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Leflunomide
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Other peoples experience of Leflunomide please?
I started
leflunomide
14 weeks ago and my RA seems to be increasing with many more joints being involved. It feels like one long flare ,my quality of life is very poor, pain ,fatigue and limited mobility.
I started
leflunomide
14 weeks ago and my RA seems to be increasing with many more joints being involved. It feels like one long flare ,my quality of life is very poor, pain ,fatigue and limited mobility.
meadow-mogs
in
NRAS
2 years ago
Elevated markers without symptoms
Rheumy wants me to up my pred and maybe switch from my current drug (
leflunomide
) to something else. I know it's not uncommon to have symptoms without elevated markers. How about the opposite?
Rheumy wants me to up my pred and maybe switch from my current drug (
leflunomide
) to something else. I know it's not uncommon to have symptoms without elevated markers. How about the opposite?
winfong
in
PMRGCAuk
2 years ago
Peculiar electrical experience
My Rheumy put me onto
Leflunomide
instead of Prednisolone a few years ago. During Lock-down I had a sudden recurrence of PMR symptoms but couldn't obtain help from my Rheumy. Then the symptoms started to disappear and a most peculiar thing happened.
My Rheumy put me onto
Leflunomide
instead of Prednisolone a few years ago. During Lock-down I had a sudden recurrence of PMR symptoms but couldn't obtain help from my Rheumy. Then the symptoms started to disappear and a most peculiar thing happened.
43tripandskip
in
PMRGCAuk
2 years ago
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Leflunomide concern
Anyone taking
Leflunomide
and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and Rheumatologist. Started this drug Sept 25 so been about 6+ weeks. Not liking this at all. Thanks in advance for any feedback.
Anyone taking
Leflunomide
and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and Rheumatologist. Started this drug Sept 25 so been about 6+ weeks. Not liking this at all. Thanks in advance for any feedback.
Alebeau
in
PMRGCAuk
2 years ago
Leflunomide and palpitations
I’m wondering if anyone has experienced heart palpitations while taking
Leflunomide
? I’ve been on the drug for about three months and now feel my heart skipping beats pretty regularly. It’s kind of scary. Thanks.
I’m wondering if anyone has experienced heart palpitations while taking
Leflunomide
? I’ve been on the drug for about three months and now feel my heart skipping beats pretty regularly. It’s kind of scary. Thanks.
Windonmyface
in
NRAS
2 years ago
Take Leflunomide and Pred after Booster vacc?
I'm about to start
Leflunomide
together with a course of prednisone tablets, but I had my booster vacc last Tuesday. Should I start my meds, or wait a while longer? - I don't want to spoil the immune response of the booster vaccine.. thank you all
I'm about to start
Leflunomide
together with a course of prednisone tablets, but I had my booster vacc last Tuesday. Should I start my meds, or wait a while longer? - I don't want to spoil the immune response of the booster vaccine.. thank you all
jimmx
in
NRAS
2 years ago
Anyone on upadacitinib?
Being put on this due to being in hospital for so long with a flare up and pneumonia, was originally on
leflunomide
but things went slightly wrong even though it worked fine. If anyone's on upadacitinib I'd love to know your views and if any side effects have occurred for you, thank you. ❤️
Being put on this due to being in hospital for so long with a flare up and pneumonia, was originally on
leflunomide
but things went slightly wrong even though it worked fine. If anyone's on upadacitinib I'd love to know your views and if any side effects have occurred for you, thank you. ❤️
Claireb1985
in
NRAS
2 years ago
Covid Vaccine information Via JCVI
Methotrexate, Mycophenolate, Azathioprine, Ciclosporin,
Leflunomide
, Tacrolimus. Patients on Steroids-10mg or more of Prednisolone for over a month. I have tried to get the spellings right and hope this is useful.
Methotrexate, Mycophenolate, Azathioprine, Ciclosporin,
Leflunomide
, Tacrolimus. Patients on Steroids-10mg or more of Prednisolone for over a month. I have tried to get the spellings right and hope this is useful.
AncientMariner
in
PMRGCAuk
2 years ago
Steroid sparer
Am seeing him this week and will see if he will let me stop taking
Leflunomide
, once I really know what it is meant to prevent. Any suggestions?
Am seeing him this week and will see if he will let me stop taking
Leflunomide
, once I really know what it is meant to prevent. Any suggestions?
Maryis80
in
PMRGCAuk
3 years ago
Seronegative Rheumatoid Arthritis
Over this year I have tried: Methotrexate
leflunomide
Sulfasalazine All meds have not agreed with my body and pushed my Serum alt blood levels to an unhealthy level.
Over this year I have tried: Methotrexate
leflunomide
Sulfasalazine All meds have not agreed with my body and pushed my Serum alt blood levels to an unhealthy level.
Hidden
in
NRAS
2 years ago
Asymptomatic Aortitis-second axillary ultrasound scan
(Currently taking 2mg/1mg/1mg Pred on 3 day cycle and 10mg
Leflunomide
daily.)
(Currently taking 2mg/1mg/1mg Pred on 3 day cycle and 10mg
Leflunomide
daily.)
123-go
in
Vasculitis UK
3 years ago
body confidence
ball and not let anyone look at me ever again. i feel so sorry for my boyfriend because i’m too insecure to be intimate anymore. i feel so huge and disgusting. he loves me for who i am and no matter what size i am but it’s hard because whenever i look in the mirror i want to be sick. i’ve been offered
leflunomide
ball and not let anyone look at me ever again. i feel so sorry for my boyfriend because i’m too insecure to be intimate anymore. i feel so huge and disgusting. he loves me for who i am and no matter what size i am but it’s hard because whenever i look in the mirror i want to be sick. i’ve been offered
leflunomide
oliviagodfreyxx
in
NRAS
2 years ago
Change in drug
I’m delighted I won’t have to pop 4 sulphasalazine every day but looking at the info on
leflunomide
it looks quite daunting?
I’m delighted I won’t have to pop 4 sulphasalazine every day but looking at the info on
leflunomide
it looks quite daunting?
Piglet007
in
NRAS
3 years ago
Foot and ankle pain
I was doing well on
Leflunomide
but have just started with toe and ankle pain. I noticed my middle toe has become malformed, looks like the bone has grown wider on the joint and is painful & hard. I can feel pain in my toes & ankles at night, what on earth is going on?
I was doing well on
Leflunomide
but have just started with toe and ankle pain. I noticed my middle toe has become malformed, looks like the bone has grown wider on the joint and is painful & hard. I can feel pain in my toes & ankles at night, what on earth is going on?
Sunnyseas
in
NRAS
3 years ago
First time using metoject tonight.
When I googled (I know :)) some of the symptoms of b12 deficiency were feeling sick, giddy & confused, I've had all of these including finding it difficult to put a sentence together and struggling for words, and just put it down to the other meds (MTX,
Leflunomide
, Hydroxy, Etoricoxib, Gabapentin)
When I googled (I know :)) some of the symptoms of b12 deficiency were feeling sick, giddy & confused, I've had all of these including finding it difficult to put a sentence together and struggling for words, and just put it down to the other meds (MTX,
Leflunomide
, Hydroxy, Etoricoxib, Gabapentin)
Garnacha
in
NRAS
3 years ago
Leflunomide - what side effects please?
Is anyone able to give me some advice about
Leflunomide
please which I have been offered today to assist with lowering Pred currently 12.5/10 on alternate days for GCA.
Is anyone able to give me some advice about
Leflunomide
please which I have been offered today to assist with lowering Pred currently 12.5/10 on alternate days for GCA.
HappyDiamonds
in
PMRGCAuk
3 years ago
Thank you ❤️
Thank you everyone for your help, called 111 and had an ambulance out to check me over, apparently due to doctors telling me to stop my
leflunomide
it made me more susceptible to infections and so I had a flare up which has been the worst one I've ever had.
Thank you everyone for your help, called 111 and had an ambulance out to check me over, apparently due to doctors telling me to stop my
leflunomide
it made me more susceptible to infections and so I had a flare up which has been the worst one I've ever had.
Claireb1985
in
NRAS
3 years ago
Anyone on Truxima infusions ?
I'm taking daily
Leflunomide
and Ibuprofen to relieve some of the pain and keep me going . I was on Benepali injections but that became less effective over the couple of years that I was on it. Would be good to hear of other people's experiences of this drug. Thanks all. Much appreciated.☺️ x
I'm taking daily
Leflunomide
and Ibuprofen to relieve some of the pain and keep me going . I was on Benepali injections but that became less effective over the couple of years that I was on it. Would be good to hear of other people's experiences of this drug. Thanks all. Much appreciated.☺️ x
s2202
in
NRAS
3 years ago
I'm new here and I'm losing hair due to Leflunomide
How long will my hair continue to fall out after stopping
Leflunomide
?
How long will my hair continue to fall out after stopping
Leflunomide
?
SLP4kids
in
NRAS
3 years ago
CAN'T WAIT TO ACTUALLY SEE THE NHS RHEUMATOLOGY CLINIC!
Today I asked the receptionist for a copy of my last test results as I think the consultant will want to see them due to the liver function result, especially as there's an increase in
leflunomide
, at first she couldn't find any blood tests for me, then said we haven't had the results back yet, YES you
Today I asked the receptionist for a copy of my last test results as I think the consultant will want to see them due to the liver function result, especially as there's an increase in
leflunomide
, at first she couldn't find any blood tests for me, then said we haven't had the results back yet, YES you
Garnacha
in
NRAS
3 years ago
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