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have you had trouble getting approved for stem cell transplant?
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
Plasmapool
in
MPN Voice
9 months ago
Neuropsychiatric webinar.
Hi,I have seen from Cocos post that the webinar about neuropsychiatric Lupus will be available to watch on YouTube. Can anyone from LUK confirm when it will be available please? I was really sorry to have missed it as it sounds like it could benefit both me and my family. My father had a real grasp
Hi,I have seen from Cocos post that the webinar about neuropsychiatric Lupus will be available to watch on YouTube. Can anyone from LUK confirm when it will be available please? I was really sorry to have missed it as it sounds like it could benefit both me and my family. My father had a real grasp
happytulip
in
LUPUS UK
1 year ago
CKD new diagnosis.
I have several spinal injuries, successive surgeries etc. blah blah blahDealing with chronic pain 24/7. Recently had bood and iron transfused due to severe Anaemia. HG 72 They also did blood and urine tests and told me I had CKD Stage 3 which was a complete shock, and has left me scared and confused
I have several spinal injuries, successive surgeries etc. blah blah blahDealing with chronic pain 24/7. Recently had bood and iron transfused due to severe Anaemia. HG 72 They also did blood and urine tests and told me I had CKD Stage 3 which was a complete shock, and has left me scared and confused
Jane_the_Pain
in
Pain Concern
1 year ago
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Living with glaucoma
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
LondonStadium
in
Glaucoma UK
1 year ago
does half a mg make so much difference
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
Rosina1871
in
PMRGCAuk
1 year ago
elevate ALT post transplant
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Bantam2
in
British Liver Trust
1 year ago
Dialysis and transplant.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
Fsgs57
in
Kidney Dialysis
1 year ago
er scare
yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk, weak, too weak to stand. My husband took me to er where my bp was very high (of course); spent the day. Long story short: not one thing wrong
yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk, weak, too weak to stand. My husband took me to er where my bp was very high (of course); spent the day. Long story short: not one thing wrong
Twopies
in
PMRGCAuk
1 year ago
Appt with infectious disease specialist today: New CMV game plan
I had my first appointment with an infectious disease specialist today. She reviewed all my pre and post transplant data with me. She gathered detailed information about the side effects I’ve been experiencing with Valcyte as well as what had been tried with medication dose changes etc. In addition,
I had my first appointment with an infectious disease specialist today. She reviewed all my pre and post transplant data with me. She gathered detailed information about the side effects I’ve been experiencing with Valcyte as well as what had been tried with medication dose changes etc. In addition,
Jayhawker
in
Kidney Transplant
1 year ago
just diagnosed with CKD stage 3.
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
Willowdene
in
Early CKD Support
1 year ago
Intestinal cramps
Does anyone have what feels like intestinal cramps? When this happens it feels like my whole abdomen is painful then all of a sudden eases after a bowel movement but is loose when I go. Its a very short lived pain. I do have adhesions attaching colon to uterus so not sure if this is the reason for this
Does anyone have what feels like intestinal cramps? When this happens it feels like my whole abdomen is painful then all of a sudden eases after a bowel movement but is loose when I go. Its a very short lived pain. I do have adhesions attaching colon to uterus so not sure if this is the reason for this
me94
in
Endometriosis UK
1 year ago
What is yin yoga...and why it matters
As a woman then in my 30s, a healthy functioning
kidney
transplant
and a love of dance, it was a vinyasa YTT that called. Vinyasa is flowing, dynamic, graceful, and strengthening for the ropey muscles. Very yang. Marrying the inhale and exhale with the movements.
As a woman then in my 30s, a healthy functioning
kidney
transplant
and a love of dance, it was a vinyasa YTT that called. Vinyasa is flowing, dynamic, graceful, and strengthening for the ropey muscles. Very yang. Marrying the inhale and exhale with the movements.
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
2 years ago
Dad has stage 4 cirrhosis
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Lplplp14
in
British Liver Trust
1 year ago
Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
The therapy is an oral medication approved in US, UK, and EU Lupkynis (voclosporin) continues to be safe and to protect kidney function when taken for up to three years by patients with lupus nephritis, a kidney complication of lupus. That’s according to the full results from AURORA 2 (NCT03597464
The therapy is an oral medication approved in US, UK, and EU Lupkynis (voclosporin) continues to be safe and to protect kidney function when taken for up to three years by patients with lupus nephritis, a kidney complication of lupus. That’s according to the full results from AURORA 2 (NCT03597464
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Liver transplant advice - missing IVC vein.
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
RAAN88
in
British Liver Trust
1 year ago
Defenestration or detouring of cysts in PLD
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
PostivelyJo
in
British Liver Trust
1 year ago
Liver Transplant Kings College
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Missrogerson1
in
British Liver Trust
1 year ago
Hi potassium levels
CKD since 2021 current GFR is 50 recently diagnosed with hi potassium would like some tastey low potassium convenience foods and dining out tips for upcoming trip. Thanks
CKD since 2021 current GFR is 50 recently diagnosed with hi potassium would like some tastey low potassium convenience foods and dining out tips for upcoming trip. Thanks
pjmcd
in
Early CKD Support
1 year ago
Blood patches?
I have had a few issues post
transplant
- CMV and reduced
kidney
function (down to 21%) to mention just two...
I have had a few issues post
transplant
- CMV and reduced
kidney
function (down to 21%) to mention just two...
taar
in
British Liver Trust
6 months ago
liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
1 year ago
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