Experiences with

Kidney transplant

Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All

Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation

Only me again Just been on the phone to BUPA in Glasgow in the lovely Costa Del Scotland Trying to get blood tests done this week and I explained the thyroid issue.Been told I need to email a list of exactly what I want tested then the results go to one of there doctors to assess Could someone ever so

Lehigh researchers quantify the specific interaction between the spike protein of SARS-CoV-2 — the virus that causes COVID-19 — with the ACE2 receptors in human cells that may partially explain its high infection rate compared to SARS-CoV-1. Bioengineering researchers at Lehigh University have identified

Hi all, I've just seen a post from Maz about a letter for Gp's regarding people with MPN's being clinically vulnerable and how to add them to the shielding list. This raises questions for me... I have been furloughed throughout Covid19 and as a result have only received 80% of my wage for a full year

Hi Am very new to this chat room, sorry if iv picked the wrong one to chat in. Am 36 have 10 gfr a failed fistula, awaiting arm graft but cause of covid my renal doctor has no idea how long i will wait for one. There is the option for kneck line, am not to sure of getting this. In general i have good

Searching the web tonight for prednisone information, I came across deflazacort for the first time. It seems to have better characteristics in terms of less bone loss and other side effects. The article I found (link below) talks about kidney transplantation; does anyone know whether it is being used

Hi all, long story short, I was placed on Atorvastatin I. February after a Cardiac Arrest and then a TIA (lucky me). Turns out my cholesterol was 6.9. I tolerated the drug really well, and my cholesterol came down to 2.35, except it sent my liver into overdrive. My GP told me to stop the statin and have

from Medscape https://www.medscape.com/viewarticle/947672?src=WNL_ukmdpls_210319mscpedit_gen&uac=306355MY&impID=3258885&faf=1 Within the report is the statement "The CQC said that early in the pandemic it had acted quickly to remind providers that it was unacceptable to apply decisions to groups of people

Hi everyone, I have G6PD deficiency and although not life-threatening as long as I stay clear of the list of substances that can cause an allergic reaction, I have recently been reading about some studies that highlight a concerning correlation between Coronavirus and people with the same condition as

Anyone who has Netflix may have seen this American documentary entitled, “The Surgeons Cut”. Those who are interested in this type of thing, maybe interested in episode 3 of the series. Called, “Living Donor”. Dr Nancy Ascher has devoted her career to organ transplants and transplant research. The first

Mum eventually went on haemodialysis and after six months of being on the transplant list, she received a very healthy kidney which lasted the rest of her life. She never made a 'thing' of it, but I wish she had told me more. And this is what I would say to anyone. TALK!!

Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking

Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to

I’m on w&w for 12 years and am due to have lithotripsy to treat a kidney stone in my right kidney in 2 weeks. Has anyone else had this treatment

https://faseb.onlinelibrary.wiley.com/doi/full/10.1096/fj.06-6394fje Abstract We recently showed that the up‐regulation of the glial cell line‐derived neurotrophic factor (GDNF) pathway in the midbrain, is the molecular mechanism by which the putative anti‐addiction drug Ibogaine mediates its desirable

Good evening all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed right at the start of my evaluation that I had the start of osteoporosis which they put down to years of taking prednisolone. Even though I had this they were still happy to list me. I have recently

Hello, I am 10 years post kidney transplant patient. I have osteoporosis, I have lately had some painful knee pain. Curious if anyone else may have osteoporosis, and how you deal with the joint pain. Thanks

Not only have I ANCA Vasculitis, but also have had a Kidney Transplant, so I have to use a Factor Fifty Plus 'Sun Cream'- which is thankfully Prescribed. I DON'T mean to 'Rain on anyone's parade', and YES I Do like the 'Look' of the Sun, it Does brighten 'things' up..... BUT!

Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement