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hyperventilating
Everytime I cough hard as a result of breathlessness because of any slight movemnt I make Ive started hyperventilating this has only happened very recently Im used to getting sick after it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating
Everytime I cough hard as a result of breathlessness because of any slight movemnt I make Ive started hyperventilating this has only happened very recently Im used to getting sick after it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
Covid Tests for Vulnerable People
Dear All, I am repeating on this Forum, a 'Post' I put on the
Kidney
Transplant
forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here.
Dear All, I am repeating on this Forum, a 'Post' I put on the
Kidney
Transplant
forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here.
AndrewT
in
Vasculitis UK
2 years ago
Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
10 months ago
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Question
Husband had 3-mo. blood work yesterday and I was checking for results on portal when I noticed MO had notation for 7/11 appointment: "Creatine (ISTAT) radiology to draw." Have no idea why it's there, seems like something to do with a scan, but she knows he can't tolerate scans and has refused them lately
Husband had 3-mo. blood work yesterday and I was checking for results on portal when I noticed MO had notation for 7/11 appointment: "Creatine (ISTAT) radiology to draw." Have no idea why it's there, seems like something to do with a scan, but she knows he can't tolerate scans and has refused them lately
Shamrock46
in
Advanced Prostate Cancer
1 year ago
Help!
Feel like I’ve hit rock bottom again last few weeks. After eventually tapering off of Pred June last year, I believe I told you lovely people I started getting issues with my fingers , then wrists. So pretty evident the Pred was masking these pains ( well I am assuming that). I eventually returned to
Feel like I’ve hit rock bottom again last few weeks. After eventually tapering off of Pred June last year, I believe I told you lovely people I started getting issues with my fingers , then wrists. So pretty evident the Pred was masking these pains ( well I am assuming that). I eventually returned to
Stifffingers
in
PMRGCAuk
1 year ago
Virtual support group for dialysis patient?
Hi I'm looking for a virtual support group for someone starting dialysis. The ones I know about either have mostly transplant recipients (I prefer to have people who are going through dialysis, or about to start), or the meeting is mostly hearing from a speaker rather than people sharing their experience
Hi I'm looking for a virtual support group for someone starting dialysis. The ones I know about either have mostly transplant recipients (I prefer to have people who are going through dialysis, or about to start), or the meeting is mostly hearing from a speaker rather than people sharing their experience
Kbristow
in
Kidney Dialysis
1 year ago
Home Oxygen is a game changer
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Nephrectomy kidney cancer and Gout
kidney cancer being treated with Nephrectomy July 2023 he has developed gout recently and has never enjoyed alcohol. Trying to eat no high purine foods but internet suggestions is conflicting. Does anyone know whether this will go after Nephrectomy. uric acid obviously cannot filter through that kidney
kidney cancer being treated with Nephrectomy July 2023 he has developed gout recently and has never enjoyed alcohol. Trying to eat no high purine foods but internet suggestions is conflicting. Does anyone know whether this will go after Nephrectomy. uric acid obviously cannot filter through that kidney
Willowdene
in
Early CKD Support
1 year ago
Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
11 months ago
Weight Management for Kidney Patients and Living Donors
Learn how you can reach a heathy weight and why it matters for
transplant
. https://www.kidney.org/newsletter/weight-management-
kidney
-patients-and-living-donors
Learn how you can reach a heathy weight and why it matters for
transplant
. https://www.kidney.org/newsletter/weight-management-
kidney
-patients-and-living-donors
JackieJ_NKF
Partner
in
Kidney Donation
1 year ago
Hello Good People
Today I did a cystoscopy for my bladder and the Dr. wanted to see why it comes sometimes a Blod after Unirating. Before I bled a little after urinating on different occasions and Dr. urology decided to check with cystoscopy to check the bladder, but it was narrow to get inside the bladder and it
Today I did a cystoscopy for my bladder and the Dr. wanted to see why it comes sometimes a Blod after Unirating. Before I bled a little after urinating on different occasions and Dr. urology decided to check with cystoscopy to check the bladder, but it was narrow to get inside the bladder and it
NOCanceros
in
Advanced Prostate Cancer
1 year ago
Liver Transplant Assessment
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
Mitmab
in
British Liver Trust
1 year ago
Options for Recurrent PCa w/ RT Initial Therapy
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Researcher50
in
Advanced Prostate Cancer
1 year ago
Recurring UTI’s
Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling quite well so surprised when she rang on Thursday to say test showed an infection and I needed antibiotics and to get these from my GP, which I
Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling quite well so surprised when she rang on Thursday to say test showed an infection and I needed antibiotics and to get these from my GP, which I
Baner
in
PMRGCAuk
1 year ago
Fatigue and lethargy
I’m stage 4 ckd, and I am experiencing fatigue and lethargy on a daily basis. I find that I have very little energy, and I can barely accomplish anything beyond a couple of small tasks. I also have stage 3 non-alcoholic liver disease, and had open heart surgery in 2019. However, my recent echo gram
I’m stage 4 ckd, and I am experiencing fatigue and lethargy on a daily basis. I find that I have very little energy, and I can barely accomplish anything beyond a couple of small tasks. I also have stage 3 non-alcoholic liver disease, and had open heart surgery in 2019. However, my recent echo gram
CuriousCKD
in
Kidney Disease
1 year ago
kt/v test
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
Beachgirl32
in
Kidney Dialysis
1 year ago
Navigating College, Dialysis, and Transplant: One Advocate’s Kidney Disease Journey
#MyKidneyVoice Learn more: https://www.kidney.org/newsletter/advocacy/navigating-college-dialysis-and-
transplant
-one-advocate-s-
kidney
-disease-journey
#MyKidneyVoice Learn more: https://www.kidney.org/newsletter/advocacy/navigating-college-dialysis-and-
transplant
-one-advocate-s-
kidney
-disease-journey
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
1 year ago
Seeking advice re: end-of-life planning with family
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Havik
in
Kidney Dialysis
1 year ago
Postive ANA?
Hi, I recently had a postive ANA result (1:160 speckled) alongside elevated CRP. Few years ago had tests that my GP said were indicative of lupus (abnormal urine sample, elevated serum creatine and elevated lupus anti coag) he said if I felt okay to just leave it there… Since 2020 I have felt gradually
Hi, I recently had a postive ANA result (1:160 speckled) alongside elevated CRP. Few years ago had tests that my GP said were indicative of lupus (abnormal urine sample, elevated serum creatine and elevated lupus anti coag) he said if I felt okay to just leave it there… Since 2020 I have felt gradually
Hidden
in
LUPUS UK
1 year ago
Living with dialysis
My name is Vicki and I myself have had 2 years of dialysis before I got a
kidney
transplant
. I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years .
My name is Vicki and I myself have had 2 years of dialysis before I got a
kidney
transplant
. I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years .
bubbaboo2
in
Kidney Dialysis
2 years ago
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