Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,572 public posts
Filter results
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
4 years ago
Peak flow meter measurement
Hello all, I have recently buyed peak flow meter and I started to measure my peak flow in the morning, afternoon and evening before taking my therapy. I found it strange that even when I feel symptoms (chest tightness) according to my peek flow meter I am in green zone( which should be from 517-600
Hello all, I have recently buyed peak flow meter and I started to measure my peak flow in the morning, afternoon and evening before taking my therapy. I found it strange that even when I feel symptoms (chest tightness) according to my peek flow meter I am in green zone( which should be from 517-600
Jolius
in
Asthma Community Forum
4 years ago
Rls and cannabis
Have any of you ever used cannabis for rls before taking gabapentin i use to find this to work better than anything but due to drug tests at work i could no longer use it iv seen a few documentary's on tv were a few people also used it for rls from young people to old aged pensioners and they all swore
Have any of you ever used cannabis for rls before taking gabapentin i use to find this to work better than anything but due to drug tests at work i could no longer use it iv seen a few documentary's on tv were a few people also used it for rls from young people to old aged pensioners and they all swore
Jonyboi21
in
Restless Legs Syndrome
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CBD and THC
I still use CBD and THC for pain it works really well HOWEVER the prescribing doctors don’t realise we need very specific plants or it can make it worse. I have been on Nanibis it works well for pain the doctor changed it to a brand called spectrum from Canada and it overrode my buprenorphine. I thought
I still use CBD and THC for pain it works really well HOWEVER the prescribing doctors don’t realise we need very specific plants or it can make it worse. I have been on Nanibis it works well for pain the doctor changed it to a brand called spectrum from Canada and it overrode my buprenorphine. I thought
Shumbah
in
Restless Legs Syndrome
4 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
AussieNeil
Partner
in
CLL Support
4 years ago
Slow tapering
Can I ask you wonderful people your thoughts/advice about slow tapering please before I speak to my GP next week. Had a flare and been on 10mg of pred for 2 months. Started tapering as in Kate Gilberts book ie 10mg for 6 days, 9 mg for 1 day, then next week 10mgs for 5 days and 9 for 2 days until down
Can I ask you wonderful people your thoughts/advice about slow tapering please before I speak to my GP next week. Had a flare and been on 10mg of pred for 2 months. Started tapering as in Kate Gilberts book ie 10mg for 6 days, 9 mg for 1 day, then next week 10mgs for 5 days and 9 for 2 days until down
greengages
in
PMRGCAuk
4 years ago
A Message to ChrisWF and the Entire Forum
ChrisWF and all Forum Members, To be clear, I am one of the people who complained about two of your replies, because I felt you were using sarcasm and negativity with some posters because you did not like what they had to say when you could have just ignored them or made your point without the sarcasm
ChrisWF and all Forum Members, To be clear, I am one of the people who complained about two of your replies, because I felt you were using sarcasm and negativity with some posters because you did not like what they had to say when you could have just ignored them or made your point without the sarcasm
chartist
in
Cure Parkinson's
4 years ago
Symptom improvement hampered by emotional apathy
I started LDN two months ago to help treat
Mast
Cell
Activation
Syndrome
-caused inflammation. I've had a bittersweet experience so far.
I started LDN two months ago to help treat
Mast
Cell
Activation
Syndrome
-caused inflammation. I've had a bittersweet experience so far.
ABarzen
in
LDN Research Trust
4 years ago
Knee pain
So, at work today I developed a bit of pain behind my knee- it also had a sense of numbness around it. Just got in with the day, but sitting in the sofa tonight, it’s been more painful, and it’s been difficult to bed without tight pain. I asked my daughter to look and she said there is a lump behind
So, at work today I developed a bit of pain behind my knee- it also had a sense of numbness around it. Just got in with the day, but sitting in the sofa tonight, it’s been more painful, and it’s been difficult to bed without tight pain. I asked my daughter to look and she said there is a lump behind
Eiram50
in
NRAS
4 years ago
Restless leg relief ideas
Hi, I am 30 and very active. I wondered if anyone can give me any tips. I had restless leg on and off in the past but recently it’s been every evening and it’s preventing me going to sleep. I’m not sure if upping the dose of spirolactone for my skin has worsened it (50mg-100mg) which happened in the
Hi, I am 30 and very active. I wondered if anyone can give me any tips. I had restless leg on and off in the past but recently it’s been every evening and it’s preventing me going to sleep. I’m not sure if upping the dose of spirolactone for my skin has worsened it (50mg-100mg) which happened in the
Lucygittins90
in
Restless Legs Syndrome
4 years ago
Help!
Hi, I have been diagnosed with Pm scl 75. Is there anyone else with this? I know it’s an overlap syndrome so I have Raynaulds and Sjogrens, joint pain... I just had an abnormal ECG.. is this a feature of this syndrome or the medication that I am on? Due to COVID im waiting to see both a Rhem and Cardiologist
Hi, I have been diagnosed with Pm scl 75. Is there anyone else with this? I know it’s an overlap syndrome so I have Raynaulds and Sjogrens, joint pain... I just had an abnormal ECG.. is this a feature of this syndrome or the medication that I am on? Due to COVID im waiting to see both a Rhem and Cardiologist
Fizz14
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Soothing Sore Bits!!
Currently 32 weeks pregnant and I’ve got quite sore lady bits, I thought it was possible a strange sort of chafing that I’d never had before as I’ve done a lot of walking this weekend, but I’ve just had a look in the mirror and I’m quite swollen down there, I’ve read about engorged swelling down below
Currently 32 weeks pregnant and I’ve got quite sore lady bits, I thought it was possible a strange sort of chafing that I’d never had before as I’ve done a lot of walking this weekend, but I’ve just had a look in the mirror and I’m quite swollen down there, I’ve read about engorged swelling down below
TheFarmersWife
in
Pregnancy and Parenting Support
4 years ago
Dr wanting to reduce my pain medication
I suffer with a degenerative disease of my lumbar spine I have been through the pain management system twice. At first I was perscribed 400mg of MST Continus, 12.5ml of Oramorph, codeine, amitripyline, gabapentin which was a very large prescription. After a while I went and on my own fruition I reduced
I suffer with a degenerative disease of my lumbar spine I have been through the pain management system twice. At first I was perscribed 400mg of MST Continus, 12.5ml of Oramorph, codeine, amitripyline, gabapentin which was a very large prescription. After a while I went and on my own fruition I reduced
Daz75
in
Pain Concern
4 years ago
DR wanting to reduce my medication
I suffer with a degenerative disease of my lumbar spine I have been through the pain management system twice. At first I was perscribed 400mg of MST Continus, 12.5ml of Oramorph, codeine, amitripyline, gabapentin which was a very large prescription. After a while I went and on my own fruition I reduced
I suffer with a degenerative disease of my lumbar spine I have been through the pain management system twice. At first I was perscribed 400mg of MST Continus, 12.5ml of Oramorph, codeine, amitripyline, gabapentin which was a very large prescription. After a while I went and on my own fruition I reduced
Daz75
in
Cloudy with a Chance of Pain
4 years ago
My Dr wanting to reduce my pain medication
I suffer with a degenerative disease of my lumbar spine I have been through the pain management system twice. At first I was perscribed 400mg of MST Continus, 12.5ml of Oramorph, codeine, amitripyline, gabapentin which was a very large prescription. After a while I went and on my own fruition I reduced
I suffer with a degenerative disease of my lumbar spine I have been through the pain management system twice. At first I was perscribed 400mg of MST Continus, 12.5ml of Oramorph, codeine, amitripyline, gabapentin which was a very large prescription. After a while I went and on my own fruition I reduced
Daz75
in
Action on Pain
4 years ago
Anyone over 43 had success here?
Is anyone 45 here and doing ivf? I just did ivf again this time my 10th attempt. I got 5 embryos and they put 3 in my uterus 2 days ago. Im on duphaston pills twice a day and crynone twice a day. I thought last time would be my last but i had to give it another shot. Anyone got any advice how to make
Is anyone 45 here and doing ivf? I just did ivf again this time my 10th attempt. I got 5 embryos and they put 3 in my uterus 2 days ago. Im on duphaston pills twice a day and crynone twice a day. I thought last time would be my last but i had to give it another shot. Anyone got any advice how to make
Iwantpregnancy
in
Fertility Network UK
4 years ago
Thank you
I have had RLS for 20 years - it is a scourge. I am consistently shocked at how cavalier the medical community is about it. Not to mention ignorant. I have resorted now to CBD/THC gummies to sleep but I live in California so that is an option. I also use Hylanda homeopathic remedy which does seem to
I have had RLS for 20 years - it is a scourge. I am consistently shocked at how cavalier the medical community is about it. Not to mention ignorant. I have resorted now to CBD/THC gummies to sleep but I live in California so that is an option. I also use Hylanda homeopathic remedy which does seem to
Maddiehb
in
Restless Legs Syndrome
4 years ago
Lip biopsy results
I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment
I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment
Kels1974
in
The Australian Sjögren's Syndrome Association
4 years ago
Lip biopsy result
I received the result of my lip biopsy, it says the biopsy shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment.
I received the result of my lip biopsy, it says the biopsy shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment.
Kels1974
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
burning legs/feeling extremely cold?
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
mmjxc
in
Restless Legs Syndrome
4 years ago
1
...
76
77
78
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1500 results
Fertility Network UK
361 results
Thyroid UK
358 results
View top 10 communities
Sort by
Most Relevant
Newest