Experiences with

Kidney transplant

I'm ringing gp today to get more scans while waiting for my op in 4 months. It feels like something heavy in inside my left side and I can feel a lump bad and when touch or push on it it's really pain full hopefully they can check my kidney and liver also as something seems worst and dont seem right.

I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!

Hi there, I’ve been having horrible stomach pain on and off for months now. A year ago I had poop samples took by my Gp but never had any results. Today I was in pain trying to poo, I looked into the bowl and it’s full of blood, I’ve had blood on a tissue before but nothing like this! I’m slightly scared

After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the

Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good

Hello all! I have a GCA for 20 months now and I’m now down to 5 mg prednisone. I just got my blood work back yesterday and I see that my creatinine level indicates that I have chronic kidney disease stage three. I had a UTI several weeks back and now I have to pee all the time. I did a little research

I'm 22 years old. I've been experiencing issues with my bladder where I often get the urge to urinate. It usually gets worse when anxiety kicks in i.e in a lecture with alot of people, and i noticed it since then. I've been visiting the GP for blood tests and recently my GP told me about the GFR rates

Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis

Hello, I am looking to get holiday insurance to Greece following a liver transplant in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300! I am happy to give anyone who is

We had a meeting with Dad's oncologist this morning, he said that they are finding it difficult to control Dad's pain and his blood work is still poor his hemoglobin keeps dipping to 7ish 3 days after having a unit transfusion (highest its got to is 8.9) Oncologist said the disease is in pretty much

I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.

I have been put on Celecoxib. Has anyone else been put on these??

Hi, I'm wondering if anyone can recommend a truly effective probiotic formula? I've had a secondary infection following covid and had to take some antibiotics. I didn't even finish them as I reacted to them quite badly, but they were still pretty strong stuff and now even a month later am having grumbling

Hi lovely lung people, quick question about Hib vaccines (for use in adults who have problems with Haemophilis Influenzae and Strep Pneumoniae.) I’m in my 40s but received the (child’s) Hib vaccine in 2018 (along with pneumonia vaccine) and would like to know what the protocol is regarding re vaccination

Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one

Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed program from a registered health practitioner.

I take nebivolol (beta blocker) and micardis to treat high blood pressure and irregular heartbeat (minor).I have refractory rls and have just commenced weaning slowly off Sifrol (.250 mg) Just wondering if ALL beta blockers worsen rls or does anyone have one that’s ok to use? My cardiologist had no idea

Sometimes it’s just takes a fancy glass that makes it feel special —- a new way to sip cranberry juice — Happy Momma! Um - reality .. UTI prevention!

As I have liver cirrhosis and have a water infection would I be able to have cranberry juice to help. Thanks

Recurrent vaginal yeast infection, Yeast infection diet. I am interested in personal experiences with this diet. I am kind of desperate. It's been almost 8 months of treatment and although there is an improvement with boric acid, it is not totally cured. I also use organic propolis, C vitamin, omega