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Ocaliva
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Ocaliva and side effects
I've been offered to change to
Ocaliva
or to take part in a clinical trial. I'm concerned about the side effects of
Ocaliva
but I'm interested to hear how those of you who are or did take it found the side effects.
I've been offered to change to
Ocaliva
or to take part in a clinical trial. I'm concerned about the side effects of
Ocaliva
but I'm interested to hear how those of you who are or did take it found the side effects.
Fifibee11
in
PBC Foundation
7 years ago
Recent labs
Wondering if they've gone the opposite direction this time due to the alternation of
Ocaliva
5mg &
Ocaliva
10mg. Pluscvs would anyone thank it could be due to my varicies bleeding again? I see my heptologist at Indiana university on Sept 25th.
Wondering if they've gone the opposite direction this time due to the alternation of
Ocaliva
5mg &
Ocaliva
10mg. Pluscvs would anyone thank it could be due to my varicies bleeding again? I see my heptologist at Indiana university on Sept 25th.
Shulsey
in
PBC Foundation
7 years ago
Feeling confused, frustrated and worried.
She said that she had been communicating with Addenbrookes and I was to be given Fenofibrate as
Ocaliva
can increase the itch. I was relieved to hear.
She said that she had been communicating with Addenbrookes and I was to be given Fenofibrate as
Ocaliva
can increase the itch. I was relieved to hear.
Jo_Br
in
PBC Foundation
7 years ago
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Short Lived responder to Urso
She had had a chat with George Mells at Addenbrookes and he will be trying me on Fenofibrate, she said
Ocaliva
would be unwise because of my itch and even though it is not always the case that is the plan.
She had had a chat with George Mells at Addenbrookes and he will be trying me on Fenofibrate, she said
Ocaliva
would be unwise because of my itch and even though it is not always the case that is the plan.
Jo_Br
in
PBC Foundation
7 years ago
Intercept Dives On Warning Of Drug-Related Injuries, Deaths
http://www.investors.com/news/technology/intercept-dives-on-warning-of-drug-related-injuries-deaths/ Additionally, Intercept's Letter to Health Care Providers can be found here: https://ocalivahcp.com/_assets/_pdfs/
Ocaliva
-Dear-HCP-Letter-9.8.17.pdf but not here: https://ocaliva.com/ If you just browse
http://www.investors.com/news/technology/intercept-dives-on-warning-of-drug-related-injuries-deaths/ Additionally, Intercept's Letter to Health Care Providers can be found here: https://ocalivahcp.com/_assets/_pdfs/
Ocaliva
-Dear-HCP-Letter-9.8.17.pdf but not here: https://ocaliva.com/ If you just browse
Betonarme
in
PBC Foundation
7 years ago
Labs
Still taking the Urso with
Ocaliva
5mg. Waiting in the
Ocaliva
10mg to see if they start moving more
Still taking the Urso with
Ocaliva
5mg. Waiting in the
Ocaliva
10mg to see if they start moving more
Shulsey
in
PBC Foundation
7 years ago
Really ticked off
My Internist pushed for them to give me
Ocaliva
. My insurance DENIED it because they want me to see a Gastro again. Problem is, I've seen 2 now and both want this ridiculous scam of doing a liver biopsy, which I refused, with both of them and they fired me for refusal.
My Internist pushed for them to give me
Ocaliva
. My insurance DENIED it because they want me to see a Gastro again. Problem is, I've seen 2 now and both want this ridiculous scam of doing a liver biopsy, which I refused, with both of them and they fired me for refusal.
donna01
in
PBC Foundation
7 years ago
Need a doctor
My doctor has not prescribed Urso or
Ocaliva
and I am getting worse by the day with jaundice, swelling in abdomen and feet and legs, severe fatigue and I feel horrible. Thanks for any advice.
My doctor has not prescribed Urso or
Ocaliva
and I am getting worse by the day with jaundice, swelling in abdomen and feet and legs, severe fatigue and I feel horrible. Thanks for any advice.
Mary2017
in
PBC Foundation
7 years ago
Ocaliva
Not real sure why but my heptologist is wanting me to start taking 10mg
Ocaliva
on Mon- Wed-Fri. Then take 5mg
Ocaliva
on the days between for one month, then 10mg from then on. I thought that the 5 mg was doing great.
Not real sure why but my heptologist is wanting me to start taking 10mg
Ocaliva
on Mon- Wed-Fri. Then take 5mg
Ocaliva
on the days between for one month, then 10mg from then on. I thought that the 5 mg was doing great.
Shulsey
in
PBC Foundation
7 years ago
Update: Labs
The
Ocaliva
& Urso seem to be working well together. Praying they continue to move the numbers. Thank you everyone for all of your support & prayers. Back in two weeks for the same labs. Stay strong❣️
The
Ocaliva
& Urso seem to be working well together. Praying they continue to move the numbers. Thank you everyone for all of your support & prayers. Back in two weeks for the same labs. Stay strong❣️
Shulsey
in
PBC Foundation
7 years ago
PBC Antibody GP 210 What does it mean?
For any PBC, this may be enhanced with
OCALIVA
(obeticholic acid) or in the future a few more treatments as they get licensed. The itch is treated still, but not all of the routinely prescribed treatments can be used. I have been prescribed Gabapentin.
For any PBC, this may be enhanced with
OCALIVA
(obeticholic acid) or in the future a few more treatments as they get licensed. The itch is treated still, but not all of the routinely prescribed treatments can be used. I have been prescribed Gabapentin.
Jo_Br
in
PBC Foundation
7 years ago
Adverse response to Urso so put on Ocaliva. My alkaline phosphatase remains around 300. How do I know if the Ocaliva is working?
Also since I have started
Ocaliva
, I have had a rapid increase in my otherwise normal cholesterol. This could be coincidence as this is part of the progression of PBC, or did the
Ocaliva
trigger the high cholesterol levels.
Also since I have started
Ocaliva
, I have had a rapid increase in my otherwise normal cholesterol. This could be coincidence as this is part of the progression of PBC, or did the
Ocaliva
trigger the high cholesterol levels.
Q8Cooper
in
PBC Foundation
7 years ago
Has any one diagnosed with PBC gone untreated for any length of time?
I now am on
Ocaliva
. Just wondering how many of us have gone extended periods without treatment. Kathy
I now am on
Ocaliva
. Just wondering how many of us have gone extended periods without treatment. Kathy
Q8Cooper
in
PBC Foundation
7 years ago
Hello I am brand new to the group, and sure am glad to have found you!
I am now 56 and have been started on
Ocaliva
. My primary care doctor really has no clue about PBC, however I have a good gastro doc. who is learning more and more each day.
I am now 56 and have been started on
Ocaliva
. My primary care doctor really has no clue about PBC, however I have a good gastro doc. who is learning more and more each day.
Q8Cooper
in
PBC Foundation
7 years ago
Side effects of Ocaliva
Ever since I am taking
Ocaliva
I feel stiffness in my knees. My doc did some tests and one of them is Sed rate. My sed rate is 37 which is higher for my age. Is there anyone who has higher sed rate even if they don't take
Ocaliva
?
Ever since I am taking
Ocaliva
I feel stiffness in my knees. My doc did some tests and one of them is Sed rate. My sed rate is 37 which is higher for my age. Is there anyone who has higher sed rate even if they don't take
Ocaliva
?
Mg40
in
PBC Foundation
7 years ago
Fingers Crossed
I started the
Ocaliva
yesterday. After a bit of a battle with the insurance it's coveted. Fingers crossed this works to lower my enzymes:-)
I started the
Ocaliva
yesterday. After a bit of a battle with the insurance it's coveted. Fingers crossed this works to lower my enzymes:-)
Shulsey
in
PBC Foundation
7 years ago
Finally seen Hepatologist
My ALP is still higher than he expected since I take Urso and
Ocaliva
. He said if there was still no change when I go back he will up my dose of
Ocaliva
. I am taking hydroxyzine for the itch but it doesn't seem to work at first it seemed to help a little.
My ALP is still higher than he expected since I take Urso and
Ocaliva
. He said if there was still no change when I go back he will up my dose of
Ocaliva
. I am taking hydroxyzine for the itch but it doesn't seem to work at first it seemed to help a little.
Lisa15
in
PBC Foundation
7 years ago
Good news
I will be getting my
Ocaliva
in the mail very soon. Prayers that this will bring my numbers down to where they aren't crazy high. I never thought I would be so excited about starting a new medication😏🤔
I will be getting my
Ocaliva
in the mail very soon. Prayers that this will bring my numbers down to where they aren't crazy high. I never thought I would be so excited about starting a new medication😏🤔
Shulsey
in
PBC Foundation
7 years ago
Ocaliva cost??
If not he says we'll start
Ocaliva
at that point. He said sometimes it's hard to get insurance companies to cover it because its like $10,000 a month. While he may or may not be exaggerating I get the feeling its very expensive. I live in the US...Texas to be more specific.
If not he says we'll start
Ocaliva
at that point. He said sometimes it's hard to get insurance companies to cover it because its like $10,000 a month. While he may or may not be exaggerating I get the feeling its very expensive. I live in the US...Texas to be more specific.
marty102
in
PBC Foundation
7 years ago
Add too hep visit
I forgot you add that I am starting
Ocaliva
as soon as my insurance okays it. Dr says that it can take a little time for that😕. Fingers crossed that my labs will start to become lower & I can start to feel a little closer to normal.
I forgot you add that I am starting
Ocaliva
as soon as my insurance okays it. Dr says that it can take a little time for that😕. Fingers crossed that my labs will start to become lower & I can start to feel a little closer to normal.
Shulsey
in
PBC Foundation
7 years ago
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