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Update-Covid antiviral
This evening I finally got the call from a consultant from , Stoke Mandeville hospital.Booked in for liver and kidney blood test and infusion .... what a relief . Just want to feel better. Thank you all for your advice and care. 😊
This evening I finally got the call from a consultant from , Stoke Mandeville hospital.Booked in for liver and kidney blood test and infusion .... what a relief . Just want to feel better. Thank you all for your advice and care. 😊
Stavrou1
in
CLL Support
10 months ago
CR Advanced Prostrate Ca, and start of chemotherapy after PSMA
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Ij2023
in
Advanced Prostate Cancer
11 months ago
Possible kidney disease
Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which
Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which
MusicalFurbaby
in
LUPUS UK
10 months ago
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Is HE always inevitable with severe chronic liver disease?
My daughter has been told there is nothing more the doctors can do for her multiple hepatic adenomas. Transplant is not an option, due to serious underlying health conditions and also total lack of fitness . She has at least 15 of these tumours taking over her liver now. She has had a resection last
My daughter has been told there is nothing more the doctors can do for her multiple hepatic adenomas. Transplant is not an option, due to serious underlying health conditions and also total lack of fitness . She has at least 15 of these tumours taking over her liver now. She has had a resection last
Mami77
in
British Liver Trust
10 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
10 months ago
Orphenadrine
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
ghoegap
in
Cure Parkinson's
10 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
10 months ago
Prolia
Hi Has anyone taken Prolia shots for osteoporosis after
kidney
transplant
?
Hi Has anyone taken Prolia shots for osteoporosis after
kidney
transplant
?
Hidden
in
Kidney Transplant
2 years ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
11 months ago
Avodart and Flomax
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
CountryJoe
in
Advanced Prostate Cancer
10 months ago
filgotinib dosage
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
Doodlereggie
in
NRAS
10 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
11 months ago
Not posted for a while
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
HipHop1972
in
Restless Legs Syndrome
8 months ago
kidney stones
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
Kimbad1990
in
Early CKD Support
10 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
8 months ago
liver gal
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
Livergal
in
British Liver Trust
11 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
10 months ago
Dilated Cardiomyopathy/ Heart Transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
Jobby85
in
British Heart Foundation
11 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
11 months ago
Really bad stomach and bowel cramps
Dry mouth and and all over pain stomach cramps and bowel cramps 111 just playing piped music for 15 minutes I think it's the lactulose cause it really fatigued also nausea blood pressure 153/90 pulse rate 106 111 was no help really feel sick and dizzy and I'm really thirsty blood pressure is still sky
Dry mouth and and all over pain stomach cramps and bowel cramps 111 just playing piped music for 15 minutes I think it's the lactulose cause it really fatigued also nausea blood pressure 153/90 pulse rate 106 111 was no help really feel sick and dizzy and I'm really thirsty blood pressure is still sky
Sheliabee
in
British Liver Trust
10 months ago
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