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Any young adults with kidney transplant?
Would like to exchange experience and how did you cope/adjust with life
Would like to exchange experience and how did you cope/adjust with life
vision22
in
Kidney Transplant
2 years ago
Liver Transplant consent letter & liver types
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
Rshc
in
British Liver Trust
2 years ago
creatinine increase 3 months after Lynparza
Psa went from 20 to 2-- creatinine went from 1.8 to 2.2 no obstruction or infection found I'm hoping this due to the know factitious increase in creatinine on lab testing without renal harm- Opinions welcome please. What lab test is available to confirm? Thank you
Psa went from 20 to 2-- creatinine went from 1.8 to 2.2 no obstruction or infection found I'm hoping this due to the know factitious increase in creatinine on lab testing without renal harm- Opinions welcome please. What lab test is available to confirm? Thank you
nuc1111
in
Advanced Prostate Cancer
2 years ago
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European Commission OKs Lupkynis for Active Lupus Nephritis
European Commission OKs Lupkynis for Active Lupus Nephritis The oral therapy was approved in the US in 2021 by Marisa Wexler, MS | September 22, 2022 The European Commission has approved Lupkynis (voclosporin) to treat active lupus nephritis, a serious complication of systemic lupus erythematosus
European Commission OKs Lupkynis for Active Lupus Nephritis The oral therapy was approved in the US in 2021 by Marisa Wexler, MS | September 22, 2022 The European Commission has approved Lupkynis (voclosporin) to treat active lupus nephritis, a serious complication of systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Itolizumab Shows Promise For Lupus Nephritis Patients in Early Trial Data
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis
by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis
by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Gallbladder issues
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
Ziggydoodah
in
Kidney Disease
2 years ago
shower shields
has anyone had any success in finding shower shields? i’ve been making my own out of saran wrap and a sandwich bag but lately it’s not working and my dressing is getting wet i just can’t afford $99 on amazon for a 12 pack if anyone can send me a link or let me know how you shower without getting
has anyone had any success in finding shower shields? i’ve been making my own out of saran wrap and a sandwich bag but lately it’s not working and my dressing is getting wet i just can’t afford $99 on amazon for a 12 pack if anyone can send me a link or let me know how you shower without getting
renalrose
in
Kidney Dialysis
2 years ago
Food plan for transplant woman weight 80
Hi, One year
kidney
transplant
. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year
kidney
transplant
. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
Prostate Cancer Treatment & Kidney Stones
Anyone here experience a resurgance of kidney stones during cancer treatment? If so, what were your experiences and do you feel your cancer care team responded well?
Anyone here experience a resurgance of kidney stones during cancer treatment? If so, what were your experiences and do you feel your cancer care team responded well?
gleason9guy
in
Advanced Prostate Cancer
2 years ago
Long time on wait list
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Talpa120
in
British Liver Trust
2 years ago
Endo and duplex kidney?
Hi, My gyne has agreed to do a hysterectomy but wanted me to have a scan so he could see what was occurring since my last lap a year ago. He said along with the endo, I have hydrosalpinx and that my womb is blobby and swollen. The pictures he showed me just looked weird and lumpy. During my scan
Hi, My gyne has agreed to do a hysterectomy but wanted me to have a scan so he could see what was occurring since my last lap a year ago. He said along with the endo, I have hydrosalpinx and that my womb is blobby and swollen. The pictures he showed me just looked weird and lumpy. During my scan
roobiedoobie
in
Endometriosis UK
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National
Kidney
Foundation on some episodes of
Kidney
Transplant
Conversations, it's a podcast that is available on all the leading platforms.
Hi everyone, I've been working with the National
Kidney
Foundation on some episodes of
Kidney
Transplant
Conversations, it's a podcast that is available on all the leading platforms.
bethedifference
in
Kidney Transplant
2 years ago
Silodosin, Frequent Urination and PCa
I'm going to talk to a urologist about adding Silodosin to the myriad of drugs and supplements I take. My main issue is having to get up 4-5 times a night to pee. The primary use of this drug (like flomax) is for enlarged prostrate. My prostrate is not enlarged but, from what I read, this drug is
I'm going to talk to a urologist about adding Silodosin to the myriad of drugs and supplements I take. My main issue is having to get up 4-5 times a night to pee. The primary use of this drug (like flomax) is for enlarged prostrate. My prostrate is not enlarged but, from what I read, this drug is
Rolphs
in
Advanced Prostate Cancer
2 years ago
MPR flare-up or Aclasta reaction?
Went off prednisone early in July 2022. Was fine till 10 days ago. Started with pain in my legs and with 5 days spread through my whole body - same as I had when I was diagnosed with PMR in March 2020. Because of a low bone density scan the specialist physician recommended Aclasta infusion that was done
Went off prednisone early in July 2022. Was fine till 10 days ago. Started with pain in my legs and with 5 days spread through my whole body - same as I had when I was diagnosed with PMR in March 2020. Because of a low bone density scan the specialist physician recommended Aclasta infusion that was done
DeWet
in
PMRGCAuk
2 years ago
2 or 3 x’s per week - any benefit to more/fewer
Hello everybody! I have really been learning a lot and appreciating s the warm, generous, and kind people and sharing of information, experiences, tips, suggestions, etc. from this community. Thank you very much. I am fairly new and I have been pretty quickly switched from 3 to 2 times per week. However
Hello everybody! I have really been learning a lot and appreciating s the warm, generous, and kind people and sharing of information, experiences, tips, suggestions, etc. from this community. Thank you very much. I am fairly new and I have been pretty quickly switched from 3 to 2 times per week. However
Jengirl805
in
Kidney Dialysis
2 years ago
Tapentadol
Has any body been prescribed Tapentadol for acute Sciatica pain and how did they get on.
Has any body been prescribed Tapentadol for acute Sciatica pain and how did they get on.
gordon292
in
Pain Concern
2 years ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
2 years ago
This Queen is thankful like Sunday morning
Here is the link a Sunday morning song. Easy= https://youtu.be/7XcTyEKSnYg I hope everyone is doing well today. It's a gray one where I am but the fall leaves will pop. This song is one my dad introduced me to. I'm doing well. I don't get to write on here as much as I'd like. Work and school are capturing
Here is the link a Sunday morning song. Easy= https://youtu.be/7XcTyEKSnYg I hope everyone is doing well today. It's a gray one where I am but the fall leaves will pop. This song is one my dad introduced me to. I'm doing well. I don't get to write on here as much as I'd like. Work and school are capturing
HipHopQueen
in
Kidney Dialysis
2 years ago
Covid Risk from Travel after Transplant
had the Omicrom variant of Covid following
kidney
transplant
& can share their experience with me , Many Thanks
had the Omicrom variant of Covid following
kidney
transplant
& can share their experience with me , Many Thanks
Taconeo
in
Kidney Transplant
2 years ago
Cystoscopy next week - risks of procedure?
Hi folks. After decades of UTI infections, I've been having daily urethral pain that comes & goes but no infection. D-mannose has helped in combating infections enormously, however I'm having a cystoscopy next week to investigate any sinister cause of the pain. Not so worried about the procedure (other
Hi folks. After decades of UTI infections, I've been having daily urethral pain that comes & goes but no infection. D-mannose has helped in combating infections enormously, however I'm having a cystoscopy next week to investigate any sinister cause of the pain. Not so worried about the procedure (other
strawclutching
in
PMRGCAuk
2 years ago
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