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Mast cell activation syndrome (MCAS)
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AZ second jab - preparation
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
lkcreedon
in
PMRGCAuk
3 years ago
How my restless legs have resolved
Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would sleep like a baby but back in the day when I was using I would also cease use of heroin easily too. But that is when I would suffer quiet severely
Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would sleep like a baby but back in the day when I was using I would also cease use of heroin easily too. But that is when I would suffer quiet severely
biggurs
in
Restless Legs Syndrome
3 years ago
Supplements to help with DAWS
Has anyone had success with supplements to help repair dopamine damage from DAWS? These are supplements I found from research. Not entirely sure which are most appropriate. Dopa Maxx: https://www.integrativepsychiatry.net/shop/ip-formulas/dopa-maxx-dopamine-supplement/ L-Theanine: https://www.amazon.com
Has anyone had success with supplements to help repair dopamine damage from DAWS? These are supplements I found from research. Not entirely sure which are most appropriate. Dopa Maxx: https://www.integrativepsychiatry.net/shop/ip-formulas/dopa-maxx-dopamine-supplement/ L-Theanine: https://www.amazon.com
Discopage
in
Restless Legs Syndrome
3 years ago
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Why use Progynova from day 20 of previous cycle (ahead of short protocol IVF cycle)?
Hello Friends, My clinic has asked me to take Progynova from day 20 on the previous cycle ahead of my (short antagonist) IVF cycle. I have read about progynova and understand it thickens the lining and it is mostly given during the IVF cycle to help the lining develop. ...My lining is working great,
Hello Friends, My clinic has asked me to take Progynova from day 20 on the previous cycle ahead of my (short antagonist) IVF cycle. I have read about progynova and understand it thickens the lining and it is mostly given during the IVF cycle to help the lining develop. ...My lining is working great,
Carelia
in
Fertility Network UK
3 years ago
Weening off oxycodone targinact
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Hidden
in
Restless Legs Syndrome
3 years ago
Polyhydramnios - looking stories and reassurance
Hello I've been told by my consultant that I have polyhydramnios...I'm 29+3 and AFI was 22 on my notes but don't know if this is mild or severe...have had GTT and was negative. Have another scan in two weeks to recheck...anyone been through this and have any advice? Worried mum here😔
Hello I've been told by my consultant that I have polyhydramnios...I'm 29+3 and AFI was 22 on my notes but don't know if this is mild or severe...have had GTT and was negative. Have another scan in two weeks to recheck...anyone been through this and have any advice? Worried mum here😔
Cats2707
in
Pregnancy and Parenting Support
3 years ago
Blood clotting disorder
Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently it’s hereditary which dr argued at first that it wasn’t . Anyways after urging my daughter to get blood test sure enough she has it too .
Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently it’s hereditary which dr argued at first that it wasn’t . Anyways after urging my daughter to get blood test sure enough she has it too .
Looby60
in
PMRGCAuk
3 years ago
Question to all the ladies who transferred PGT A tested embryos and had 12 weeks of pregnancy genetic screening ( trisomy 21, trisomy 18)
I have a question to all the ladies who were successful with PGTA tested embryos. I had my dating scan yesterday at 13 weeks, my embryo was tested before the transfer and did not have any problems but somehow I just can not stop worrying, I am freaking out that somehow I can still get bad news.Is it
I have a question to all the ladies who were successful with PGTA tested embryos. I had my dating scan yesterday at 13 weeks, my embryo was tested before the transfer and did not have any problems but somehow I just can not stop worrying, I am freaking out that somehow I can still get bad news.Is it
Nuszkahope
in
Fertility Network UK
3 years ago
Life after Ropinirole.
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Birdland
in
Restless Legs Syndrome
3 years ago
Cytotec experiences
Hello everyone , Just wanted some insight on cytotec , i want to miscarry naturally but i also know it might take weeks and i have to get this over with , i am struggling emotionally and knowing this baby is still there is not helping ... i have read some awful experiences with it so just wanted to ask
Hello everyone , Just wanted some insight on cytotec , i want to miscarry naturally but i also know it might take weeks and i have to get this over with , i am struggling emotionally and knowing this baby is still there is not helping ... i have read some awful experiences with it so just wanted to ask
Endwarrior
in
Fertility Network UK
3 years ago
More on Covid vaccines and the inmunocompromised.
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Iupiter
in
CLL Support
3 years ago
Dr Shehata consultation for Immunology/NK cells testing tomorrow...any recommendations on questions to ask?
I have my long awaited NK cells testing tomorrow with Dr Shehata and am wondering if there are any particular questions anyone would recommend asking or advice generally? My fertility clinic again said it likely chromosomal abnormalities causing the 4 natural miscarriages and 2 IVF failures (no BFP)
I have my long awaited NK cells testing tomorrow with Dr Shehata and am wondering if there are any particular questions anyone would recommend asking or advice generally? My fertility clinic again said it likely chromosomal abnormalities causing the 4 natural miscarriages and 2 IVF failures (no BFP)
PaulaDag
in
Fertility Network UK
3 years ago
Trying to manage, and afraid
I've posted a few times before on the forum re RLS. I 'manage' my RLS with one 0.18mg Pramipexole tablet in the evening which at least allows me to be symptom-free by bedtime and I know I will sleep a good 5 hours. I do suffer RLS during the course of the day though, and although I know I could ask
I've posted a few times before on the forum re RLS. I 'manage' my RLS with one 0.18mg Pramipexole tablet in the evening which at least allows me to be symptom-free by bedtime and I know I will sleep a good 5 hours. I do suffer RLS during the course of the day though, and although I know I could ask
Sueloops
in
Restless Legs Syndrome
3 years ago
Low HCG 11dp6dt
Hi Everyone, I am trying not to worry but transferred a genetically test embryo on 5/20 and had my beta hcg yesterday. It was 41 and my RE said he likes to see 50. I am back tmrw to test again. My husband is elated but I’m so worried. Any advice? Similar situations? Hope you are all well and appreciate
Hi Everyone, I am trying not to worry but transferred a genetically test embryo on 5/20 and had my beta hcg yesterday. It was 41 and my RE said he likes to see 50. I am back tmrw to test again. My husband is elated but I’m so worried. Any advice? Similar situations? Hope you are all well and appreciate
Babydustforall
in
Fertility Network UK
3 years ago
Dopamine Agonist Official Withdrawal Advice (from Dr Earley??)
Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen during DA withdrawal. It certainly reflects what I went through. It might be useful for anyone going through it, or thinking of doing so. It would
Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen during DA withdrawal. It certainly reflects what I went through. It might be useful for anyone going through it, or thinking of doing so. It would
Joolsg
in
Restless Legs Syndrome
3 years ago
Fatigue and very hot flushes
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
AnniesRyder5
in
PMRGCAuk
3 years ago
Neupogen wash + failed ivf?
Hi, I had my 5th embryo transfer with neupogen wash on the same day of transfer. I have negative hpt on day10. I have blood test tomorrow. Anyone with failed ivf with neupogen wash?
Hi, I had my 5th embryo transfer with neupogen wash on the same day of transfer. I have negative hpt on day10. I have blood test tomorrow. Anyone with failed ivf with neupogen wash?
somukbs
in
Fertility Network UK
3 years ago
Mast Cell Activation Syndrome (MCAS)
MCAS (
Mast
Cell
Activation
Syndrome
)
MCAS (
Mast
Cell
Activation
Syndrome
)
Hidden
in
Gluten Free Guerrillas
4 years ago
Is valerian ok to take with pred?
Still having difficulty sleeping due partly to pred I presume and also gastric problems (appointment with gastroenterologist tomorrow) . I do have zopoclone sleeping tablets and have taken one per night for 2 nights but reluctant to take more as know they’re are addictive . Could valerian be an alternative
Still having difficulty sleeping due partly to pred I presume and also gastric problems (appointment with gastroenterologist tomorrow) . I do have zopoclone sleeping tablets and have taken one per night for 2 nights but reluctant to take more as know they’re are addictive . Could valerian be an alternative
WillOllier
in
PMRGCAuk
3 years ago
HELP FOR RESTLESS LEGS SYNDROME
I have RLS so bad that I walk all night and get a couple of hours of sleep every other day. I live in a nightmare. Absolutely no life. Also in augmentation from Pramipexole. I had ordered a supplement for my husband who gets bad cramps at night. The supplement immediately helped him. He told
I have RLS so bad that I walk all night and get a couple of hours of sleep every other day. I live in a nightmare. Absolutely no life. Also in augmentation from Pramipexole. I had ordered a supplement for my husband who gets bad cramps at night. The supplement immediately helped him. He told
Josana13
in
Restless Legs Syndrome
3 years ago
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