, based on published data of clinical studies conducted in support of the efficacy and safety of Pegasys for the treatment
It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of
Polycythaemia
Vera
(PV) and Essential thrombocytopenia (ET) for PEGASYS, based on published data of clinical studies conducted in support of the efficacy and safety of Pegasys for the treatment
TimothyHLuff
in
MPN Voice
4 months ago
NICE Final Guidance on Ruxolitinib for the treatment of Polycythaemia Vera
Polycythaemia
Vera
can be an extremely debilitating illness that has a significant impact on patients’ lives in terms of day-to-day symptoms and affects not only patients but also their families and carers.
Polycythaemia
Vera
can be an extremely debilitating illness that has a significant impact on patients’ lives in terms of day-to-day symptoms and affects not only patients but also their families and carers.
Mazcd
MPNVoice
in
MPN Voice
6 months ago
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Pegasys, EMA application Extension of indication to include treatment of Polycythaemia Vera (PV) and Essentialthrombocytosis
someone forwarded me information on the above subject. Pegasys is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information
someone forwarded me information on the above subject. Pegasys is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information
Bariton
in
Fight MPN
3 months ago
polycythaemia anaemia
has anyone with
polycythaemia
Vera
had their severe anaemia treated
has anyone with
polycythaemia
Vera
had their severe anaemia treated
Luger1067
in
MPN Voice
1 year ago
PV and hypertension
With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with
polycythaemia
vera
.
With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with
polycythaemia
vera
.
Skyehope
in
MPN Voice
3 months ago
penis gland skin issue having wrinkles and purple colour on gland
I did I applied two times coconut and aloe Vera gel In a day , but wrinkles are there but it did improve a bit but my concern is where it is not a serious problem , I had rough masturbation that time it was fully wrinkled and shinny white cracks and skin not so easy but I am not sure still what time
I did I applied two times coconut and aloe Vera gel In a day , but wrinkles are there but it did improve a bit but my concern is where it is not a serious problem , I had rough masturbation that time it was fully wrinkled and shinny white cracks and skin not so easy but I am not sure still what time
Rajeshed
in
Men's Health Forum (Penis Health)
1 month ago
Lupus rash
Hi, My main symptoms are an itch on my neck, face, one shoulder and recently between my shoulder blades. I have puffy fingers and suffer with Raynauds Syndrome. Bouts of Fatigue too. I reduced my working hours to part-time as advised by my consultant. I had a number of tests and I was diagnosed with
Hi, My main symptoms are an itch on my neck, face, one shoulder and recently between my shoulder blades. I have puffy fingers and suffer with Raynauds Syndrome. Bouts of Fatigue too. I reduced my working hours to part-time as advised by my consultant. I had a number of tests and I was diagnosed with
Lula1983
in
LUPUS UK
2 months ago
Video of the MPN Voice ‘virtual’ forum focussing on PV, held on Thu 27 Jul 2023
This ‘virtual’ forum focussed on
Polycythaemia
Vera
(PV) and features talks from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Prof Mary Frances McMullin, Queen’s University Belfast and Dr Rebecca Frewin, Gloucestershire Hospitals NHS FT, and
This ‘virtual’ forum focussed on
Polycythaemia
Vera
(PV) and features talks from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Prof Mary Frances McMullin, Queen’s University Belfast and Dr Rebecca Frewin, Gloucestershire Hospitals NHS FT, and
Mazcd
MPNVoice
in
MPN Voice
9 months ago
Unlocking the Maze of B Complexes: A Handy List for Safe Dosages and Bioactive Vitamins
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
Esperanto
in
Cure Parkinson's
4 months ago
Hashimotos - understanding latest blood test results - any advice for next steps?
Hi all, my partner (44F) has been struggling with hypothyroid / possible PCOS symptoms for ~18 months (thinning hair all over, some hirsutism and weight gain). She was diagnosed with Hashimotos in October 2022. We have been trying an approach to tackle both the thyroid issues and the hyperandrogenism
Hi all, my partner (44F) has been struggling with hypothyroid / possible PCOS symptoms for ~18 months (thinning hair all over, some hirsutism and weight gain). She was diagnosed with Hashimotos in October 2022. We have been trying an approach to tackle both the thyroid issues and the hyperandrogenism
Ehal89
in
Thyroid UK
4 months ago
Pain diminishing
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
MalloryMoss
in
PMRGCAuk
4 months ago
Chorea and PV
It is second hand experience as it is my mother who suffers with
Polycythaemia
vera
(PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications).
It is second hand experience as it is my mother who suffers with
Polycythaemia
vera
(PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications).
PFR1937
in
MPN Voice
1 year ago
Molloscum Contagious
hi this isn’t a question but I suffered from molloscum for a nearly a year but tried using savlon and also Aloe vera gel I’m not sure which one works best but I used both of them daily after one dried I used the other and within a week or so the bumps was finally gone
hi this isn’t a question but I suffered from molloscum for a nearly a year but tried using savlon and also Aloe vera gel I’m not sure which one works best but I used both of them daily after one dried I used the other and within a week or so the bumps was finally gone
Veractic12
in
Men's Health Forum
8 months ago
CoVid and Polycythaemia Vera
I tested positive on 17 December 2022 and still showing positive after further test on 23 December. Has anyone with PV fell to CoVid and how long did it take to clear?
I tested positive on 17 December 2022 and still showing positive after further test on 23 December. Has anyone with PV fell to CoVid and how long did it take to clear?
Edinburgh1953
in
MPN Voice
1 year ago
Newbie looking for tips and info please
I have been on Healthunblocked site in the section for MPN (Polycythaemia) and Thyroid for many years and I am pretty knowledgeable medically as I have
Polycythaemia
Vera
and Hypogonadism although I consult the experts I make my own decisions on treatment etc.
I have been on Healthunblocked site in the section for MPN (Polycythaemia) and Thyroid for many years and I am pretty knowledgeable medically as I have
Polycythaemia
Vera
and Hypogonadism although I consult the experts I make my own decisions on treatment etc.
ainslie
in
Atrial Fibrillation Support
24 days ago
Real world experience with Besremi in ET and PV following exposure to Pegasys.
Third generation pegylated IFNα, ropeginterferon alfa-2b (ropegIFN; Besremi), was recommended by the European Medicine Authority (EMA) for treatment of
Polycythaemia
Vera
(PV) following a Phase III trial (PROUD-PV / CONTINUATION-PV).
Third generation pegylated IFNα, ropeginterferon alfa-2b (ropegIFN; Besremi), was recommended by the European Medicine Authority (EMA) for treatment of
Polycythaemia
Vera
(PV) following a Phase III trial (PROUD-PV / CONTINUATION-PV).
Manouche
in
MPN Voice
1 year ago
Allergy / antihistamines after egg transfer? Other options?
Hi all, I had an IVF fresh transfer yesterday, EC was 4 days prior. But concerned as Sunday I developed a rash on my calf's, it's a rash I've had before and does seem to take a week or so to go away, I think it's after shaving legs then wearing trousers with a slight texture, like linen. Normally
Hi all, I had an IVF fresh transfer yesterday, EC was 4 days prior. But concerned as Sunday I developed a rash on my calf's, it's a rash I've had before and does seem to take a week or so to go away, I think it's after shaving legs then wearing trousers with a slight texture, like linen. Normally
ttcsolomummytobe
in
Fertility Network UK
9 months ago
Chemotherapy for pv
Hi everyone, I am a 66 year old man and have suffered with
polycythaemia
vera
for the past 7 years. Over the last year my bloods have been up and down and not very stable. Before Christmas it was suggested that I have a bone marrow biopsy and have just received the results.
Hi everyone, I am a 66 year old man and have suffered with
polycythaemia
vera
for the past 7 years. Over the last year my bloods have been up and down and not very stable. Before Christmas it was suggested that I have a bone marrow biopsy and have just received the results.
Georgehb
in
MPN Voice
1 year ago
reflux help please
hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I developed changes to my voice and some issues swallowing. I had had a tube down my nose to check for swallowing issues before this happened and all
hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I developed changes to my voice and some issues swallowing. I had had a tube down my nose to check for swallowing issues before this happened and all
Happysmile
in
Pernicious Anaemia Society
9 months ago
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