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Mast cell activation syndrome (MCAS)
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Living in the PUPO bubble...10dp5dt *sensitive - updated...bfp*
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Moonbeam8511
in
Fertility Network UK
2 years ago
RLS and THC oil
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Geordie-sailor
in
Restless Legs Syndrome
2 years ago
no ppain.
Restless is not painful, it's an urge to keep moving, legs jump and junk impossible to sit or lie Down. you have no choice but To keep moving. My longest walkabout was from 6.30pm until 6 30am following morning. What is working for me now is tto Alternate between pramipexole
Restless is not painful, it's an urge to keep moving, legs jump and junk impossible to sit or lie Down. you have no choice but To keep moving. My longest walkabout was from 6.30pm until 6 30am following morning. What is working for me now is tto Alternate between pramipexole
cumoneileen
in
Restless Legs Syndrome
2 years ago
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insomnia
I need some one who is taking CBD for insomnia with success to share the brand of CBD he is taking with me. From my past posts you may be familiar with my oxycodone-induced insomnia. The Hempland USA Cannabitol has lost effect after 7-8 months of daily dosage of 83.4 mg every night. I am now again
I need some one who is taking CBD for insomnia with success to share the brand of CBD he is taking with me. From my past posts you may be familiar with my oxycodone-induced insomnia. The Hempland USA Cannabitol has lost effect after 7-8 months of daily dosage of 83.4 mg every night. I am now again
halperinchen
in
Restless Legs Syndrome
2 years ago
ET accelerated progression
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
Smdg
in
MPN Voice
2 years ago
Blood Test Results - TPA seem strange
Hi, I have just received my Medichecks results. The result for TPA is 9 The range is <34 I know this fluctuates but was surprised to see it under range. My doctor checked it in 2007 and it was 56. It has not been checked since. So, do I still have Hashimotos? Does it fluctuate so much? I have
Hi, I have just received my Medichecks results. The result for TPA is 9 The range is <34 I know this fluctuates but was surprised to see it under range. My doctor checked it in 2007 and it was 56. It has not been checked since. So, do I still have Hashimotos? Does it fluctuate so much? I have
Conniegirl
in
Thyroid UK
2 years ago
I’ve been taking too much T3
please can someone help. I’m taking 50 mcg levo and 10 mcg lio (2x 5 mcg) daily. However I’ve just checked my meds and realised for the last month I’ve been taking 2 x 10 mcg per day T3. When I collected my prescription from the hospital I had a mix of 10 mcg and 5 mcg - I must have mixed them up.
please can someone help. I’m taking 50 mcg levo and 10 mcg lio (2x 5 mcg) daily. However I’ve just checked my meds and realised for the last month I’ve been taking 2 x 10 mcg per day T3. When I collected my prescription from the hospital I had a mix of 10 mcg and 5 mcg - I must have mixed them up.
Simba53
in
Thyroid UK
2 years ago
Ropinirole
Hi there I am weaning down off Ropinirole and that is fine at the moment. Very gradual reduction However, I was started on Pregabalin about four months ago. I have suffered various side effects but most of them manageable until now. I take 2 tablets in the morning and was on 3 at night. I have
Hi there I am weaning down off Ropinirole and that is fine at the moment. Very gradual reduction However, I was started on Pregabalin about four months ago. I have suffered various side effects but most of them manageable until now. I take 2 tablets in the morning and was on 3 at night. I have
SilverEvie
in
Restless Legs Syndrome
2 years ago
Restless Legs Medication - Ropinirole and Gabapentin
I was diagnosed with Restless legs syndrome around 2012 and was prescribed ropinirole. I started on 0.5 mg increasing to 1 mg, and this worked for a while. A couple of years ago, my symptoms were getting worse and I was experiencing augmentation. I get the sensation in my wrists now, and my symptoms
I was diagnosed with Restless legs syndrome around 2012 and was prescribed ropinirole. I started on 0.5 mg increasing to 1 mg, and this worked for a while. A couple of years ago, my symptoms were getting worse and I was experiencing augmentation. I get the sensation in my wrists now, and my symptoms
Kissfan
in
Restless Legs Syndrome
2 years ago
Restless leg syndrome
Having suffered from RLS on and off since childhood it now starts in the morning and continues all day until I can take Ropinirole at nighttime. It seems little research is being done what can we do to persuade some scientist somewhere to take this on and relieve the pain and distress experienced
Having suffered from RLS on and off since childhood it now starts in the morning and continues all day until I can take Ropinirole at nighttime. It seems little research is being done what can we do to persuade some scientist somewhere to take this on and relieve the pain and distress experienced
Titbit
in
Restless Legs Syndrome
2 years ago
Off Tocilizumab after six months
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
redhouts
in
PMRGCAuk
2 years ago
Going it alone but hit a snag
Hi all Since my post from June, after initially trying to increase the T3, I had massive heart palps and sweating, phone endo on 12th July who said to leave T3 at 2.5 mcg per day and leave levo at 91.07mcg per day. He informed me the symptons I was talking about, hip pain, muscle aches etc where not
Hi all Since my post from June, after initially trying to increase the T3, I had massive heart palps and sweating, phone endo on 12th July who said to leave T3 at 2.5 mcg per day and leave levo at 91.07mcg per day. He informed me the symptons I was talking about, hip pain, muscle aches etc where not
AleB
in
Thyroid UK
2 years ago
Parkinson
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
auldreekie18
in
Restless Legs Syndrome
2 years ago
experience with Buprenorphine
Greetings, I have been taking Buprenorphine for 5 weeks now and I am not exaggerating when I say it has changed my life. I have dealt with restless legs all my life. Everyone in my family had it, one of my brothers gave up on life because of it. I was taking Cabaser to treat it since about 2000.
Greetings, I have been taking Buprenorphine for 5 weeks now and I am not exaggerating when I say it has changed my life. I have dealt with restless legs all my life. Everyone in my family had it, one of my brothers gave up on life because of it. I was taking Cabaser to treat it since about 2000.
Nycsyd
in
Restless Legs Syndrome
2 years ago
any advice about extreme pain following a sigmoidoscopy
hello, I have been suffering for over 5years and kept getting sent away by GP who told me I was just old,I was in my 50s, extremely fit and healthy. Now Iam chronic,await a defecating proctogram and have to irrigate my bowel. I attended for a sigmoidoscopy which was very very painful,it felt like
hello, I have been suffering for over 5years and kept getting sent away by GP who told me I was just old,I was in my 50s, extremely fit and healthy. Now Iam chronic,await a defecating proctogram and have to irrigate my bowel. I attended for a sigmoidoscopy which was very very painful,it felt like
Nearlygaveup
in
Pelvic Pain Support Network
2 years ago
New to ropinirole
My first time at a new neurologist. He started me on ropinirole 0.25mg 1/day at 7pm. I take 600mg gabapentin at 5pm and 9pm. He convinced me that I don't have CMT but have RLS. My feet are rather numb, and my ankles and shins hurt occasionally. I believe this is peripheral neuropathy, but he did not
My first time at a new neurologist. He started me on ropinirole 0.25mg 1/day at 7pm. I take 600mg gabapentin at 5pm and 9pm. He convinced me that I don't have CMT but have RLS. My feet are rather numb, and my ankles and shins hurt occasionally. I believe this is peripheral neuropathy, but he did not
fishinphil1946
in
Restless Legs Syndrome
2 years ago
tocilizumab after relapse
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Devoid
in
PMRGCAuk
2 years ago
double or single transfer - help!
I’m about to do my 6th transfer and have been recommended a double transfer. I’m 38 five failed transfers, one was a miscarriage. Each time I had a single embryo transfer, other than my 4th which was a double. This will be my first frozen transfer, all previous were fresh. what’s everyone’s thoughts
I’m about to do my 6th transfer and have been recommended a double transfer. I’m 38 five failed transfers, one was a miscarriage. Each time I had a single embryo transfer, other than my 4th which was a double. This will be my first frozen transfer, all previous were fresh. what’s everyone’s thoughts
darkbuthappyplace
in
Fertility Network UK
2 years ago
Percocet during Pramipexole Withdrawal
On Percocet 10mg at night to deal with augmentation from Pramipexole while waiting to get in to see a neurologist. What dose seems to work for people? Does it make you tired if you take it during the day? I’m experiencing Withdrawal during day now too.
On Percocet 10mg at night to deal with augmentation from Pramipexole while waiting to get in to see a neurologist. What dose seems to work for people? Does it make you tired if you take it during the day? I’m experiencing Withdrawal during day now too.
kturenne
in
Restless Legs Syndrome
2 years ago
Strange blood and balance and pmr?
First i have to say I am in PMR and GCA remission on no pred at the moment, touch wood. So why am I hear? i recently fell forward, a bit like a tree falling . i landed on concrete, nose first. glasses rim went into my forehead , nose went into concrete and broke. blood everywhere. it settled like
First i have to say I am in PMR and GCA remission on no pred at the moment, touch wood. So why am I hear? i recently fell forward, a bit like a tree falling . i landed on concrete, nose first. glasses rim went into my forehead , nose went into concrete and broke. blood everywhere. it settled like
doubtfully
in
PMRGCAuk
2 years ago
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