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Xtandi not working but Dr says stay on it?????
Xtandi worked well for about 15 months but stopped --- DR ( MO ) now put me on monthly injections of lupron. Makes no sense to me and doing both has me really fatigued. Lupron is working!!!! Is anyone doing both and why, my Dr was just too quick with me and said basically just follow what I say - nice
Xtandi worked well for about 15 months but stopped --- DR ( MO ) now put me on monthly injections of lupron. Makes no sense to me and doing both has me really fatigued. Lupron is working!!!! Is anyone doing both and why, my Dr was just too quick with me and said basically just follow what I say - nice
ken12491
in
Advanced Prostate Cancer
4 years ago
BiTE Clinical Trial
Hello! My husband will be entering this clinical trial, in the arm testing the dosing of a combination of AMG-160 and AMG-404, two targeted immunotherapies. The trial number is NCT 04631601. A little background, my husband is 44 years old now and was diagnosed with stage 4 metastatic PC in February
Hello! My husband will be entering this clinical trial, in the arm testing the dosing of a combination of AMG-160 and AMG-404, two targeted immunotherapies. The trial number is NCT 04631601. A little background, my husband is 44 years old now and was diagnosed with stage 4 metastatic PC in February
Indigo33
in
Advanced Prostate Cancer
4 years ago
The final end of the battle.
After 26 months my husband passed on March 8. He was first diagnosed in Jan. 2019 with Gleason score of 9(5+4) and PSA 15. It had already metastasized to the bone. His physical a year earlier was negative but they did not do a PSA test. He was on Lupron. They tried Zytiga and Xtandi. He had spot radiation
After 26 months my husband passed on March 8. He was first diagnosed in Jan. 2019 with Gleason score of 9(5+4) and PSA 15. It had already metastasized to the bone. His physical a year earlier was negative but they did not do a PSA test. He was on Lupron. They tried Zytiga and Xtandi. He had spot radiation
oilcan4
in
Advanced Prostate Cancer
4 years ago
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After 2 years and 8 month vacation PSA back up 0.3 what now?
Here we go again. My husband was diagnosed Nov 2010. In all this years the treatments were Prostatectomy, 37 radiations to prostate bed, Adt, Zytiga, 6 rounds of chemo, plus more radiation to the lymph nodes. 3 weeks ago I took him to urgent care and his gallbladder was removed. The liver enzymes were
Here we go again. My husband was diagnosed Nov 2010. In all this years the treatments were Prostatectomy, 37 radiations to prostate bed, Adt, Zytiga, 6 rounds of chemo, plus more radiation to the lymph nodes. 3 weeks ago I took him to urgent care and his gallbladder was removed. The liver enzymes were
Chiquis
in
Advanced Prostate Cancer
4 years ago
Higher AST and ALT levels, from Covid vaccine nanoparticles or from Orgovyx ADT pills, or both
I got results of my AST and ALT this week and they were higher than they have ever been, on the high end of normal- 36 and 34, but they are usually in the mid 20s. Should I be concerned about these levels? The increase is probably a combination of the Orgovyx and the Vaccine. Lupron never raised my
I got results of my AST and ALT this week and they were higher than they have ever been, on the high end of normal- 36 and 34, but they are usually in the mid 20s. Should I be concerned about these levels? The increase is probably a combination of the Orgovyx and the Vaccine. Lupron never raised my
GeorgeGlass
in
Advanced Prostate Cancer
4 years ago
SOC standard info on starting Xgeva without bone issues.
In Jan. 2020, after I had been on Lupron since 11/2018, my MO started me on Xgeva even though 1. I had never had a bone density scan and 2. Had no diagnosis of osteoporosis or other indicators of bone issues. In Sept. 2020 I had my first ever bone density scan and it was normal. Since then, I have read
In Jan. 2020, after I had been on Lupron since 11/2018, my MO started me on Xgeva even though 1. I had never had a bone density scan and 2. Had no diagnosis of osteoporosis or other indicators of bone issues. In Sept. 2020 I had my first ever bone density scan and it was normal. Since then, I have read
dhccpa
in
Advanced Prostate Cancer
4 years ago
Trying to decide if I will continue ADT after 9 months.
Haven’t posted for some time so I’ll start from the beginning. Had PSA of 6.09 May of 2018. Rose to 8.93 May of 2019. Had biopsy which showed 3+3 Gleason grade group 1 in 8 of 12 cores, no evidence of lymph or seminal invasion. Perineural invasion noted. Did active surveillance until May 2020. PSA at
Haven’t posted for some time so I’ll start from the beginning. Had PSA of 6.09 May of 2018. Rose to 8.93 May of 2019. Had biopsy which showed 3+3 Gleason grade group 1 in 8 of 12 cores, no evidence of lymph or seminal invasion. Perineural invasion noted. Did active surveillance until May 2020. PSA at
Ernbud
in
Prostate Cancer Network
4 years ago
PSA climbed.
Hi All, DX 2015 I have been on Lupron since 12/20 I went for next injection and psa doubled.4 to 1.10. I also took bicalutamide for a week before starting Lupron. Wondering if after 6 years if my cancer is becoming CR?
Hi All, DX 2015 I have been on Lupron since 12/20 I went for next injection and psa doubled.4 to 1.10. I also took bicalutamide for a week before starting Lupron. Wondering if after 6 years if my cancer is becoming CR?
farm15
in
Advanced Prostate Cancer
4 years ago
Two Years Of ADT Coming To An End.
Hi Everyone, Had RP 2/19. All bad news post-op. Gleason 9. PSA 14 going into surgery, 6 weeks later .9. Started Lupron and then a month later added Zytiga on my insistence. Had SRT 10/19. My PSA has been<.1 for almost 2 years. My oncologist and I have decided to end all ADT when my next bottle
Hi Everyone, Had RP 2/19. All bad news post-op. Gleason 9. PSA 14 going into surgery, 6 weeks later .9. Started Lupron and then a month later added Zytiga on my insistence. Had SRT 10/19. My PSA has been<.1 for almost 2 years. My oncologist and I have decided to end all ADT when my next bottle
keepinon
in
Advanced Prostate Cancer
4 years ago
An Anniversary and an update
Today my calendar reminds me that it was three years ago that they inserted the indwelling catheter to drain the fluid from my left chest. Looking back on that very dark time I cannot recall anyone telling me nor my asking if that catheter was ever coming out. It seemed like such a palliative relief
Today my calendar reminds me that it was three years ago that they inserted the indwelling catheter to drain the fluid from my left chest. Looking back on that very dark time I cannot recall anyone telling me nor my asking if that catheter was ever coming out. It seemed like such a palliative relief
DenDoc
in
Advanced Prostate Cancer
4 years ago
Lupron and seizures
My guy is Gleason 9, BRCA2, zytiga, prednisone and lupron on STAMPEDE protocol for just about over 2 years. PSA non-detectable. He has a local medical oncologist, and is waiting to hear back for an initial appointment with a prostate cancer specialist at University of Michigan. Meanwhile, he meets
My guy is Gleason 9, BRCA2, zytiga, prednisone and lupron on STAMPEDE protocol for just about over 2 years. PSA non-detectable. He has a local medical oncologist, and is waiting to hear back for an initial appointment with a prostate cancer specialist at University of Michigan. Meanwhile, he meets
lss65
in
Advanced Prostate Cancer
4 years ago
Rising PSA what to do next?
It is the first time I post here. Been diagnosed in 2018 PSA 31 and Gleason score 9 - 10. RP in may 2018 followed by 36 radiations in September. Been on Lupron 3 monthly since then. PSA undetectable till January this year. Reading in January was 0.17 and yesterday did another test, now rising till 0.93
It is the first time I post here. Been diagnosed in 2018 PSA 31 and Gleason score 9 - 10. RP in may 2018 followed by 36 radiations in September. Been on Lupron 3 monthly since then. PSA undetectable till January this year. Reading in January was 0.17 and yesterday did another test, now rising till 0.93
Two-oceans
in
Advanced Prostate Cancer
4 years ago
Hyster+Oopherectomy vs Lupron/Orlissa for endo pain?
I'm new the group and have been reading all of your helpful posts about endo, surgery, pain relief, etc. I wanted to get some feedback on hysterectomy+oopherectomy for severe endometriosis and recurrent endometrioma or would taking Lupron or Orlissa be a better way to go? I'm also wondering for those
I'm new the group and have been reading all of your helpful posts about endo, surgery, pain relief, etc. I wanted to get some feedback on hysterectomy+oopherectomy for severe endometriosis and recurrent endometrioma or would taking Lupron or Orlissa be a better way to go? I'm also wondering for those
ciaotuffy
in
Endometriosis UK
4 years ago
What should I do next?
Hi to all. Reading your posts is both informative and entertaining with a touch of sadness. It really is a journey to be a member of this club ( which no one wants to join and which takes a heavy toll on our caregivers as well). Some of you are extremely generous with your time and knowledge and I admire
Hi to all. Reading your posts is both informative and entertaining with a touch of sadness. It really is a journey to be a member of this club ( which no one wants to join and which takes a heavy toll on our caregivers as well). Some of you are extremely generous with your time and knowledge and I admire
Squirrel71
in
Advanced Prostate Cancer
4 years ago
Anyone taking Orgovyx (ADT)? If so, how do you compare your side effects to Lupron?
Are you taking Orgovyx (ADT)? If so, how do you compare your side effects to Lupron? I will share my experience after I hear what others have to say. There may not be more than a couple of you taking it, since it just entered the market recently.
Are you taking Orgovyx (ADT)? If so, how do you compare your side effects to Lupron? I will share my experience after I hear what others have to say. There may not be more than a couple of you taking it, since it just entered the market recently.
GeorgeGlass
in
Advanced Prostate Cancer
4 years ago
New to forum
Hi all. The information shared on the forum has been very helpful in understanding options and sharing experiences of others. I was recently diagnosed via a jump in PSA to 10.4. MR fusion biopsy Gleason 4 +3. Had RP in January confirming the Gleason score, with positive margin T3a, and 1 node with
Hi all. The information shared on the forum has been very helpful in understanding options and sharing experiences of others. I was recently diagnosed via a jump in PSA to 10.4. MR fusion biopsy Gleason 4 +3. Had RP in January confirming the Gleason score, with positive margin T3a, and 1 node with
hg115pb
in
Prostate Cancer Network
4 years ago
What next?
Hello my brothers, I joined this group last year after my devastating Dx. I have my details on bio page. Asking for advice on what I should do next? I finished RT two weeks ago and have been on ADT , lupron + xtandi since Dx. My last PSA was taken after my second week of radiation which came
Hello my brothers, I joined this group last year after my devastating Dx. I have my details on bio page. Asking for advice on what I should do next? I finished RT two weeks ago and have been on ADT , lupron + xtandi since Dx. My last PSA was taken after my second week of radiation which came
Marcev
in
Advanced Prostate Cancer
4 years ago
chemo experiences
I will be starting chemo for the first time with carboplatin/docetaxel next week after recovering a bit from radiation therapy to shrink the prostate. Can others tell me of their experience with this treatment? They will also give me CSF (Zarxio). Age 69. Reside in the Pacific northwest. Diagnosed
I will be starting chemo for the first time with carboplatin/docetaxel next week after recovering a bit from radiation therapy to shrink the prostate. Can others tell me of their experience with this treatment? They will also give me CSF (Zarxio). Age 69. Reside in the Pacific northwest. Diagnosed
Dmwalker
in
Advanced Prostate Cancer
4 years ago
Gaining weight on ADT
Hey all. I’ve been on Lupron for about 2 years and Zytiga/prednisone for the past year. I’m metastatic, with a few bone and lymph node mets. PSA levels have dropped to no-detect for the past 6 months. Wooooot! But I’ve dropped some weight without trying. I’m about 5’-10” and typically at about 165.
Hey all. I’ve been on Lupron for about 2 years and Zytiga/prednisone for the past year. I’m metastatic, with a few bone and lymph node mets. PSA levels have dropped to no-detect for the past 6 months. Wooooot! But I’ve dropped some weight without trying. I’m about 5’-10” and typically at about 165.
LessPaul
in
Advanced Prostate Cancer
4 years ago
Rising PSA following Radiation
about 9 months ago I completed 25 radiation treatments, four treatments of high dose radiation, and a four month dose of Lupron. Three months later, my first blood test showed a PSA of 0.77. Everything looked good. However, my next blood test three months later was 1.7. Three months after that my
about 9 months ago I completed 25 radiation treatments, four treatments of high dose radiation, and a four month dose of Lupron. Three months later, my first blood test showed a PSA of 0.77. Everything looked good. However, my next blood test three months later was 1.7. Three months after that my
prostate_watcher
in
Fight Prostate Cancer
4 years ago
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