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Chlorambucil
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
JanChas
in
CLL Support
4 years ago
Organic apple cider vinegar "unpasteurized and unfiltered" ?
I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small
I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small
janvog
in
CLL Support
4 years ago
Leukemia diagnosis
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
Mariacat01
in
CLL Support
4 years ago
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Antibody test
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
PerfectPurple
in
CLL Support
4 years ago
Any one know ......
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
stewie
in
CLL Support
4 years ago
Thalassemia beta trait and elevated platelets
I was referred to a haematologist last year as the blood test results from my annual health screen came back with some abnormal results. I have thalassemia trait so my blood results are never normal but my GP noted that my platelets were elevated at 489. I looked back at some older blood tests and
I was referred to a haematologist last year as the blood test results from my annual health screen came back with some abnormal results. I have thalassemia trait so my blood results are never normal but my GP noted that my platelets were elevated at 489. I looked back at some older blood tests and
nutter1234
in
MPN Voice
4 years ago
3 x Articles from 'The Conversation'
[u]
Coronavirus might become endemic – here’s how.
[/u] Endemic viruses are those that have constant presence within a geographical area. Such viruses are all around us, though they vary by location. Examples in Europe and North America include the rhinovirus (a cause of the common cold) and influenza
[u]
Coronavirus might become endemic – here’s how.
[/u] Endemic viruses are those that have constant presence within a geographical area. Such viruses are all around us, though they vary by location. Examples in Europe and North America include the rhinovirus (a cause of the common cold) and influenza
2greys
in
Lung Conditions Community Forum
4 years ago
Hello from CT
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
controlsct
in
CLL Support
4 years ago
Newly diagnosed with myelofibrosis
Hallo. I am newly diagnosed with myelofibrosis. I was called to be told a week ago. I’ve been in and out of shock since and now so frightened I can’t sleep. I have no information, and have been googling prognoses and crying constantly. I don’t know what I’m dealing with at all. Will I be around to see
Hallo. I am newly diagnosed with myelofibrosis. I was called to be told a week ago. I’ve been in and out of shock since and now so frightened I can’t sleep. I have no information, and have been googling prognoses and crying constantly. I don’t know what I’m dealing with at all. Will I be around to see
LuluCosson
in
MPN Voice
4 years ago
Webinar - 6pm Tuesday 15th December - "Accessing your GP"
Dear friends please join us for this free webinar
Leukaemia
Care and Lymphoma Action are hosting this webinar to bring GPs and those affected by blood cancers together to share perspectives of how to make best use of Primary Care services during the current pandemic.
Dear friends please join us for this free webinar
Leukaemia
Care and Lymphoma Action are hosting this webinar to bring GPs and those affected by blood cancers together to share perspectives of how to make best use of Primary Care services during the current pandemic.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Top-speed antibody development.
The development of biopharmaceuticals is a long and expensive process. A decade or more can elapse between the discovery of a new protein-based active ingredient and the release of a new drug. One major hurdle on this journey is the passage from the lab to clinical trials. As a rule, it takes between
The development of biopharmaceuticals is a long and expensive process. A decade or more can elapse between the discovery of a new protein-based active ingredient and the release of a new drug. One major hurdle on this journey is the passage from the lab to clinical trials. As a rule, it takes between
2greys
in
Lung Conditions Community Forum
4 years ago
Should I push harder for tests to rule out essential thrombocythemia?
I have a complex medical history, mixed connective tissue disease, RA, eosiniophilc esophagitis, hypopituitarism, adrenal insufficiency, exercise anaphylaxis, a bunch of things that are unrelated, some serious, some annoyances. I have extremely high bone density, so have degenerative spinal disease
I have a complex medical history, mixed connective tissue disease, RA, eosiniophilc esophagitis, hypopituitarism, adrenal insufficiency, exercise anaphylaxis, a bunch of things that are unrelated, some serious, some annoyances. I have extremely high bone density, so have degenerative spinal disease
lilyak
in
MPN Voice
4 years ago
Richter's Transformation
Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated with about 6 treatments one after the other(Sorry chemo brain keeps me from remembering all of them!) Was on Venetolclax in 2018. Diagnosed with
Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated with about 6 treatments one after the other(Sorry chemo brain keeps me from remembering all of them!) Was on Venetolclax in 2018. Diagnosed with
Feisal
in
CLL Support
4 years ago
Interferon therapy in the management of myeloproliferative neoplasms
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Manouche
in
MPN Voice
4 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
4 years ago
Webinar - 3.30pm 4th Feb - COVID-19 ‘shielding’ update, coping and support.
This webinar will explore the effect of shielding long term and managing the impact on blood cancer patients. The webinar seeks to provide coping strategies to support patients and their loved ones to manage the emotional and psychological burden you may be experiencing.
We will be joined by:[/b
This webinar will explore the effect of shielding long term and managing the impact on blood cancer patients. The webinar seeks to provide coping strategies to support patients and their loved ones to manage the emotional and psychological burden you may be experiencing.
We will be joined by:[/b
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
NEW trial now opened by Birmingham University CLL specialists in UK to measure your response as CLL patients following vaccination
Covid-19 vaccine study for patients with Chronic Lymphocytic
(CLL) •This is a new study looking at the immune response to COVID19 vaccination amongst patients with CLL. •There are now several COVID-19 vaccines available in the UK.
Covid-19 vaccine study for patients with Chronic Lymphocytic
(CLL) •This is a new study looking at the immune response to COVID19 vaccination amongst patients with CLL. •There are now several COVID-19 vaccines available in the UK.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
LLS information booklets
The
Leukaemia
and Lymphoma Society have just published updates to their range of information booklets. They are geared around the USA healthcare systems and if you're in the USA you can order them or anyone can, anywhere can download them. The information on various topics is true for everywhere.
The
Leukaemia
and Lymphoma Society have just published updates to their range of information booklets. They are geared around the USA healthcare systems and if you're in the USA you can order them or anyone can, anywhere can download them. The information on various topics is true for everywhere.
Jm954
Administrator
in
CLL Support
4 years ago
Update on my ABCDE minus L diet for fighting CLL
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
HowardR
in
CLL Support
4 years ago
Shingles and essential thrombocythemia
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
BeckyG88
in
MPN Voice
4 years ago
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