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Ocrevus
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Neurologist limiting my Ocrevus
I feel like there’s no point in even starting the
Ocrevus
now. What good are 3 or 4 infusions going to do me? Has anybody else here had this happen to them?
I feel like there’s no point in even starting the
Ocrevus
now. What good are 3 or 4 infusions going to do me? Has anybody else here had this happen to them?
Footdropfranny
in
My MSAA Community
5 years ago
DMT'S
I went from Tysabri to Gilenya to
Ocrevus
and now going back to Tysabri...sigh I have the JC Virus, but my Neuro stated that I can do Tysabri every 6 weeks without much risk. Anyone experience the 6 week Tysabri and with JC virus?
I went from Tysabri to Gilenya to
Ocrevus
and now going back to Tysabri...sigh I have the JC Virus, but my Neuro stated that I can do Tysabri every 6 weeks without much risk. Anyone experience the 6 week Tysabri and with JC virus?
Bkboo
in
My MSAA Community
5 years ago
Infusion day is here.
I had my first 1/2 dose of
ocrevus
today. It went well I believe had a little itching during so has to take extra benedryl just in case it was from my normal itchiness. The hardest part was sitting for the infusion as I’m not one that sits slot during s day. Now I’m just at home relaxing.
I had my first 1/2 dose of
ocrevus
today. It went well I believe had a little itching during so has to take extra benedryl just in case it was from my normal itchiness. The hardest part was sitting for the infusion as I’m not one that sits slot during s day. Now I’m just at home relaxing.
Smartcloud1981
in
My MSAA Community
5 years ago
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Post # 50? 10 Sep 2019
All “YOU” care about is
Ocrevus
and M?? I can not find its names that is an exercise for “YOU”. If any doctor suggests anything weaker than these drugs say NO. Your priority is reduction in the relapse rate as seen on Magnetic Resonance Imaging (MRI) and by clinical examination.
All “YOU” care about is
Ocrevus
and M?? I can not find its names that is an exercise for “YOU”. If any doctor suggests anything weaker than these drugs say NO. Your priority is reduction in the relapse rate as seen on Magnetic Resonance Imaging (MRI) and by clinical examination.
RoyceNewton
in
My MSAA Community
5 years ago
Ocrevus co pay program
Apparently my insurance coded
Ocrevus
chemotherapy. My insurance just has to put the
ocrevus
code of J2350 on its bill. If they cant or wont they wont put funds on my card. It is so frustrating. It makes me so upset i sometimes just want to give up.
Apparently my insurance coded
Ocrevus
chemotherapy. My insurance just has to put the
ocrevus
code of J2350 on its bill. If they cant or wont they wont put funds on my card. It is so frustrating. It makes me so upset i sometimes just want to give up.
jkdavid99
in
My MSAA Community
5 years ago
Ocrevus Question
For those who have been on it for a bit, do you find that you run out of energy by the time it's time for your next infusion? Reason I ask, my brother is visiting kinda close to my next infusion. I'm wondering on energy level. Thanks y'all! 🤗💕🦈
For those who have been on it for a bit, do you find that you run out of energy by the time it's time for your next infusion? Reason I ask, my brother is visiting kinda close to my next infusion. I'm wondering on energy level. Thanks y'all! 🤗💕🦈
Jesmcd2
CommunityAmbassador
in
My MSAA Community
5 years ago
New to ms the first week of many weeks
Ocrevus
I believe, if there is stronger let me know. Take it and do not stop taking it. Yes there are side effects, as there are with ALL medicine. Find ways to cope with it or stop and find ways to cope with perhaps fast moving disability for that is what is in store for “YOU”.
Ocrevus
I believe, if there is stronger let me know. Take it and do not stop taking it. Yes there are side effects, as there are with ALL medicine. Find ways to cope with it or stop and find ways to cope with perhaps fast moving disability for that is what is in store for “YOU”.
RoyceNewton
in
My MSAA Community
5 years ago
Knee or joint replacement or osteoarthritis
Before I can consider
Ocrevus
or similar drugs, I have osteoarthritis in my right knee. My knee can’t be straightened fully even with PT. I can no longer do yoga or Pilates. All my activities including walking are extremely exhausting and painful with my bad knee.
Before I can consider
Ocrevus
or similar drugs, I have osteoarthritis in my right knee. My knee can’t be straightened fully even with PT. I can no longer do yoga or Pilates. All my activities including walking are extremely exhausting and painful with my bad knee.
TonyiaR7
in
My MSAA Community
5 years ago
1st full Ocrevus infusion today - all good
Now I wonder whether
Ocrevus
for me will be once every 12 months.
Now I wonder whether
Ocrevus
for me will be once every 12 months.
anaishunter
in
My MSAA Community
5 years ago
Neuro Visit
She was happy about the results after the
Ocrevus
infusions. She wanted to schedule an MRI but the copay for that isn't in my budget right now since we are paying the copay for my broken arm and the copay from my husband's heart cath. I told her I would be able to after my next visit in April.
She was happy about the results after the
Ocrevus
infusions. She wanted to schedule an MRI but the copay for that isn't in my budget right now since we are paying the copay for my broken arm and the copay from my husband's heart cath. I told her I would be able to after my next visit in April.
hairbrain4
in
My MSAA Community
5 years ago
I did it! Changed doctor and meds.
Well, I changed docs and had my first half dose of
Ocrevus
yesterday. It went pretty well. Hopefully
Ocrevus
will stop the progression. Tysabri did for a while. I want to thank everyone who chimed in and told me that change can be good!
Well, I changed docs and had my first half dose of
Ocrevus
yesterday. It went pretty well. Hopefully
Ocrevus
will stop the progression. Tysabri did for a while. I want to thank everyone who chimed in and told me that change can be good!
Juleigh21
in
My MSAA Community
5 years ago
busy week: MRI, spinal tab, scheduling Ocrevus and more
After all the stress and runaround of trying to get insurance approval to schedule my 2nd
Ocrevus
treatment, I finally had a week with some good news and progress. - I had a full MRI on Thursday (brain +spine) along with many other tests (blood samples, eye nerve check, neuro test, cognitive test, spinal
After all the stress and runaround of trying to get insurance approval to schedule my 2nd
Ocrevus
treatment, I finally had a week with some good news and progress. - I had a full MRI on Thursday (brain +spine) along with many other tests (blood samples, eye nerve check, neuro test, cognitive test, spinal
anaishunter
in
My MSAA Community
5 years ago
Public pools while immuno-deficient (MS + treatment)? is it ok?
I'm concerned that being under
Ocrevus
(next round soon), my immune system is depleted and I could catch nasty stuff in the pool. Same for other open water (lake,...). Any opinion or recommendations? (I will ask my doctor, of course).
I'm concerned that being under
Ocrevus
(next round soon), my immune system is depleted and I could catch nasty stuff in the pool. Same for other open water (lake,...). Any opinion or recommendations? (I will ask my doctor, of course).
anaishunter
in
My MSAA Community
5 years ago
S_U_C_C_E_S_S what's that spell success!
Had my 2nd full
ocrevus
today with no side affects,the amazing part to me,I was complaining a month ago that I that 6 months was to long between treatments and I was correct in saying I was in alot of pain after 5 months.In a very short time I am completely out of pain the same day....hope it sticks.this
Had my 2nd full
ocrevus
today with no side affects,the amazing part to me,I was complaining a month ago that I that 6 months was to long between treatments and I was correct in saying I was in alot of pain after 5 months.In a very short time I am completely out of pain the same day....hope it sticks.this
pamgarner
in
My MSAA Community
5 years ago
The Ocrevus insurance (UHC) approval saga continues...
My neuro ordered my 2nd
Ocrevus
infusion in April. And it's still pending insurance approval (I changed insurance in Feb as I started a new job).
My neuro ordered my 2nd
Ocrevus
infusion in April. And it's still pending insurance approval (I changed insurance in Feb as I started a new job).
anaishunter
in
My MSAA Community
5 years ago
The cast is finally off!
I think its due to the
Ocrevus
. The only weird thing that has happened since I've been on it has been NOTHING. I keep looking around the corner & over my shoulder thinking MS is there waiting to pounce. So far so good!
I think its due to the
Ocrevus
. The only weird thing that has happened since I've been on it has been NOTHING. I keep looking around the corner & over my shoulder thinking MS is there waiting to pounce. So far so good!
hairbrain4
in
My MSAA Community
5 years ago
Better Nuroligist Different Diagnose keeping my fingers crossed...
I'm now taking
Ocrevus
infusion treatments and only have to have them every 6 months.. He also have me some Duloxetine for my headaches and Ampyra to help with my walking also Baclofen for my muscle spasms... I'll keep you guys posted on how the medicine makes me feel.
I'm now taking
Ocrevus
infusion treatments and only have to have them every 6 months.. He also have me some Duloxetine for my headaches and Ampyra to help with my walking also Baclofen for my muscle spasms... I'll keep you guys posted on how the medicine makes me feel.
Msbeauty01
in
My MSAA Community
5 years ago
Should I find a new dr??
I haven’t talked to mine since I started
Ocrevus
and trust me it was a hard choice for me. I have been doing very very well on it. I have lost a lot of hair and get frequent belly aches but that’s it.
I haven’t talked to mine since I started
Ocrevus
and trust me it was a hard choice for me. I have been doing very very well on it. I have lost a lot of hair and get frequent belly aches but that’s it.
Nikkijean2
in
My MSAA Community
5 years ago
having ocrevus infusion tues 16th at 7am
This is my 2nd full one, on the 1st and third I had a reaction of a instant scatchy throat,so they stop my meds and gave me more zyrtec and steriods(i am allergic to benedryl) it went away quickly and they started meds again.this time the phamracy that is supplying my meds called me and told me to start
This is my 2nd full one, on the 1st and third I had a reaction of a instant scatchy throat,so they stop my meds and gave me more zyrtec and steriods(i am allergic to benedryl) it went away quickly and they started meds again.this time the phamracy that is supplying my meds called me and told me to start
pamgarner
in
My MSAA Community
5 years ago
No possible meds
She has patients that have tried
Ocrevus
, but it does nothing if the disease is not active. I’m so depressed, as I continue to get worsening disability, no matter how much I work in the garden, row, and do normal housework.
She has patients that have tried
Ocrevus
, but it does nothing if the disease is not active. I’m so depressed, as I continue to get worsening disability, no matter how much I work in the garden, row, and do normal housework.
Newfound
in
My MSAA Community
5 years ago
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