Search
Search
About
Log in
Join
Experiences with
Ocrevus
Posts
Communities
817 public posts
Filter results
results of mri
No new or active lesions in my brain or spine.Happy days are here again,been on
ocrevus
for 5 1/2 years now,it is working!i got on it after my old. med stopped working,i guess my issues are exercise or lack of it! you know how hard it is to do anything,i figured i was already getting enough,wrong!
No new or active lesions in my brain or spine.Happy days are here again,been on
ocrevus
for 5 1/2 years now,it is working!i got on it after my old. med stopped working,i guess my issues are exercise or lack of it! you know how hard it is to do anything,i figured i was already getting enough,wrong!
pamgarner
in
My MSAA Community
3 years ago
Ocrevus
Anyone use
Ocrevus
and it didn’t work at all for them?
Anyone use
Ocrevus
and it didn’t work at all for them?
dallas343
in
My MSAA Community
3 years ago
Ocrevus without steroids
Eventually, I will get back to my "normal" as my thyroid is coming back up & I've had a good dose of
Ocrevus
!
Eventually, I will get back to my "normal" as my thyroid is coming back up & I've had a good dose of
Ocrevus
!
hairbrain4
in
My MSAA Community
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Another round of Ocrevus today - piece of cake
Just got my n-th infusion this morning. Drove myself to the facility and back. It went pretty fast as I'm only on a 1/2 dose. Benadryl put me to sleep, waiting for the steroid kick-in tomorrow. Glad that everything lined up - the vaccine, then waiting then infusion at 9 months after the previous one
Just got my n-th infusion this morning. Drove myself to the facility and back. It went pretty fast as I'm only on a 1/2 dose. Benadryl put me to sleep, waiting for the steroid kick-in tomorrow. Glad that everything lined up - the vaccine, then waiting then infusion at 9 months after the previous one
anaishunter
in
My MSAA Community
3 years ago
Post 741 Do NOT just believe me research for yourself 9 Jun 2021
I believe
Ocrevus
is the strongest for Relapsing-Remitting ms (RRms) at the moment, so that is what I suggest. If somebody knows better tell me, I am open to new information. I hope I make myself clear. Trust what I say, BUT verify with your own resources and your own research.
I believe
Ocrevus
is the strongest for Relapsing-Remitting ms (RRms) at the moment, so that is what I suggest. If somebody knows better tell me, I am open to new information. I hope I make myself clear. Trust what I say, BUT verify with your own resources and your own research.
RoyceNewton
in
My MSAA Community
3 years ago
Changing from Ocrevus to Kesimpta
In summer I’m going to start on Kesimpta. Any opinion on this DMT? Is my fourth MS med since diagnosed in 2015 😱
In summer I’m going to start on Kesimpta. Any opinion on this DMT? Is my fourth MS med since diagnosed in 2015 😱
MScosquiyitas
in
My MSAA Community
3 years ago
Ocrevus Duration
Does anyone on
Ocrevus
have problems during the last month before your next infusion? With my last 3 infusions it seems like the medicine "runs out" about the 2nd week of the last month.
Does anyone on
Ocrevus
have problems during the last month before your next infusion? With my last 3 infusions it seems like the medicine "runs out" about the 2nd week of the last month.
hairbrain4
in
My MSAA Community
3 years ago
Unnumbered post Look for alternatives 12 May 2021
Ocrevus
is the strongest for us and why start out with a weaker medicine when a stronger version is available. Always take the stronger version, the fewer relapses the better. Our aim is always to take stronger medicine.
Ocrevus
is the strongest for us and why start out with a weaker medicine when a stronger version is available. Always take the stronger version, the fewer relapses the better. Our aim is always to take stronger medicine.
RoyceNewton
in
My MSAA Community
3 years ago
NEW HERE - Choosing a medication and lost.
I was told to choose a medication and I have it narrowed down to
Ocrevus
, Tecfidera or Copaxone. Truthfully I am scared on going on any medication but I am strongly urged to do so. Can anyone provide any tips on choosing which medication and how you made your way through this journey?
I was told to choose a medication and I have it narrowed down to
Ocrevus
, Tecfidera or Copaxone. Truthfully I am scared on going on any medication but I am strongly urged to do so. Can anyone provide any tips on choosing which medication and how you made your way through this journey?
Greatful25
in
My MSAA Community
3 years ago
Disturbing
I read that 10 people have died on
ocrevus
due to pml. Out of the 10 people only one of them had been on only
ocrevus
. I'm scared of that I don't want to die yet. Pml scares me bad. I am jc positive but they said its not that high 🙄. They don't know I'm thinking about asking to switch meds idk
I read that 10 people have died on
ocrevus
due to pml. Out of the 10 people only one of them had been on only
ocrevus
. I'm scared of that I don't want to die yet. Pml scares me bad. I am jc positive but they said its not that high 🙄. They don't know I'm thinking about asking to switch meds idk
Jackjosh
in
My MSAA Community
3 years ago
Looks like my neuro wants to change treatment due to new lesion. 😔
This is the first new lesion in over 8 years: 5 years on Tysabri and the last 3 on
Ocrevus
. I’m frustrated to learn this but not surprised to be honest. I’ve been having weird unrelenting medical problems since last October and have been trying to figure out what’s causing what.
This is the first new lesion in over 8 years: 5 years on Tysabri and the last 3 on
Ocrevus
. I’m frustrated to learn this but not surprised to be honest. I’ve been having weird unrelenting medical problems since last October and have been trying to figure out what’s causing what.
Raingrrl
in
My MSAA Community
3 years ago
1st infusion
Ok i get my 1st
Ocrevus
infusion tomorrow at 7!! 🤞
Ok i get my 1st
Ocrevus
infusion tomorrow at 7!! 🤞
Neworleanslady
in
My MSAA Community
3 years ago
Vaccine dose #2 done: next Ocrevus infusion in 4 weeks
Just sharing. I had my 2nd dose of the Pfizer vaccine yesterday. No side effects whatsoever (even less than in the first round when my arm was sore like any other vaccine). So I was able to schedule my next round of infusion in 4 weeks. Can't wait for it as it will be almost 9 months when I get it.
Just sharing. I had my 2nd dose of the Pfizer vaccine yesterday. No side effects whatsoever (even less than in the first round when my arm was sore like any other vaccine). So I was able to schedule my next round of infusion in 4 weeks. Can't wait for it as it will be almost 9 months when I get it.
anaishunter
in
My MSAA Community
3 years ago
Update
Ok nurse just called, bloodwork is good for
ocrevus
, she can’t order it as the other neurologist has already done it apparently. Yippee on bloodwork, but I foresee a problem with getting the
ocrevus
. Hind sight and all that. I’m so exhausted, think I won’t do the social thing for a while again.
Ok nurse just called, bloodwork is good for
ocrevus
, she can’t order it as the other neurologist has already done it apparently. Yippee on bloodwork, but I foresee a problem with getting the
ocrevus
. Hind sight and all that. I’m so exhausted, think I won’t do the social thing for a while again.
Sezlatham
in
My MSAA Community
3 years ago
Ocrevus infusion
Ok my first infusions are scheduled!! March 26th and April 9th!!
Ok my first infusions are scheduled!! March 26th and April 9th!!
Neworleanslady
in
My MSAA Community
3 years ago
Vaccines
Has anyone on
Ocrevus
received any vaccines since being infused with
ocrevus
?
Has anyone on
Ocrevus
received any vaccines since being infused with
ocrevus
?
Neworleanslady
in
My MSAA Community
3 years ago
Infusion tomorrow
Ocrevus
infusion tomorrow morning!
Ocrevus
infusion tomorrow morning!
Boxofchocolates
in
My MSAA Community
3 years ago
Ocrevus done
Proud to say I’m now an O girl 2nd dose on the 30th Was fine have a terrible headache, and nausea but all manageable, let’s hope it works 😊
Proud to say I’m now an O girl 2nd dose on the 30th Was fine have a terrible headache, and nausea but all manageable, let’s hope it works 😊
Sezlatham
in
My MSAA Community
3 years ago
Amazing day grateful in every way possible
They sent my insurance card by scan so I can do all my tests tomorrow and the hospital just called I have my
ocrevus
treatment at 7:30 , they said I’ll be done by 12. I am so thankful right now
They sent my insurance card by scan so I can do all my tests tomorrow and the hospital just called I have my
ocrevus
treatment at 7:30 , they said I’ll be done by 12. I am so thankful right now
Sezlatham
in
My MSAA Community
3 years ago
had my 2nd covid vaccine
the last
ocrevus
treatment was jan 16 and my 1st shot feb 27th.interesting though they give you a card that shows both shots, you have to bring it to the 2nd and have it signed .I ask the nurse why the card,they give it back to you and tell you to put it in a safe place,she replied "we have been discussing
the last
ocrevus
treatment was jan 16 and my 1st shot feb 27th.interesting though they give you a card that shows both shots, you have to bring it to the 2nd and have it signed .I ask the nurse why the card,they give it back to you and tell you to put it in a safe place,she replied "we have been discussing
pamgarner
in
My MSAA Community
3 years ago
1
...
9
10
11
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
My MSAA Community
805 results
MS Society
4 results
NRAS
3 results
View top 10 communities
Sort by
Most Relevant
Newest