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Busy day today - O + show + interviews
-
Ocrevus
infusion went well as expected. This time around, they gave me the steroids 5-10 min before Benadryl and I did not feel any effect from the Benadryl. - then tonight my husband took me to see a Jerry Seinfeld show. So much laughing. He's so good. This was great.
-
Ocrevus
infusion went well as expected. This time around, they gave me the steroids 5-10 min before Benadryl and I did not feel any effect from the Benadryl. - then tonight my husband took me to see a Jerry Seinfeld show. So much laughing. He's so good. This was great.
anaishunter
in
My MSAA Community
6 months ago
Further delays in next Ocrevus infusion
Bottom line, be diligent about blood tests prior to
Ocrevus
infusion so that your immune system remains capable of protecting you from the nasty infections going around.
Bottom line, be diligent about blood tests prior to
Ocrevus
infusion so that your immune system remains capable of protecting you from the nasty infections going around.
anaishunter
in
My MSAA Community
7 months ago
let Genetech know if you’ve had adverse immune effects from Ocrevus
And my concerns that
Ocrevus
dosing should be weight based. The universal 600mg dose may be overdosing for people with low body weight. I mentioned that there were others in this chat room that had similar immune issues and they would like to hear from you.
And my concerns that
Ocrevus
dosing should be weight based. The universal 600mg dose may be overdosing for people with low body weight. I mentioned that there were others in this chat room that had similar immune issues and they would like to hear from you.
erash
in
My MSAA Community
7 months ago
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relieved, Ocrevus finally scheduled
., the neuro finally gave me the green light to schedule the next
Ocrevus
infusion. It's set for Nov 2. It will be 11 months since the last one. Now I know I can last that long in-between infusion. I'm doing well despite being highly stressed (just lost my job).
., the neuro finally gave me the green light to schedule the next
Ocrevus
infusion. It's set for Nov 2. It will be 11 months since the last one. Now I know I can last that long in-between infusion. I'm doing well despite being highly stressed (just lost my job).
anaishunter
in
My MSAA Community
6 months ago
hair shedding/breaking
Besides getting off
Ocrevus
(which I believe is also the cause after going to several doctors to rule anything else out?) My doctor suggested Nutrafol vitamins, has anyone tried them?
Besides getting off
Ocrevus
(which I believe is also the cause after going to several doctors to rule anything else out?) My doctor suggested Nutrafol vitamins, has anyone tried them?
Plantmom15
in
My MSAA Community
7 months ago
4 Jan 2024 YOU of all people can do this.
As non medical professional, I strongly support
OCREVUS
. I use it and it is number 4 I think. At least 3 or 4. Do not bother lying to me as there is I believe around 20 medicines available these days. YOU could not have tried them all.
As non medical professional, I strongly support
OCREVUS
. I use it and it is number 4 I think. At least 3 or 4. Do not bother lying to me as there is I believe around 20 medicines available these days. YOU could not have tried them all.
RoyceNewton
in
My MSAA Community
4 months ago
MS and TV shows
I have seen commercials about
Ocrevus
but not tv shows.
I have seen commercials about
Ocrevus
but not tv shows.
Cutefreckles72
in
My MSAA Community
5 months ago
Newly diagnosed
Going to be starting
Ocrevus
soon and was wondering who has been on it? Are you seeing any improvements?
Going to be starting
Ocrevus
soon and was wondering who has been on it? Are you seeing any improvements?
ShayWelch
in
My MSAA Community
8 months ago
Ocrevus and gynecological side effects?
just wondering if any women who are on
Ocrevus
have had any gynecological infections (not asking about UTIs)? I’ve had an infection since January that my local gynecologist hasn’t been able to successfully treat.
just wondering if any women who are on
Ocrevus
have had any gynecological infections (not asking about UTIs)? I’ve had an infection since January that my local gynecologist hasn’t been able to successfully treat.
Elizt3
in
My MSAA Community
6 months ago
ms + cold + Ocrevus = not a good combination
I had my
Ocrevus
shot the 1st week of November. Then travelled abroad on week 3 of November and came back with a nasty cold that flattened me for the whole Thanksgiving week.
I had my
Ocrevus
shot the 1st week of November. Then travelled abroad on week 3 of November and came back with a nasty cold that flattened me for the whole Thanksgiving week.
anaishunter
in
My MSAA Community
5 months ago
13 Jan 2023 You can
Not a cue, but the best available today, Take the stress off choosing and just start
Ocrevus
and no I do not work for them but do take its. Will I have 1700 other post that give a good idea what to do next so have a read of a few.
Not a cue, but the best available today, Take the stress off choosing and just start
Ocrevus
and no I do not work for them but do take its. Will I have 1700 other post that give a good idea what to do next so have a read of a few.
RoyceNewton
in
My MSAA Community
3 months ago
Info about my B cells following 3 1/2 yrs off Ocrevus
Hi, I saw an immunologist at the Mayo clinic and finally got some answers as to why my B cells did not come back 3 1/2 yrs since my last O infusion. She sees a lot of this and some NEVER get their B cells back. There's no rhyme or reason, possibly a genetic difference but that hasn't been worked out
Hi, I saw an immunologist at the Mayo clinic and finally got some answers as to why my B cells did not come back 3 1/2 yrs since my last O infusion. She sees a lot of this and some NEVER get their B cells back. There's no rhyme or reason, possibly a genetic difference but that hasn't been worked out
erash
in
My MSAA Community
24 days ago
MRI results
I was scheduled to have had my normal, yearly MRI today (was cancelled b/c of last night's MRI) without contrast b/c I have had no new activity on MRIs since I started
Ocrevus
back in 2019 (so grateful for all those uninteresting MRIs).
I was scheduled to have had my normal, yearly MRI today (was cancelled b/c of last night's MRI) without contrast b/c I have had no new activity on MRIs since I started
Ocrevus
back in 2019 (so grateful for all those uninteresting MRIs).
Elizt3
in
My MSAA Community
5 months ago
Breast Cancer and MS
I have been on
Ocrevus
since 2020, and am aware of the potential increased risk, knowing that risk, I am struggling to find data on risk of recurrence, which is something I would be very interested in. Also wondering if there is anyone else is the same situation -
I have been on
Ocrevus
since 2020, and am aware of the potential increased risk, knowing that risk, I am struggling to find data on risk of recurrence, which is something I would be very interested in. Also wondering if there is anyone else is the same situation -
mintlatte
in
My MSAA Community
7 months ago
9 Oct 2023
Take a Disease Modifying Therapy (DMT)
Ocrevus
is my preference, 2 times per year keep the SCARS DOWN. Have a good day, live your life and be happy. Royce
Take a Disease Modifying Therapy (DMT)
Ocrevus
is my preference, 2 times per year keep the SCARS DOWN. Have a good day, live your life and be happy. Royce
RoyceNewton
in
My MSAA Community
6 months ago
No News Is Good News
I've seen specialists at U of Mich, had my first course of
Ocrevus
, gone through physical therapy and joined an on-line support group. Trying to educate myself alone is a big job given how much information is available and the wide variety of symptoms.
I've seen specialists at U of Mich, had my first course of
Ocrevus
, gone through physical therapy and joined an on-line support group. Trying to educate myself alone is a big job given how much information is available and the wide variety of symptoms.
alsorenson
in
My MSAA Community
4 months ago
I am not sure about Ocrevus
I was for 2 years with pain and at ER they did a CT scan and was kidney stones 😒Dr said last MRIs my lessons were good and no new ones in fact one disappeared… so new doctor did new MRIs and found new lessons and wants me to start on
OCREVUS
.
I was for 2 years with pain and at ER they did a CT scan and was kidney stones 😒Dr said last MRIs my lessons were good and no new ones in fact one disappeared… so new doctor did new MRIs and found new lessons and wants me to start on
OCREVUS
.
Marlennewilliamson
in
My MSAA Community
8 months ago
20 Sept 2023 Only an OPINION
Get on a DMT, I do not care which one, though my preference is for
OCREVUS
. Get on a DMT and start to look after yourself for when it comesdown to it. YOU and nobody else have your ms. Act like YOU care about yourself. Royce
Get on a DMT, I do not care which one, though my preference is for
OCREVUS
. Get on a DMT and start to look after yourself for when it comesdown to it. YOU and nobody else have your ms. Act like YOU care about yourself. Royce
RoyceNewton
in
My MSAA Community
7 months ago
First Ocrevus Infusion <3
Hi all! Just came to update that my partner got his first infusion yesterday! He was there for 6 long hours, but it went better than expected. The place he went to had two really nice rooms, and he got to be alone for the most part so that was comforting to him where he has really bad anxiety already
Hi all! Just came to update that my partner got his first infusion yesterday! He was there for 6 long hours, but it went better than expected. The place he went to had two really nice rooms, and he got to be alone for the most part so that was comforting to him where he has really bad anxiety already
cosmicwanderer
in
MS Society
9 months ago
Tecfedira as first DMT?
I have had a few folks tell me
Ocrevus
.... But I honestly have no idea whether that would even be an option. Just curious what you all w
I have had a few folks tell me
Ocrevus
.... But I honestly have no idea whether that would even be an option. Just curious what you all w
Szs3eb
in
My MSAA Community
8 months ago
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