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Experiences with
Mycophenolate
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Burning sensations
Hi is anyone else using
mycophenolate
and getting a ridiculous amount of burning sensations in their limbs?
Hi is anyone else using
mycophenolate
and getting a ridiculous amount of burning sensations in their limbs?
starfish69
in
Vasculitis UK
9 years ago
New to Mycophenolate Mofetil
I have newly been started on
Mycophenolate
alongside a strong course of prednisone following a bad flare up, and I have tummy problems from this. Does anyone else get this? And if so any natural remedies to help?. I've just started pure Aloe in water which has eased the cramping. X
I have newly been started on
Mycophenolate
alongside a strong course of prednisone following a bad flare up, and I have tummy problems from this. Does anyone else get this? And if so any natural remedies to help?. I've just started pure Aloe in water which has eased the cramping. X
SparklesSammie
in
St Thomas Lupus Trust
9 years ago
sherree lewis
can anyone help have just been diagnosed with cerebral vasculitis and have told it is all over my brain and this is a very rare desease they want me to go on
mycophenolate
any body with info would bve appreciated
can anyone help have just been diagnosed with cerebral vasculitis and have told it is all over my brain and this is a very rare desease they want me to go on
mycophenolate
any body with info would bve appreciated
sherree
in
Vasculitis UK
9 years ago
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Mycophenolate mofetil - longer term experiences?
I need to take tacrolimus for my liver but she wondered whether my
mycophenolate
could be reduced.
I need to take tacrolimus for my liver but she wondered whether my
mycophenolate
could be reduced.
artytransplantee
in
ITP Support Association
9 years ago
Antibiotics & immunosuppression
I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the
Mycophenolate
until the antibiotics are finished. My wbc is always low but this doesn't seem to affect me adversely.
I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the
Mycophenolate
until the antibiotics are finished. My wbc is always low but this doesn't seem to affect me adversely.
Fennella02
in
LUPUS UK
9 years ago
How did you tolerate the pneumococcus vaccine?
Am ok about having this vaccine on Saturday...I know I need to do this...but am interested how others have coped with it...especially others on
mycophenolate
cellcept (I'm on 1000mg daily)
Am ok about having this vaccine on Saturday...I know I need to do this...but am interested how others have coped with it...especially others on
mycophenolate
cellcept (I'm on 1000mg daily)
Barnclown
in
LUPUS UK
9 years ago
Mycophenolate and alcohol
What is the recommended level of alcohol (wine) allowed when taking
Mycophenolate
. To start with I stopped completely but now five weeks in I'd like to have the odd glass. Is this safe ?
What is the recommended level of alcohol (wine) allowed when taking
Mycophenolate
. To start with I stopped completely but now five weeks in I'd like to have the odd glass. Is this safe ?
bones-bones
in
St Thomas Lupus Trust
9 years ago
Mycophenolate tiredness
I am now taking
Mycophenolate
(as well as Plaquenil). I have been taking 1 x 500 mg tablet twice a day with no problems but in the last few days have increased to 2 twice a day.
I am now taking
Mycophenolate
(as well as Plaquenil). I have been taking 1 x 500 mg tablet twice a day with no problems but in the last few days have increased to 2 twice a day.
bones-bones
in
LUPUS UK
9 years ago
Update
Still had stomach pains and headaches and decided that if I had upped my steroids there was no point taking steroid sparing
Mycophenolate
, so stopped taking it. I did write to my Rheumy who was on holiday but he did come back a few days later saying to stop.
Still had stomach pains and headaches and decided that if I had upped my steroids there was no point taking steroid sparing
Mycophenolate
, so stopped taking it. I did write to my Rheumy who was on holiday but he did come back a few days later saying to stop.
Griggser
in
PMRGCAuk
9 years ago
Can Lupus link up with MS type Neurological symptoms ?
I am to start
Mycophenolate
in July after the last injection wears off.I am seronegative and bloods always normal so I am grateful to at least have a Rheumy who will treat me. For years, as well as all the expected symptoms of those diseaese, I have totally dire muscle weakness in heat of any kind.
I am to start
Mycophenolate
in July after the last injection wears off.I am seronegative and bloods always normal so I am grateful to at least have a Rheumy who will treat me. For years, as well as all the expected symptoms of those diseaese, I have totally dire muscle weakness in heat of any kind.
cuttysark
in
LUPUS UK
9 years ago
April's Blog (Part 2) - Aaron's experiences of being a male with lupus
I was on 2g
mycophenolate
, 30mg prednisolone steroid and lansoprazole; also I'd had a five dose course of cyclophosphamide whilst as an inpatient.
I was on 2g
mycophenolate
, 30mg prednisolone steroid and lansoprazole; also I'd had a five dose course of cyclophosphamide whilst as an inpatient.
Paul_Howard
LUPUS UK
in
LUPUS UK
9 years ago
Mycophenolate
However, I have a new consultant who will no longer give me Rituximab and put me on
Mycophenolate
in October 2014. I have not felt well since taking it. Severe headaches, dizziness, bloating, depression. He insists I persevere but I am very unhappy after feeling so well on Rituximab.
However, I have a new consultant who will no longer give me Rituximab and put me on
Mycophenolate
in October 2014. I have not felt well since taking it. Severe headaches, dizziness, bloating, depression. He insists I persevere but I am very unhappy after feeling so well on Rituximab.
phayes14
in
Vasculitis UK
9 years ago
PIP
Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs and have worked full time for 30 yrs since 18yrs old.My condition deteriorating over past few years on lots of meds like all you guys out there (prednisolone,
mycophenolate
, hydroxy,naproxen and so on...) meaning most of the
Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs and have worked full time for 30 yrs since 18yrs old.My condition deteriorating over past few years on lots of meds like all you guys out there (prednisolone,
mycophenolate
, hydroxy,naproxen and so on...) meaning most of the
pixie66
in
LUPUS UK
9 years ago
REDUCING STERIODS
I am currently working my way upto 2000 mg of
mycophenolate
as well - just gone upto 1500 mg (I have WG/GPA). Does the fatigue ever go away? - I am desperate to go back to work but I seem to take one step forward and two backwards!
I am currently working my way upto 2000 mg of
mycophenolate
as well - just gone upto 1500 mg (I have WG/GPA). Does the fatigue ever go away? - I am desperate to go back to work but I seem to take one step forward and two backwards!
A_14
in
Vasculitis UK
9 years ago
Lupus
standing up and have to put weight on them I end up crying with the ache and pain, And I am so mixed up one nurse says who you do not have lupus then when I ask the Doctor he says yes you do have lupus, I do not know if I am coming or going, hope to get some answers next week , I have been taking
mycophenolate
standing up and have to put weight on them I end up crying with the ache and pain, And I am so mixed up one nurse says who you do not have lupus then when I ask the Doctor he says yes you do have lupus, I do not know if I am coming or going, hope to get some answers next week , I have been taking
mycophenolate
anne442
in
LUPUS UK
9 years ago
Summer time
I'm now taking anti rejection drugs,
Mycophenolate
mofetil 2000mg per day....so along with the underlying sun allergy, these drugs can make you even more sun sensitive ! So..... I always used Books sensitive 50spf.... But was wondering if there is better out there....
I'm now taking anti rejection drugs,
Mycophenolate
mofetil 2000mg per day....so along with the underlying sun allergy, these drugs can make you even more sun sensitive ! So..... I always used Books sensitive 50spf.... But was wondering if there is better out there....
Sempafidelis1970
in
LUpus Patients Understanding and Support
9 years ago
Mycophenolate withdrawal
Is this side effects from coming of
Mycophenolate
? I feel worn out!
Is this side effects from coming of
Mycophenolate
? I feel worn out!
smudge1980
in
LUPUS UK
9 years ago
Hi, I have scleroderma among other things. The most concerning of which is lung fibrosis.
After consultations between my 2 consultants, (chest and rheumatology), they have decided to prescribe me
Mycophenolate
Mofetil (CellCept). I have 100% trust in my medical advisors, however, I read with trepidation the 8 page accompanying document about possible side effects.
After consultations between my 2 consultants, (chest and rheumatology), they have decided to prescribe me
Mycophenolate
Mofetil (CellCept). I have 100% trust in my medical advisors, however, I read with trepidation the 8 page accompanying document about possible side effects.
titanicus
in
Lung Conditions Community Forum
9 years ago
Infliximab or Humira
Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other immunosuppressants - azathioprine, which I couldn't tolerate and
mycophenolate
together with colchicine which has made no difference.
Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other immunosuppressants - azathioprine, which I couldn't tolerate and
mycophenolate
together with colchicine which has made no difference.
Meggy7791
in
Behçet's UK
9 years ago
Weakness
I am on week three of
mycophenolate
. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?
I am on week three of
mycophenolate
. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?
adrienneioannou
in
LUPUS UK
9 years ago
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