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is this what CR looks like?
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
lokibear0803
in
Advanced Prostate Cancer
4 months ago
Art and music therapy for kidney patients
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
9 months ago
Must be doing something right!
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
PaulineHM
in
Lung Conditions Community Forum
9 months ago
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Waiting for the Other Shoe to Drop
61 with oligometastatic prostate cancer. PSA is currently down to 0.02 today after 6 months of Lupron and Erleada from PSA 150 in late Dec. '23. Started on Megestrol Acetate back in April, really reduced the side effects of ADT for me. My figure also looks about the as before treatment. I had a trans-rectal
61 with oligometastatic prostate cancer. PSA is currently down to 0.02 today after 6 months of Lupron and Erleada from PSA 150 in late Dec. '23. Started on Megestrol Acetate back in April, really reduced the side effects of ADT for me. My figure also looks about the as before treatment. I had a trans-rectal
TheLarch
in
Advanced Prostate Cancer
2 months ago
Both ovaries out or not?
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Loveneige
in
Endometriosis UK
4 months ago
Dienogest withdrawal
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Sheep2
in
Endometriosis UK
4 months ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
4 months ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
Mascouche
in
Advanced Prostate Cancer
4 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
4 months ago
Cabazitaxel treatment
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
Luylu
in
Prostate Cancer Network
4 months ago
Cold is good for you
Radio 4 currently has a series by Dr Michael Mosley, Cold Therapy. The third episode deals with exercising in the cold. One of his conclusions is that people who run reasonable distances for fun (as opposed to marathons, ultra runners, professionals) have their best performance at around 10-11C. Well
Radio 4 currently has a series by Dr Michael Mosley, Cold Therapy. The third episode deals with exercising in the cold. One of his conclusions is that people who run reasonable distances for fun (as opposed to marathons, ultra runners, professionals) have their best performance at around 10-11C. Well
Yesletsgo
Graduate10
in
Bridge to 10K
9 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
4 months ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
4 months ago
Is the end in sight???
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Stopalready
in
Endometriosis UK
4 months ago
what to try next?
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
KML22
in
Endometriosis UK
4 months ago
Accuracy doubtful due to fusion hardware?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
Jeaniem130
in
Bone Health and Osteoporosis UK
4 months ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
4 months ago
ADT and Increased Blood Sugar
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
805guy
in
Prostate Cancer And Gay Men
2 months ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
4 months ago
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