Search
Search
About
Log in
Join
Experiences with
Leflunomide
Posts
Communities
1,076 public posts
Filter results
Leflunomide and peripheral neuropathy
I would like to know if it's reversible (Rheumi has agreed to me stopping
leflunomide
for 6 weeks for other reasons), and if not, whether anything can be done to restore normal function. Any ideas?
I would like to know if it's reversible (Rheumi has agreed to me stopping
leflunomide
for 6 weeks for other reasons), and if not, whether anything can be done to restore normal function. Any ideas?
Steal
in
PMRGCAuk
1 year ago
change to leflunomide
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
gco34
in
Vasculitis UK
1 year ago
Leflunomide
Does anybody take this. It is a possibility as I did not get on with methotrexate. Your thoughts would be appreciated. Thank you.
Does anybody take this. It is a possibility as I did not get on with methotrexate. Your thoughts would be appreciated. Thank you.
RachelJDH
in
PMRGCAuk
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
HUMIRA
I've taken mtx,
leflunomide
and sulfasalzine for my RA, but none of them has worked for me. I've experienced mild side effects from all of them, excepting 20 mg of mtx which gave me bruises all over my legs (was put off it 2 months later). I am a bit nervous Humira's side effects.
I've taken mtx,
leflunomide
and sulfasalzine for my RA, but none of them has worked for me. I've experienced mild side effects from all of them, excepting 20 mg of mtx which gave me bruises all over my legs (was put off it 2 months later). I am a bit nervous Humira's side effects.
cosana
in
NRAS
1 year ago
Shingrix vaccine for immunosuppressed people aged 50+
/day) in the previous 3 months ●
certain combination therapies at individual doses lower than stated above, including those on ≥7.5mg prednisolone per day in combination with other immunosuppressants (other than hydroxychloroquine or sulfasalazine) and those receiving methotrexate (any dose) with
/day) in the previous 3 months ●
certain combination therapies at individual doses lower than stated above, including those on ≥7.5mg prednisolone per day in combination with other immunosuppressants (other than hydroxychloroquine or sulfasalazine) and those receiving methotrexate (any dose) with
Sharitone
in
PMRGCAuk
11 months ago
Norovirus and RA
I’ve not taken or kept down any of my meds but I think it will still be in my system (
leflunomide
and hydroxychloroquine) Any tips on dealing with this much appreciated
I’ve not taken or kept down any of my meds but I think it will still be in my system (
leflunomide
and hydroxychloroquine) Any tips on dealing with this much appreciated
Kati66
in
NRAS
8 months ago
Reprise for Leflunomide
I am trying
leflunomide
again after a gap of about 9 years and lots of cancer treatment in between. Last time I got pulled off it by an officious CNS because of my spiky blood pressure. So this time I am ready for that but hoping that it will be otherwise side effect free…as before.
I am trying
leflunomide
again after a gap of about 9 years and lots of cancer treatment in between. Last time I got pulled off it by an officious CNS because of my spiky blood pressure. So this time I am ready for that but hoping that it will be otherwise side effect free…as before.
Lyndy
in
NRAS
1 year ago
mtx & leflunomide verses mtx and hydroxy
Hi one of my nurses has said I could try
leflunomide
instead of hydroxychloroquine. I wondered if many people are using
leflunomide
and if it was any good, better or worse than hydroxychloroquine ?
Hi one of my nurses has said I could try
leflunomide
instead of hydroxychloroquine. I wondered if many people are using
leflunomide
and if it was any good, better or worse than hydroxychloroquine ?
lindyloo2018
in
NRAS
1 year ago
Rheumy helpline not replied to me 😢
They mentioned about adding in hydrocloquorine or
leflunomide
and said to ring up but still haven't heard anything. Think I'll just have to ring again. On top of all this, I've got several cysts on my scalp and one keeps getting infected.
They mentioned about adding in hydrocloquorine or
leflunomide
and said to ring up but still haven't heard anything. Think I'll just have to ring again. On top of all this, I've got several cysts on my scalp and one keeps getting infected.
Natbat87
in
NRAS
1 year ago
Fragility score on Osteoscan and different meds.
I have been on
Leflunomide
for two months now. Tapering 1 mg month down to 13, no flare as yet. This is my letter re the scan. “It was a pleasure to see you today and to be able to offer a further REMS evaluation of your right hip and spine.
I have been on
Leflunomide
for two months now. Tapering 1 mg month down to 13, no flare as yet. This is my letter re the scan. “It was a pleasure to see you today and to be able to offer a further REMS evaluation of your right hip and spine.
Nightingales
in
PMRGCAuk
1 year ago
Neutrophils Crash
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg
Leflunomide
was added and since then I’ve had several issues.
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg
Leflunomide
was added and since then I’ve had several issues.
Fiona0664
in
NRAS
1 year ago
Leflunomide and Shingrix vaccine (non live shingles vaccine)
Hello, Has anyone on
Leflunomide
(Arava) had the shingrix vaccine and if so, did they have to stop the
leflunomide
at all before and after? Interested to hear how many different bits of advice are out there from Rheumatologists.
Hello, Has anyone on
Leflunomide
(Arava) had the shingrix vaccine and if so, did they have to stop the
leflunomide
at all before and after? Interested to hear how many different bits of advice are out there from Rheumatologists.
Wannabeabago
in
NRAS
1 year ago
Leflunomide question
I have been on
Leflunomide
for over a month. No really issues. Then all the sudden when I eat I cramp in my torso like a food allergy and get the chills. Antihistamines don’t help. Probiotics either. Has anyone come across this.? Wonder why it would start now.?
I have been on
Leflunomide
for over a month. No really issues. Then all the sudden when I eat I cramp in my torso like a food allergy and get the chills. Antihistamines don’t help. Probiotics either. Has anyone come across this.? Wonder why it would start now.?
Nana-8
in
NRAS
1 year ago
Can't taper
2 and half yrs , it's a real nuisance every time I taper I end up back at 15mg as its the only dose that works my last taper got me down to 13mg for a month then really bad flare now back at 15mg for the last 2 weeks and feeling a bit better again been off work again rheumatologist wants me to try
leflunomide
2 and half yrs , it's a real nuisance every time I taper I end up back at 15mg as its the only dose that works my last taper got me down to 13mg for a month then really bad flare now back at 15mg for the last 2 weeks and feeling a bit better again been off work again rheumatologist wants me to try
leflunomide
Marko666
in
PMRGCAuk
1 year ago
What next?
So after trying MTX tablets, MTX Injections,
Leflunomide
and now sulfasalazine, that's either made me very poorly with side affects or with sulfasalazine not working, what's next? Going to call Rheumy nurse tomorrow. Totally fed up.
So after trying MTX tablets, MTX Injections,
Leflunomide
and now sulfasalazine, that's either made me very poorly with side affects or with sulfasalazine not working, what's next? Going to call Rheumy nurse tomorrow. Totally fed up.
Haz58
in
NRAS
1 year ago
Link between dry eyes and throat and PMRGCA? Any ideas?
• I have been prescribed methotrexate and then when that had extreme side-affects (coughing from deep in the chest through the night) I was prescribed
leflunomide
which compromised my liver.
• I have been prescribed methotrexate and then when that had extreme side-affects (coughing from deep in the chest through the night) I was prescribed
leflunomide
which compromised my liver.
allofaquandry
in
PMRGCAuk
1 year ago
Leflunomide
About to start
Leflunomide
for RA, not really looking forward to it, I must admit. Can anyone help with their experience of side effects please 😫 also benefits x
About to start
Leflunomide
for RA, not really looking forward to it, I must admit. Can anyone help with their experience of side effects please 😫 also benefits x
Djohnston1971
in
NRAS
1 year ago
Injections
Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on
leflunomide
,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on
leflunomide
,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Flosy
in
PMRGCAuk
1 year ago
In a quandary!
I’m so reluctant to change meds, as I’ve been doing so well on the
leflunomide
, however I find the situation with my nails more distressing that anything these autoimmune problems give us.
I’m so reluctant to change meds, as I’ve been doing so well on the
leflunomide
, however I find the situation with my nails more distressing that anything these autoimmune problems give us.
Lizzery
in
PMRGCAuk
1 year ago
Leflunomide or Tocilizumab
Will there be a benefit in swapping
leflunomide
for Tocilizumab? Any advice very welcome. A discussion with the rheumatologist indicated that she was not a fan of Health unlocked and that I should follow her instructions to the letter!
Will there be a benefit in swapping
leflunomide
for Tocilizumab? Any advice very welcome. A discussion with the rheumatologist indicated that she was not a fan of Health unlocked and that I should follow her instructions to the letter!
Talyfan
in
PMRGCAuk
1 year ago
1
...
4
5
6
...
54
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
NRAS
722 results
PMRGCAuk
230 results
Cure Arthritis Community
27 results
View top 10 communities
Sort by
Most Relevant
Newest