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just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
11 months ago
Does Tacrolimus cause forgetfulness for anyone?
I recently was speaking with a recent
kidney
transplant
recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication.
I recently was speaking with a recent
kidney
transplant
recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication.
Kbristow
in
Kidney Transplant
2 years ago
COVID VACCINE MANDATE
This seems an unreasonable requirement since the long term effects of the vaccine are unknown in
kidney
transplant
patients. He will be looking into other transplant centers that do not require the COVID vaccine. Has anyone else encountered this?
This seems an unreasonable requirement since the long term effects of the vaccine are unknown in
kidney
transplant
patients. He will be looking into other transplant centers that do not require the COVID vaccine. Has anyone else encountered this?
green1981
in
Kidney Donation
2 years ago
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1st patient enrolled in global Phase 2 trial of daxdilimab for lupus
Proliferative forms of LN are associated with a higher risk of progression to end-stage
kidney
disease, requiring dialysis or, potentially, a
kidney
transplant
. The condition is most prevalent in certain ethnic groups, including African American, Asian, and Hispanic populations.
Proliferative forms of LN are associated with a higher risk of progression to end-stage
kidney
disease, requiring dialysis or, potentially, a
kidney
transplant
. The condition is most prevalent in certain ethnic groups, including African American, Asian, and Hispanic populations.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
10 months ago
Celiac and CKD
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
ZenPDX
in
Kidney Dialysis
10 months ago
6 years post tah bso awaiting surgery for extensive adhesions and endo .
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
endoaftertahbso
in
Endometriosis UK
10 months ago
High BLood Pressure, Kidney failure, cause discovered
Stem cell doctor told me my
kidney
function should return to normal with the
transplant
. I am writing this in case any one else has failing kidneys with high blood pressure and no clear answer why.
Stem cell doctor told me my
kidney
function should return to normal with the
transplant
. I am writing this in case any one else has failing kidneys with high blood pressure and no clear answer why.
phebamom
in
High Blood Pressure Support
8 months ago
Finally passed a kt/v test
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
RonZone
in
Kidney Dialysis
11 months ago
An Eventful January
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
Hidden
in
British Heart Foundation
8 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
11 months ago
Gall bladder surgery
Is there anyone who got it done after a
kidney
transplant
?
Is there anyone who got it done after a
kidney
transplant
?
neet24
in
Kidney Transplant
2 years ago
Haemophilus influenzae
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
Alice70
in
Lung Conditions Community Forum
11 months ago
Likelihood of liver transplantation
Hello everyone, hoping you can provide your experience and knowledge to help guide us. Our dad (57) has been a heavy drinker for the past 25 years, was always in denial and refused any help until he became hospitalised at the start of this year. He had developed severe ascites requiring drainage, has
Hello everyone, hoping you can provide your experience and knowledge to help guide us. Our dad (57) has been a heavy drinker for the past 25 years, was always in denial and refused any help until he became hospitalised at the start of this year. He had developed severe ascites requiring drainage, has
GranolaLover87
in
British Liver Trust
1 year ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
11 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
11 months ago
Low hemoglobin
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
horsie63
in
Kidney Dialysis
11 months ago
Kidney Transplant
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
AS52
in
Kidney Disease
2 years ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
9 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
11 months ago
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