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Post meningitis
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Lovehope2
in
Meningitis Now
10 months ago
Night sweats worse and facial flushing after steroid injection
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
Gwelos
in
AF Association
11 months ago
Bloody Covid can sod off!
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Washo66
in
British Heart Foundation
10 months ago
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Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
10 months ago
Hayfever medication ahead of stimulation round-worried!
Hi all, Hoping someone can help me calm a little ahead of our next IVF round. My husband and I will be starting ICSI round 2 in a couple of weeks. We've avoided all unnecessary medication in the lead up but on Thursday night last week we were both really suffering with hayfever and took half a piriton
Hi all, Hoping someone can help me calm a little ahead of our next IVF round. My husband and I will be starting ICSI round 2 in a couple of weeks. We've avoided all unnecessary medication in the lead up but on Thursday night last week we were both really suffering with hayfever and took half a piriton
Minniemouse88
in
Fertility Network UK
4 months ago
ANyone taking Prolia for osteoporosis?
Hi! I have been dealing with osteoporosis for more than 20 years and taken all the pills and Forteo shots. I have Lupus, Hyperparathyroidisn, Low Vitamin D and low body mass that all contribute to the problem. Unfortunately, it has continues to get worse. I have been hesitant to take Prolia as it will
Hi! I have been dealing with osteoporosis for more than 20 years and taken all the pills and Forteo shots. I have Lupus, Hyperparathyroidisn, Low Vitamin D and low body mass that all contribute to the problem. Unfortunately, it has continues to get worse. I have been hesitant to take Prolia as it will
Pumpkin2009
in
LUPUS UK
11 months ago
A study record is now available on the Clinical Trials website for the big (N=330) Ambroxol Phase 3 trial (NCT05778617)
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
jeffreyn
in
Cure Parkinson's
2 years ago
Cold cap advice?
Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked me a cold cap as I was originally going to have Carbo + Taxil which usually results in hair loss. Now the risk is lower so not sure whether you'd
Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked me a cold cap as I was originally going to have Carbo + Taxil which usually results in hair loss. Now the risk is lower so not sure whether you'd
Shluggie
in
My Ovacome
8 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
11 months ago
help and support with ICSI
hi all due to start ivf/ICSI meds in the coming week. Been with my partner 8 years and been waiting to start IVF for over two years. I’m looking forward to starting a family hopefully but I am absolutely petrified of medical interventions so I’m looking for answers to what will the hormone injections
hi all due to start ivf/ICSI meds in the coming week. Been with my partner 8 years and been waiting to start IVF for over two years. I’m looking forward to starting a family hopefully but I am absolutely petrified of medical interventions so I’m looking for answers to what will the hormone injections
Marsiscoming6
in
Fertility Network UK
4 months ago
budlover
hi I am 77 mother to one son 32 lives in London 6 years ago had pneumonia my lungs never really recovered. when I get a cold goes straight on my chest and my chest infections are bad My last infection I was actually coughing up blood in my sputum antibiotics and it’s gone. No one as ever suggested
hi I am 77 mother to one son 32 lives in London 6 years ago had pneumonia my lungs never really recovered. when I get a cold goes straight on my chest and my chest infections are bad My last infection I was actually coughing up blood in my sputum antibiotics and it’s gone. No one as ever suggested
Budlover
in
Lung Conditions Community Forum
8 months ago
Rituximab
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
10 months ago
Finished Venetoclax, then Covid
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
Healmenow
in
CLL Support
9 months ago
5dp5dt guidance!
hi all , it’s my second cycle of icsi . first failed . Second transfer natural cycle fet. But I am feeling too much cramps. On day 3 it was minor but on day like yesterday they are a lot. Today having same as well. Is it normal or I am too much worried. Am I have to do anything special. Please guide
hi all , it’s my second cycle of icsi . first failed . Second transfer natural cycle fet. But I am feeling too much cramps. On day 3 it was minor but on day like yesterday they are a lot. Today having same as well. Is it normal or I am too much worried. Am I have to do anything special. Please guide
Nabsal
in
Fertility Network UK
4 months ago
Last full ICSI cycle
Hi Lovelies, After seeing everyone around me get pregnant in the last 7 years of ttc. We’ve decided that this will be my last ICSI round (7th cycle). I’m grieving and hoping that this might be the one. I mentioned in my last post consultation that I have a barely there 7mm endometrium on the day of
Hi Lovelies, After seeing everyone around me get pregnant in the last 7 years of ttc. We’ve decided that this will be my last ICSI round (7th cycle). I’m grieving and hoping that this might be the one. I mentioned in my last post consultation that I have a barely there 7mm endometrium on the day of
Anonymou5
in
Fertility Network UK
4 months ago
IVF or ICSI age 40
hello, I’m just waiting for our DNA fragmentation test to come back for my husband but I’m considering doing IVF instead of ICSI this time around. I have done IVF in the past which was successful but I was younger. Anyone have positive IVF stories at the age of 40.
hello, I’m just waiting for our DNA fragmentation test to come back for my husband but I’m considering doing IVF instead of ICSI this time around. I have done IVF in the past which was successful but I was younger. Anyone have positive IVF stories at the age of 40.
Londongirl84
in
Fertility Network UK
4 months ago
Steroids
Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to go back on oral preds because I’m diabetic type 2 ) Anyway the steroids reduced the pain for a short while . Then it was agony ! Finally spoke
Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to go back on oral preds because I’m diabetic type 2 ) Anyway the steroids reduced the pain for a short while . Then it was agony ! Finally spoke
TedTheMaineCoon
in
PMRGCAuk
11 months ago
unintended weight loss
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
Crochetgardener
in
PMRGCAuk
10 months ago
Shingles Vaccination
Hi folks, just been sent a link for the Shingles Vaccine, is this something anyone else has had. I wasn't aware that when taking Methotrexate this was possible. Unfortunately I can never get through to my surgery to ask the question. Thank you
Hi folks, just been sent a link for the Shingles Vaccine, is this something anyone else has had. I wasn't aware that when taking Methotrexate this was possible. Unfortunately I can never get through to my surgery to ask the question. Thank you
Ports
in
NRAS
1 year ago
IVF at 44
Hi everyone 👋 Does anyone have any success stories of IVF they can share around my age (44)? I’m about to embark on ivf icsi, pre base line scan shows 4 follicles. Waiting for my day 1 this week for my baseline and bloods would love to hear from anyone in a similar position thank you 🙏🏻
Hi everyone 👋 Does anyone have any success stories of IVF they can share around my age (44)? I’m about to embark on ivf icsi, pre base line scan shows 4 follicles. Waiting for my day 1 this week for my baseline and bloods would love to hear from anyone in a similar position thank you 🙏🏻
Lk79
in
Fertility Network UK
4 months ago
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