Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,572 public posts
Filter results
Clonazepam with Gabapentin
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
bbullions
in
Restless Legs Syndrome
1 year ago
which Magnesium?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
Ruffabug
in
Restless Legs Syndrome
1 year ago
Methadone and cognition
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
ratfancy
in
Restless Legs Syndrome
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Helpful information on Potassium for RLS relief
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Wanman4
in
Restless Legs Syndrome
1 year ago
Altruist
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
Altruist
in
Restless Legs Syndrome
1 year ago
start of my SCT journey
Hi pawb I’m primary MF and Cal-r positive. I’ve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Hi pawb I’m primary MF and Cal-r positive. I’ve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Grizly
in
MPN Voice
1 year ago
Methadone bliss
From feeling suicidal after so many years of unremitting RLS I’m without pain or discomfort for many hours. I have a wonderful team of consultants who understand and are so supportive brought me to tears My life has improved beyond I would have ever thought it could be. It’s taken for a while so I
From feeling suicidal after so many years of unremitting RLS I’m without pain or discomfort for many hours. I have a wonderful team of consultants who understand and are so supportive brought me to tears My life has improved beyond I would have ever thought it could be. It’s taken for a while so I
Nightwalker999
in
Restless Legs Syndrome
1 year ago
Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
1 year ago
MAST CELL ACTIVATION SYNDROME ONLINE TALKS
For all fellow MCAS ( also Histamine intolerance) sufferers, of if you suspect you might be one: https://mastcellactivation.byhealthmeans.com/schedule/ There are some really excellent practitioners speaking: Lawrence Afrin, Trudy Scott, Beth O‘Hara, to name but a few. I am a fellow MCAS sufferer
For all fellow MCAS ( also Histamine intolerance) sufferers, of if you suspect you might be one: https://mastcellactivation.byhealthmeans.com/schedule/ There are some really excellent practitioners speaking: Lawrence Afrin, Trudy Scott, Beth O‘Hara, to name but a few. I am a fellow MCAS sufferer
Swissgirl
in
The UK Mastocytosis Support Group
2 years ago
Mast Cell Activation Syndrome online talks
For all fellow MCAS ( also Histamine intolerance) sufferers, of if you suspect you might be one, of which there are quite a few on the Thyroid forum: https://mastcellactivation.byhealthmeans.com/schedule/ There are some really excellent practitioners speaking: Lawrence Afrin, Trudy Scott, Beth O‘Hara
For all fellow MCAS ( also Histamine intolerance) sufferers, of if you suspect you might be one, of which there are quite a few on the Thyroid forum: https://mastcellactivation.byhealthmeans.com/schedule/ There are some really excellent practitioners speaking: Lawrence Afrin, Trudy Scott, Beth O‘Hara
Swissgirl
in
Thyroid UK
2 years ago
RLS and Adenomyosis
I have had RLS for 30+ years and was also diagnosed with Adenomyosis in 2019. The pain in my legs has increased in the past 6 months to an unbelievable level and I wonder if there is any information/research on having both of these conditions as I'm wondering if the adenomyosis exacerbates the RLS?
I have had RLS for 30+ years and was also diagnosed with Adenomyosis in 2019. The pain in my legs has increased in the past 6 months to an unbelievable level and I wonder if there is any information/research on having both of these conditions as I'm wondering if the adenomyosis exacerbates the RLS?
samd5555
in
Restless Legs Syndrome
1 year ago
How to pass the day
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
cycli
in
PMRGCAuk
1 year ago
Restless leg syndrome
Rls started when I was 7 months pregnant with my first child and has been rearing it’s head since 1973, 50 years. The past few months I have been taking 3gr of red vein kratom and it was helping. Lately it doesn’t seem to control it at bedtime. I spend a couple of hours exercising, stretching and
Rls started when I was 7 months pregnant with my first child and has been rearing it’s head since 1973, 50 years. The past few months I have been taking 3gr of red vein kratom and it was helping. Lately it doesn’t seem to control it at bedtime. I spend a couple of hours exercising, stretching and
Texas71
in
Restless Legs Syndrome
1 year ago
Clonazepam instead of Pregabalin?
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
oldfidgetlegs
in
Restless Legs Syndrome
1 year ago
females & prednisone
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
Pass7
in
PMRGCAuk
1 year ago
Restless Legs Syndrome
Is anyone else experiencing a shortage of Ropinirole for restless legs? Yet again my usual pharmacy has run out of this drug and it’s the only drug I’ve found so far, that works for me. I can’t work out if it’s my pharmacy not ordering in enough or whether the pharmaceutical company isn’t manufacturing
Is anyone else experiencing a shortage of Ropinirole for restless legs? Yet again my usual pharmacy has run out of this drug and it’s the only drug I’ve found so far, that works for me. I can’t work out if it’s my pharmacy not ordering in enough or whether the pharmaceutical company isn’t manufacturing
Titbit
in
Restless Legs Syndrome
1 year ago
Trouble transitioning to Gabapentin
Due to augmentation, I switched from Ropinirole to Gabapentin about 6 weeks ago. I did it in about a month (a bit too quick, I realize now, and suffered because of it), so I've been off Ropinirole for over two weeks. Unfortunately, Gabapentin has yet to do anything for me. I'm up to 900 miligrams a day
Due to augmentation, I switched from Ropinirole to Gabapentin about 6 weeks ago. I did it in about a month (a bit too quick, I realize now, and suffered because of it), so I've been off Ropinirole for over two weeks. Unfortunately, Gabapentin has yet to do anything for me. I'm up to 900 miligrams a day
Scottmiles
in
Restless Legs Syndrome
1 year ago
LOW BETA HCG
Hi, me again!!! Iam really worrying about my HCG being low. 10dpt - 64 (4 weeks 1 day) 12dp5dt - 142 (4 weeks 3 days) 14dp5dt - 437 (4 weeks 5 days) They are more than doubling but worried they are still low. Any success stories or anything similar please?
Hi, me again!!! Iam really worrying about my HCG being low. 10dpt - 64 (4 weeks 1 day) 12dp5dt - 142 (4 weeks 3 days) 14dp5dt - 437 (4 weeks 5 days) They are more than doubling but worried they are still low. Any success stories or anything similar please?
Jess11111
in
Fertility Network UK
1 year ago
insomnia in middle of night
my husband is weaning down. His ropinirole from eight mg. He is currently on 6 1/2 mg and just has a slight amount of RLS coming through mostly around 10 o’clock at night. The worst part is he wakes up at 3 o’clock in the morning and cannot get back to sleep, he does not have a RLS at that time just
my husband is weaning down. His ropinirole from eight mg. He is currently on 6 1/2 mg and just has a slight amount of RLS coming through mostly around 10 o’clock at night. The worst part is he wakes up at 3 o’clock in the morning and cannot get back to sleep, he does not have a RLS at that time just
Sandalsforever
in
Restless Legs Syndrome
1 year ago
RLS and Parkinsons
A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the treatment. She has been on pramipexole for a long time. Some of the parkinsons symptoms have significantly decreased but she still has RLS all
A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the treatment. She has been on pramipexole for a long time. Some of the parkinsons symptoms have significantly decreased but she still has RLS all
Graham3196
in
Restless Legs Syndrome
1 year ago
1
...
31
32
33
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1500 results
Fertility Network UK
361 results
Thyroid UK
358 results
View top 10 communities
Sort by
Most Relevant
Newest