Search
Search
About
Log in
Join
Experiences with
Kidney transplant
Posts
Communities
8,131 public posts
Filter results
recurring aceties
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
Mango5cm
in
British Liver Trust
2 years ago
2nd biopsy, just started on prednisolone. Dietary help pls.
So my doctor had just started me on 25mg of prednisolone indefinitely due to the inflammation (in my kidneys?) as a result of my igA nephropathy acting more aggressively on my body. I am taking effort to abide by a low protein diet at 0.8g/protein/kg body weight per day. Aside from feeling very hungry
So my doctor had just started me on 25mg of prednisolone indefinitely due to the inflammation (in my kidneys?) as a result of my igA nephropathy acting more aggressively on my body. I am taking effort to abide by a low protein diet at 0.8g/protein/kg body weight per day. Aside from feeling very hungry
agirlwithhope95
in
Early CKD Support
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Another COVID Monoclonal to watch - especially in the UK and EU
https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-board-of-directors-301654011.html [i]
ExeVir Bio Forges Ahead with Unique Next Generation COVID-19 Therapy and Appoints Dr. Jeanne Bolger as
https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-board-of-directors-301654011.html [i]
ExeVir Bio Forges Ahead with Unique Next Generation COVID-19 Therapy and Appoints Dr. Jeanne Bolger as
SeymourB
in
CLL Support
2 years ago
Update – PV, lung carcinoid tumor and bone marrow abnormalities
Hello everyone, here’s an update on my post earlier this year asking about the likelihood of a link between the onset of PV and a lung carcinoid (tumor) obstructing the airway. The answer from different sources (including MPN team) seemed to be there was no link. However, post-surgery (tumor out and
Hello everyone, here’s an update on my post earlier this year asking about the likelihood of a link between the onset of PV and a lung carcinoid (tumor) obstructing the airway. The answer from different sources (including MPN team) seemed to be there was no link. However, post-surgery (tumor out and
Imkerin
in
MPN Voice
2 years ago
No get out of jail free card!
My neurologist, told me during one visit early on to " remember that just because a person has a chronic disease, does not give them a get out of jail free card for other illness". That quote has come back to haunt me several times since,the heart attack, kidney stones, and most recently bad news
My neurologist, told me during one visit early on to " remember that just because a person has a chronic disease, does not give them a get out of jail free card for other illness". That quote has come back to haunt me several times since,the heart attack, kidney stones, and most recently bad news
Hidden
in
My MSAA Community
2 years ago
4th shots of Pfizer, Moderna vaccines provide near equal protection — Israeli study
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Stage 2 likely?
hi, I’ve been undergoing blood test for 6 months. my creatinine levels have been high and the GP said my kidneys weren’t function as they should be for my age. I’m 42 male. Had ultra sound of kidneys and no issues found. my GFR is 61. From what I can see online it should be in 99’s on average
hi, I’ve been undergoing blood test for 6 months. my creatinine levels have been high and the GP said my kidneys weren’t function as they should be for my age. I’m 42 male. Had ultra sound of kidneys and no issues found. my GFR is 61. From what I can see online it should be in 99’s on average
J-147
in
Early CKD Support
2 years ago
What Do You Make of This?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
ADTMan
in
Advanced Prostate Cancer
2 years ago
Advice after taking EllaOne
Hi everyone I am looking for some reassurance and to see if anyone has had a similar experience I took EllaOne on 2nd October 12 hours after condom broke. This was day 10 of my cycle and I do normally ovulate around this time as my cycles are short (24-26 days) I know the advice says period can be
Hi everyone I am looking for some reassurance and to see if anyone has had a similar experience I took EllaOne on 2nd October 12 hours after condom broke. This was day 10 of my cycle and I do normally ovulate around this time as my cycles are short (24-26 days) I know the advice says period can be
CharlieW_84
in
BASHH
2 years ago
B12 toxicity and kidneys
Hello everyone. I've been facing a particular problem lately. I was performing b12 eod syringes. However, I had what appears to be renal colic. Urinalysis showed traces of blood and very high protein. My doctor is convinced that it is the fault of the b12 and the high levels that caused toxicity. I have
Hello everyone. I've been facing a particular problem lately. I was performing b12 eod syringes. However, I had what appears to be renal colic. Urinalysis showed traces of blood and very high protein. My doctor is convinced that it is the fault of the b12 and the high levels that caused toxicity. I have
Zeffy90
in
Pernicious Anaemia Society
2 years ago
Ablation of endometrial tissue
Hi All.. Today I had my first laparoscopy, they done adhesiolysis of endometriosis, ablation of endometrial tissue and hysteroscopy. I am 32 years old without children, I have read the ablation of endometrial tissue is not recommended if you would like children in the future as it can effect fertility
Hi All.. Today I had my first laparoscopy, they done adhesiolysis of endometriosis, ablation of endometrial tissue and hysteroscopy. I am 32 years old without children, I have read the ablation of endometrial tissue is not recommended if you would like children in the future as it can effect fertility
CaseyA
in
Endometriosis UK
2 years ago
Itolizumab Shows Promise For Lupus Nephritis Patients in Early Trial Data
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic lupus
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
2 years ago
Transplant Lethargy
This is my first question and I'm so excited I found this forum of other
kidney
transplant
recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy.
This is my first question and I'm so excited I found this forum of other
kidney
transplant
recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy.
ksoccer45
in
Kidney Disease
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
2 years ago
Kidney Teansplant and CMV
My husband is 14 months post
kidney
transplant
. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
My husband is 14 months post
kidney
transplant
. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
Sister9555
in
Kidney Transplant
2 years ago
help with changing hospitals
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
Zechariah123
in
British Liver Trust
2 years ago
DLA renewal
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Ducks123
in
Children's Liver Disease Foundation
2 years ago
Questions about post transplant surgery JP drain
Did anyone have a JP drain after
kidney
transplant
surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it?
Did anyone have a JP drain after
kidney
transplant
surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it?
Grammy820
in
Kidney Transplant
2 years ago
1
...
56
57
58
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
898 results
Early CKD Support
792 results
Lung Conditions Community Forum
576 results
View top 10 communities
Sort by
Most Relevant
Newest