Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,241 public posts
Filter results
Seeking phycological support? How to access Leukaemia Care's Ann Ashley counselling fund
In todays difficult time there are ways to help cope with the additional psychological challenges you may be experiencing when living with a
leukaemia
diagnosis during Covid times.
In todays difficult time there are ways to help cope with the additional psychological challenges you may be experiencing when living with a
leukaemia
diagnosis during Covid times.
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
5 years ago
My AED ...
Well I took plunge and bought a heart start or AED Quite scary but the do save lives BUT with any AED purchase CPR resuscitation know how is a must as they go hand in hand. https://youtu.be/msRft-g-k_s What the say flat on back head back and chest compressions hard and fast. Quite a feet for anyone
Well I took plunge and bought a heart start or AED Quite scary but the do save lives BUT with any AED purchase CPR resuscitation know how is a must as they go hand in hand. https://youtu.be/msRft-g-k_s What the say flat on back head back and chest compressions hard and fast. Quite a feet for anyone
Hidden
in
Lung Conditions Community Forum
5 years ago
Vitamin c and fibrosis
Can anyone offer incite as to whether vitamin c promotes fibrosis via collagen development from vitamin c? It has so many other benefits in haematological parameters that I want to continue it but cautious due to forming collagen fibrosis. Someone with a technical mind may be able to decipher this VERY
Can anyone offer incite as to whether vitamin c promotes fibrosis via collagen development from vitamin c? It has so many other benefits in haematological parameters that I want to continue it but cautious due to forming collagen fibrosis. Someone with a technical mind may be able to decipher this VERY
fee13
in
MPN Voice
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Updown Blood counts
Hello Everyone, Recently i have experience updown blood counts,i had continued to drop down in blood counts after four months of phlebotomy but CBC results up and down since last 10 days Before 10 days my CBC shows HB-16.9(range-13 to 17) Hct-47(40 to 50) RBC-5.1(4.50to 5.5) MCV-93(80to100) MCH-33.70
Hello Everyone, Recently i have experience updown blood counts,i had continued to drop down in blood counts after four months of phlebotomy but CBC results up and down since last 10 days Before 10 days my CBC shows HB-16.9(range-13 to 17) Hct-47(40 to 50) RBC-5.1(4.50to 5.5) MCV-93(80to100) MCH-33.70
Vigiindia
in
MPN Voice
5 years ago
Awaiting FISH results & bone marrow biopsy
Quick recap... diagnosed here in the U.K. December 2016... no issues whatsoever for 1 1/2 years and then last August started to develop unexplained infections roughly every 6-8 weeks since then... have been neutropenic on some of these occasions.. haemoglobin and platelet counts low but stable... wbc
Quick recap... diagnosed here in the U.K. December 2016... no issues whatsoever for 1 1/2 years and then last August started to develop unexplained infections roughly every 6-8 weeks since then... have been neutropenic on some of these occasions.. haemoglobin and platelet counts low but stable... wbc
AR0613
in
CLL Support
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
Free patient and carer conferences - more info enclosed
Hi all,
Leukaemia
Care have released their information on patient and carer information days for 2019/20.
Hi all,
Leukaemia
Care have released their information on patient and carer information days for 2019/20.
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
5 years ago
Ideas for supporting dad in his last days
It's transformed in the past couple of weeks to an acute
leukaemia
and yesterday his consultant told us there's nothing more that can be done for him. He's at home. He spends 98% of his time sleeping.
It's transformed in the past couple of weeks to an acute
leukaemia
and yesterday his consultant told us there's nothing more that can be done for him. He's at home. He spends 98% of his time sleeping.
Sebnose
in
Leukaemia CARE
5 years ago
Nana
I was diagnosed with cll just before Christmas in 2018. Needless to say I was absolutely floored as I did not even feel sick. I was referred to Dr. Ahmed Galal at the Duke Cancer Center. The day I walked into his office the Grimm reaper was riding on my back. This wonderful man looked at me and said
I was diagnosed with cll just before Christmas in 2018. Needless to say I was absolutely floored as I did not even feel sick. I was referred to Dr. Ahmed Galal at the Duke Cancer Center. The day I walked into his office the Grimm reaper was riding on my back. This wonderful man looked at me and said
Hidden
in
CLL Support
5 years ago
CLL night sweats
Having horrible night sweats...have 3 fans going..on watch and wait..highest WBC 50,000..any relief for this?
Having horrible night sweats...have 3 fans going..on watch and wait..highest WBC 50,000..any relief for this?
truff4507
in
CLL Support
5 years ago
Good News
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
dandelup
in
CLL Support
5 years ago
sinus infection and nose bleeds.
Hi everyone,I live in the UK and have no support whatsoever for my CLL,the DR at the hospital took bloods and just said "oh yes you have
Leukaemia
"that's it,I have apparently had it now for over 10 years this is after years of complaining of exhaustion.I am on Watch and Wait and have 3 monthly blood
Hi everyone,I live in the UK and have no support whatsoever for my CLL,the DR at the hospital took bloods and just said "oh yes you have
Leukaemia
"that's it,I have apparently had it now for over 10 years this is after years of complaining of exhaustion.I am on Watch and Wait and have 3 monthly blood
maggiewillow
in
CLL Support
5 years ago
AXSL MUTATION
Hi Folks, I keep up to speed with the Forum, I don't often post, when I do, I have always had kind informative replies... I joined you folk last year in March, after ET Diagnosis.. Little did I know by May 18th, I would be diagnosed with MF Intermediate 1. After BMB which I'm so glad I had it, at least
Hi Folks, I keep up to speed with the Forum, I don't often post, when I do, I have always had kind informative replies... I joined you folk last year in March, after ET Diagnosis.. Little did I know by May 18th, I would be diagnosed with MF Intermediate 1. After BMB which I'm so glad I had it, at least
pontygirl
in
MPN Voice
5 years ago
Update
Hi All, Thought it was about time I wrote with an update. Last year I wrote a few posts about my first transplant (MUD) to treat myelofibrosis. It failed to engraft so attempted a second transplant (HAPLO). Pleased to report that on Day 120 I am feeling good in myself and relatively healthy despite having
Hi All, Thought it was about time I wrote with an update. Last year I wrote a few posts about my first transplant (MUD) to treat myelofibrosis. It failed to engraft so attempted a second transplant (HAPLO). Pleased to report that on Day 120 I am feeling good in myself and relatively healthy despite having
Simon96
in
MPN Voice
5 years ago
Another possible MF ‘cure’ but very early stage....
https://www.apnews.com/Business%20Wire/569c6623ad784538ba40be42a99f087a “This clinical trial will evaluate the ability of AVID200 to achieve the disease-modifying outcomes of reversing bone marrow fibrosis and restoring normal hematopoiesis. Preclinical data demonstrate that selective neutralization
https://www.apnews.com/Business%20Wire/569c6623ad784538ba40be42a99f087a “This clinical trial will evaluate the ability of AVID200 to achieve the disease-modifying outcomes of reversing bone marrow fibrosis and restoring normal hematopoiesis. Preclinical data demonstrate that selective neutralization
Paul123456
in
MPN Voice
5 years ago
Haemo appointment
Haematology appointment this morning 🤔 first one since I stopped all the HU and Ruxolitinib. Interesting to see what my bloods are today. My platelets had previously come down to 540 so time will tell........ I get so nervous on appointment days - like a cat on a hot tin roof
Haematology appointment this morning 🤔 first one since I stopped all the HU and Ruxolitinib. Interesting to see what my bloods are today. My platelets had previously come down to 540 so time will tell........ I get so nervous on appointment days - like a cat on a hot tin roof
Graham7694
in
MPN Voice
5 years ago
Low RDW-CV
Hi everyone! Got my CBC result yesterday with the following results: WBC Count- 8400 RBC Count- 3.91 Hemoglobin- 13.4 Hematocrit- 40.3 Platelet Count- H 469000 MCV- H 103.0 MCH- H 34.3 MCHC- 33.2 RDW-CV- L 10.7 Neutrophils- 51.4 Lymphocytes- 39.7 Monocytes- 7.3 Eosinophils- L 1.6 Basophils- 0.0 I'm disturbed
Hi everyone! Got my CBC result yesterday with the following results: WBC Count- 8400 RBC Count- 3.91 Hemoglobin- 13.4 Hematocrit- 40.3 Platelet Count- H 469000 MCV- H 103.0 MCH- H 34.3 MCHC- 33.2 RDW-CV- L 10.7 Neutrophils- 51.4 Lymphocytes- 39.7 Monocytes- 7.3 Eosinophils- L 1.6 Basophils- 0.0 I'm disturbed
Yona
in
MPN Voice
5 years ago
Spring 2019 edition of Leukaemia Matters magazine is now available
Features: Blood cancer and women’s issues Inspiring patient's stories Patient Services News Take Your 'Spot
Leukaemia
' Challenge GP training Campaigns Corner Exercise strategies OBE awarded to inspirational volunteer Clinical Trials:
Leukaemia
study updates You can download the magazine here http:/
Features: Blood cancer and women’s issues Inspiring patient's stories Patient Services News Take Your 'Spot
Leukaemia
' Challenge GP training Campaigns Corner Exercise strategies OBE awarded to inspirational volunteer Clinical Trials:
Leukaemia
study updates You can download the magazine here http:/
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
What does a normal karyotype means in ET?
I have my BMB results and my heamatologist told me that i have normal karyotype, and no fibrosis. I have mild ET and she didnt mentioned anything about mutations. All this was short conversation from the telephone,just to let me know the results,cause she knew i was very stressed about it. I will meet
I have my BMB results and my heamatologist told me that i have normal karyotype, and no fibrosis. I have mild ET and she didnt mentioned anything about mutations. All this was short conversation from the telephone,just to let me know the results,cause she knew i was very stressed about it. I will meet
Aneliv9
in
MPN Voice
5 years ago
Latest podcast - Mythbusting!
The LC team were joined by two patients, Kris and Kate, to discuss various
leukaemia
myths that swirl around the depths of the internet. You can find it on all good podcast providers by searching Bloodstream
Leukaemia
Care.
The LC team were joined by two patients, Kris and Kate, to discuss various
leukaemia
myths that swirl around the depths of the internet. You can find it on all good podcast providers by searching Bloodstream
Leukaemia
Care.
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
5 years ago
1
...
80
81
82
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1788 results
MPN Voice
814 results
Leukaemia CARE
268 results
View top 10 communities
Sort by
Most Relevant
Newest