Search
Search
About
Log in
Join
Experiences with
Kidney transplant
Posts
Communities
8,131 public posts
Filter results
Vasculitis Specialist Advice/Direction Please
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Daisyboodle
in
Vasculitis UK
8 months ago
Manganese levels
hi everyone so I’ve come on here to pick peoples brains because I am completely at a loss of what to do. I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working. I’ve been referred to a neurologist
hi everyone so I’ve come on here to pick peoples brains because I am completely at a loss of what to do. I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working. I’ve been referred to a neurologist
Lifehappened123
in
British Liver Trust
10 months ago
Support Group for Dialysis Patients Thursday night 6pm EST
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
Bassetmommer
in
Kidney Dialysis
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can a dialysis patient use protein power?
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
mingmiley
in
Kidney Dialysis
8 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
10 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
8 months ago
IBS and kidney Stones
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Will1234
in
IBS Network
8 months ago
Creatine
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
amt50
in
PBC Foundation
8 months ago
PSA in lower range, yet PSMA PET SCAN shows diffuse bone Metastasis
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Ij2023
in
Advanced Prostate Cancer
10 months ago
FDA alert re: denosumab
This was issued specifically re: Prolia, with no mention of Xgeva. However patients should be alerted, and of course don't change your medications without first speaking to your doctor about this. https://www.fda.gov/drugs/drug-safety-and-availability/fda-adds-boxed-warning-increased-risk-severe-hypocalcemia-patients-advanced-chronic-kidney-disease
This was issued specifically re: Prolia, with no mention of Xgeva. However patients should be alerted, and of course don't change your medications without first speaking to your doctor about this. https://www.fda.gov/drugs/drug-safety-and-availability/fda-adds-boxed-warning-increased-risk-severe-hypocalcemia-patients-advanced-chronic-kidney-disease
dentaltwin
in
Advanced Prostate Cancer
8 months ago
Right phrenic nerve paralysis
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
rfgh20
in
Advanced Prostate Cancer
8 months ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
8 months ago
nausea and vomiting
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
Matilda6146
in
Early CKD Support
8 months ago
Medicare and Transplant
My husband will be having a
kidney
transplant
on March 10. He just turned 60 years old and currently he’s on my insurance. I know that he can get on Medicare for the transplant surgery and three years post transplant. Does he have to sign up himself or is that done at the hospital?
My husband will be having a
kidney
transplant
on March 10. He just turned 60 years old and currently he’s on my insurance. I know that he can get on Medicare for the transplant surgery and three years post transplant. Does he have to sign up himself or is that done at the hospital?
zaatar
in
Kidney Transplant
2 years ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
9 months ago
iga vasculitis
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
Frosty_nights89
in
Vasculitis UK
9 months ago
nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
9 months ago
Desperately trying to save my partner.
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Ffof6
in
British Liver Trust
10 months ago
7 years plus
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
1EPXiii
in
Kidney Dialysis
9 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
1
...
22
23
24
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
898 results
Early CKD Support
792 results
Lung Conditions Community Forum
576 results
View top 10 communities
Sort by
Most Relevant
Newest