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Managing Side Effects and More
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
cllady01
Volunteer
in
CLL Support
4 years ago
CLL AND BRONCHIECTASIS
I was diagnosed with Chronic Lymphocytic
Leukaemia
in 2010 and have been with the CLLSA group here on HU for 6-7 years. Earlier this year, I was diagnosed with Bronchiectasis after a high resolution CT scan. I hope to find some info on trials and alternative treatments.
I was diagnosed with Chronic Lymphocytic
Leukaemia
in 2010 and have been with the CLLSA group here on HU for 6-7 years. Earlier this year, I was diagnosed with Bronchiectasis after a high resolution CT scan. I hope to find some info on trials and alternative treatments.
Mikey47
in
Bronchiectasis Support
4 years ago
Survey for CLL patients having taken Venetoclax or Acalabrutinib
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
cllpag_canada
in
CLL Support
4 years ago
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ASH 2019 CLL highlights and 'hot' topics - Drs Nicole Lamanna & Florence Cymbalista
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Life with ET
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
MJL1977
in
MPN Voice
4 years ago
Blood tests high platelets
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
Irishgal12
in
MPN Voice
4 years ago
Short or long sleep associated with Pulmonary Fibrosis.
,the same number as
leukaemia
.
,the same number as
leukaemia
.
2greys
in
Lung Conditions Community Forum
4 years ago
Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
4 years ago
the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
socrates_8
in
MPN Voice
4 years ago
Losing weight with Viagra.
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
Johnem
in
Lung Conditions Community Forum
4 years ago
Trabectedin Targets Leukemic Cells and Restores Immune Cell Function in Models of Chronic Lymphocytic Leukemia
The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor
The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor
wmay13241
in
CLL Support
4 years ago
Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia
Leukaemia
Care is a UK charity so the support information is UK based.
Leukaemia
Care is a UK charity so the support information is UK based.
Jm954
Administrator
in
CLL Support
4 years ago
Negative for CLL and lymphoma panel
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Jenny2020
in
CLL Support
4 years ago
MF and mutations
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
billybrock
in
MPN Voice
4 years ago
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
4 years ago
A nervous wreck.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
Adnor
in
CLL Support
4 years ago
2018 study explains why Green Tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) work against CLL
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
HowardR
in
CLL Support
4 years ago
Bone Pain
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
kiwitraveller
in
MPN Voice
4 years ago
Jak 2positive MPN treatment Ruxolitinib
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
waddles22
in
MPN Voice
4 years ago
Scared !!!
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Madison1995
in
CLL Support
4 years ago
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