Search
Search
About
Log in
Join
Experiences with
Peroxisomal acyl-CoA oxidase deficiency
Posts
Communities
3,206 public posts
Filter results
self inject journey
Hi all So have ordered B12 from Versandepo.de. (I think - bad brain fog at mo) I need to order needles etc from medisave, as recommended on here, any one advise list of what to order, going to do subcut as not good with needles….🤢 (horrible childhood exp). IM Injection at Gp Monday but not going to
Hi all So have ordered B12 from Versandepo.de. (I think - bad brain fog at mo) I need to order needles etc from medisave, as recommended on here, any one advise list of what to order, going to do subcut as not good with needles….🤢 (horrible childhood exp). IM Injection at Gp Monday but not going to
Bacca
in
Pernicious Anaemia Society
2 months ago
Mission Impossible
My Medical No is 112624120. (sequence of factorials). My doctor can ring me on is 0112358132134. (Fibonacci code) I am 48 years old, 169 cm tall, weigh 54 kg, I have 6 children. My vital statistics are………..Sorry, I thought I was Angelina Jolie for a moment. In 2023, The World Health Organisation
My Medical No is 112624120. (sequence of factorials). My doctor can ring me on is 0112358132134. (Fibonacci code) I am 48 years old, 169 cm tall, weigh 54 kg, I have 6 children. My vital statistics are………..Sorry, I thought I was Angelina Jolie for a moment. In 2023, The World Health Organisation
Narwhal10
in
Pernicious Anaemia Society
2 months ago
How much Iron Ferrous Sulfate?
My transferrin saturations is just at 20%. It was recommended I take Iron Ferrous Sulfate but confused at how much and how often. Would appreciate advice on this. Thank you!
My transferrin saturations is just at 20%. It was recommended I take Iron Ferrous Sulfate but confused at how much and how often. Would appreciate advice on this. Thank you!
CathyJoH
in
Restless Legs Syndrome
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ferritin worse than ever
As mentioned before my ferritin was 13, everything else ok, can’t take oral iron, been denied infusion asHB in normal range. Have recently had transferrin saturation, HB and ferritin retested. transferrin level 3.6(2.0-3.6) Serum iron level 8.2(9.0-31.0) below low reference Transferrin saturation
As mentioned before my ferritin was 13, everything else ok, can’t take oral iron, been denied infusion asHB in normal range. Have recently had transferrin saturation, HB and ferritin retested. transferrin level 3.6(2.0-3.6) Serum iron level 8.2(9.0-31.0) below low reference Transferrin saturation
Pennypingu
in
Thyroid UK
2 months ago
Iron levels -test results
Hi all I have been off Iron tablets for about 8 months. I had my bloods done last weeks as per below; They look all in range but I wonder if my iron panel results look good? My ferritin is - Serum ferritin level 116 ug/L [23.0 - 300.0] Serum Iron Status Serum iron level 21.9 umol/L [9.0 - 30.4
Hi all I have been off Iron tablets for about 8 months. I had my bloods done last weeks as per below; They look all in range but I wonder if my iron panel results look good? My ferritin is - Serum ferritin level 116 ug/L [23.0 - 300.0] Serum Iron Status Serum iron level 21.9 umol/L [9.0 - 30.4
Lindsayf
in
Thyroid UK
2 months ago
Hi, can anyone offer any ideas as to why ferritin has jumped from 37(mid-June) to 85.4 this wk aside from infection please?
Hi Wonder if I can pick your brains again please? My ferritin was 48 prior to loading dose March/April, then lowered to 37 which I understand is normal thing to happen on the 8wk check. I’ve just completed a yearly pinprick test(I know maybe not as reliable, but sale on &needs must!) and ferritin has
Hi Wonder if I can pick your brains again please? My ferritin was 48 prior to loading dose March/April, then lowered to 37 which I understand is normal thing to happen on the 8wk check. I’ve just completed a yearly pinprick test(I know maybe not as reliable, but sale on &needs must!) and ferritin has
Jo5454
in
Pernicious Anaemia Society
2 months ago
Hashimotos blood test results - Iron supplementation advice needed! Thank you
Hi again, This forum has been the most helpful support. Could you support me in understanding next steps following the below test results? In particular, my iron panel results seem to be very low, and I am not sure how to correct that. How should I start to supplement? I was diagnosed with hashimotos
Hi again, This forum has been the most helpful support. Could you support me in understanding next steps following the below test results? In particular, my iron panel results seem to be very low, and I am not sure how to correct that. How should I start to supplement? I was diagnosed with hashimotos
LukeFitz
in
Thyroid UK
2 months ago
Advice please on blood results especially possible iron issues.
I would be very grateful for any advice on my recent blood results please. I am concerned that for first time ever MCH and MCHC are just over range. My serum B 12 has historically been at top of range without supplementing. This has now dropped lower although still high in range. Never feel well although
I would be very grateful for any advice on my recent blood results please. I am concerned that for first time ever MCH and MCHC are just over range. My serum B 12 has historically been at top of range without supplementing. This has now dropped lower although still high in range. Never feel well although
Eton
in
Thyroid UK
2 months ago
Excess Folic Acid and Vitamin B12 Deficiency: Clinical Implications?
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
helvella
in
Pernicious Anaemia Society
2 months ago
Is iron spray any good for night-time dosing?
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
SunnyJim100
in
Restless Legs Syndrome
2 months ago
Help!
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
Henbud
in
Pernicious Anaemia Society
2 months ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
2 months ago
Iron problem?
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Booblet
in
Thyroid UK
3 months ago
ferritin still low
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
Pennypingu
in
Thyroid UK
3 months ago
The Origin of Ferritin Reference Intervals: A Systematic Review
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
humanbean
in
Thyroid UK
3 months ago
A clinical picture of a B12 deficiency and PA explained.........
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Jillymo
in
Pernicious Anaemia Society
3 months ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
3 months ago
Please advise on iron panel blood test results
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
cbraffe
in
Thyroid UK
3 months ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
3 months ago
teeth clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
3 months ago
1
2
3
4
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
821 results
Pernicious Anaemia Society
324 results
Endometriosis UK
272 results
View top 10 communities
Sort by
Most Relevant
Newest