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Ketotifen
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MCAS Ketotifen
I have tried to come off
Ketotifen
as I question if I do actually have MCAS and hate being on unnecessary drugs but I am now breaking out in itchy rashes (a symptom I never had before!!) Has anyone else experienced this trying to come off
Ketotifen
?!
I have tried to come off
Ketotifen
as I question if I do actually have MCAS and hate being on unnecessary drugs but I am now breaking out in itchy rashes (a symptom I never had before!!) Has anyone else experienced this trying to come off
Ketotifen
?!
RoseStar
in
The UK Mastocytosis Support Group
7 months ago
Teenager with mastocytosis uticaria pigmentosa
My son was diagnosed at 4 months by great ormond street, given
ketotifen
, and seemed to “grow out” of it as the suggested he would. But from 14 onwards has really struggled with hives, excema, abdominal cramps, sever stomach issues, and anxiety/ocd.
My son was diagnosed at 4 months by great ormond street, given
ketotifen
, and seemed to “grow out” of it as the suggested he would. But from 14 onwards has really struggled with hives, excema, abdominal cramps, sever stomach issues, and anxiety/ocd.
Suziewooldridge
in
The UK Mastocytosis Support Group
26 days ago
MCAS and LEVOTHYROXINE Nightmare
I desperately need it as I have central hypothyroidism but can't take it Also I need hrt but also can't tolerate estrogen I take growth hormone with no issues It's just a vicious circle and I'm sick of it, what can I do I already take maximum
ketotifen
. Mast cells are a nightmare 😫
I desperately need it as I have central hypothyroidism but can't take it Also I need hrt but also can't tolerate estrogen I take growth hormone with no issues It's just a vicious circle and I'm sick of it, what can I do I already take maximum
ketotifen
. Mast cells are a nightmare 😫
CGH123
in
Thyroid UK
4 months ago
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Serum tryptase blood test
I am on cetirizine and
ketotifen
and take quercetin and Histamine X and Aller Aid supplements daily. Any ideas or opinions anyone please? Thanks
I am on cetirizine and
ketotifen
and take quercetin and Histamine X and Aller Aid supplements daily. Any ideas or opinions anyone please? Thanks
bcbg57
in
The UK Mastocytosis Support Group
1 year ago
Ketotifen Supply UK Q1 2023
I'm aware of this site: https://ukmasto.org/
ketotifen
/ with current ETA as "expected back in mid-April according to the producers" but I admit I am fed up waiting for a drug to come back in stock.
I'm aware of this site: https://ukmasto.org/
ketotifen
/ with current ETA as "expected back in mid-April according to the producers" but I admit I am fed up waiting for a drug to come back in stock.
SlickQuiver
in
The UK Mastocytosis Support Group
2 years ago
Red watering eyes
I have been diagnosed with lupus 2.5 years ago, on hydroxychloroquine,
ketotifen
, synapsin and LDN. thanks!
I have been diagnosed with lupus 2.5 years ago, on hydroxychloroquine,
ketotifen
, synapsin and LDN. thanks!
lwowkwin
in
LUPUS UK
1 year ago
Mast Cell NHS Consultants?
My doctor has prescribed
ketotifen
for me to trial which I have been taking for a day now, so I think it is too early to see if it will help at all. I already use a steroid inhaler twice daily, a steroid nasal spray daily., and allergic eye drops when my eyes itch and swell.
My doctor has prescribed
ketotifen
for me to trial which I have been taking for a day now, so I think it is too early to see if it will help at all. I already use a steroid inhaler twice daily, a steroid nasal spray daily., and allergic eye drops when my eyes itch and swell.
aimee68
in
The UK Mastocytosis Support Group
1 year ago
Ketotifen supply issue
I have just been phoning round pharmacies (without success), looking for
Ketotifen
1mg tablets as there seem to be supply problems yet again. I've lost track of how many time this has happened and each time I eat into the small stock I had somehow managed to accumulate at some point in the past.
I have just been phoning round pharmacies (without success), looking for
Ketotifen
1mg tablets as there seem to be supply problems yet again. I've lost track of how many time this has happened and each time I eat into the small stock I had somehow managed to accumulate at some point in the past.
Kay-UKMasto
Ambassador
in
The UK Mastocytosis Support Group
2 years ago
I’m new and confused - diagnosed with Mast Cell Activation Syndrome
Prof K has asked my GP to prescribe
Ketotifen
but none of my local pharmacies are able to obtain this mediation. The management and treatment of the chronic and recurring infections is overseen by Dr S who is at a different London Hospital.
Prof K has asked my GP to prescribe
Ketotifen
but none of my local pharmacies are able to obtain this mediation. The management and treatment of the chronic and recurring infections is overseen by Dr S who is at a different London Hospital.
Jenb01
in
The UK Mastocytosis Support Group
3 years ago
Ketotifen and Xolair
On the asthma front though I think the increase of my
Ketotifen
has made an impact, the amount of nebs has lessened and the improvement in my symptoms overall is way better! I'm hopeful that we've cracked this admission-failed discharge cycle!
On the asthma front though I think the increase of my
Ketotifen
has made an impact, the amount of nebs has lessened and the improvement in my symptoms overall is way better! I'm hopeful that we've cracked this admission-failed discharge cycle!
floating_
in
Asthma Community Forum
3 years ago
No supplies of zaditen/ketotifen
I went to collect my monthly prescription of zaditen/
ketotifen
this evening and the pharmacy said they can't get any supplies from the 5 companies they deal with. Has anyone else experienced supply problems, does anyone know why there is a shortage?
I went to collect my monthly prescription of zaditen/
ketotifen
this evening and the pharmacy said they can't get any supplies from the 5 companies they deal with. Has anyone else experienced supply problems, does anyone know why there is a shortage?
Woodpecker2021
in
The UK Mastocytosis Support Group
3 years ago
Which is safe food?
She takes
Ketotifen
and Nalcrom. Her intolerance problem is severe and unpredictable. She's run all sorts of tests but according to her (Professor) Doctor Dermatologist/Allergologist there is no top expert in Belgium. He has referred her to Dr.
She takes
Ketotifen
and Nalcrom. Her intolerance problem is severe and unpredictable. She's run all sorts of tests but according to her (Professor) Doctor Dermatologist/Allergologist there is no top expert in Belgium. He has referred her to Dr.
Greteltje
in
The UK Mastocytosis Support Group
3 years ago
Ketotifen Elixir (liquid) is available again (as are tablets)
Zaditen (
ketotifen
) tablets continue to be in stock at Alloga UK. The code is USP0697.
Zaditen (
ketotifen
) tablets continue to be in stock at Alloga UK. The code is USP0697.
Jess-UKMasto
Partner
in
The UK Mastocytosis Support Group
4 years ago
Can u increase the dose of ketotifen?
Currently on 1mg of
ketotifen
capsules. Can this be upped to higher dose? It helps but doesn't last long .
Currently on 1mg of
ketotifen
capsules. Can this be upped to higher dose? It helps but doesn't last long .
Merkat90
in
The UK Mastocytosis Support Group
4 years ago
Nalcrom Update
As with
ketotifen
, these imported supplies would be unlicensed in the UK but licensed in another EU country, should they find a source.
Ketotifen
is an H1 antihistamine that seems to also have some mast cell stabilising properties. (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3764846/).
As with
ketotifen
, these imported supplies would be unlicensed in the UK but licensed in another EU country, should they find a source.
Ketotifen
is an H1 antihistamine that seems to also have some mast cell stabilising properties. (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3764846/).
Jess-UKMasto
Partner
in
The UK Mastocytosis Support Group
4 years ago
Night time hell ...
Shaky temp up and down sore throat swelling of mouth hives at same time every nite 6 30pm 930pm 1100pm 130 am .so strange allways same time try taking to many antihistamines doesn't help paracetamol doesn't touch side of bone pain but all I can take
ketotifen
doesn't seem help as much I want it to I
Shaky temp up and down sore throat swelling of mouth hives at same time every nite 6 30pm 930pm 1100pm 130 am .so strange allways same time try taking to many antihistamines doesn't help paracetamol doesn't touch side of bone pain but all I can take
ketotifen
doesn't seem help as much I want it to I
Merkat90
in
The UK Mastocytosis Support Group
4 years ago
UK Medications Update, August 24, 2020
The identification Information is: USP0697 ZADITEN 1 MG
KETOTIFEN
60 TABLETS
Ketotifen
Liquid
Ketotifen
liquid is not yet available through the normal channels, as the licensed supplier does not yet have supplies. It can still be imported unlicensed.
The identification Information is: USP0697 ZADITEN 1 MG
KETOTIFEN
60 TABLETS
Ketotifen
Liquid
Ketotifen
liquid is not yet available through the normal channels, as the licensed supplier does not yet have supplies. It can still be imported unlicensed.
Jess-UKMasto
Partner
in
The UK Mastocytosis Support Group
4 years ago
Ketotifen update-- August 2020
Please check in at www.ukmasto.org/
ketotifen
to get the latest updates.
Please check in at www.ukmasto.org/
ketotifen
to get the latest updates.
Jess-UKMasto
Partner
in
The UK Mastocytosis Support Group
4 years ago
SERIOUSLY HELP NEEDED! IT'S ASTHMA OR DEPRESSION OR ANYTHING ELSE
My nose always Flux , Sometimes no flux but i feel my nose obstructed I go top doctor in our country but nothing happen... last year when i was my home i was take faxo 120 and
ketotifen
1 mg. it help me some. but now i am like as before. ANYBODY HERE SUFFER LIKE ME ?
My nose always Flux , Sometimes no flux but i feel my nose obstructed I go top doctor in our country but nothing happen... last year when i was my home i was take faxo 120 and
ketotifen
1 mg. it help me some. but now i am like as before. ANYBODY HERE SUFFER LIKE ME ?
sirobin5
in
Asthma Community Forum
8 years ago
What is EGID?
immuno suppressive medication in the most serious cases, some of those used are: Anti-Histamine - These are used in most allergic conditions such as Hayfever, Asthma Eczma etc… They are used to help relieve the symptoms by stopping the body from reacting to allergens, Examples used are Ceterizine /
Ketotifen
immuno suppressive medication in the most serious cases, some of those used are: Anti-Histamine - These are used in most allergic conditions such as Hayfever, Asthma Eczma etc… They are used to help relieve the symptoms by stopping the body from reacting to allergens, Examples used are Ceterizine /
Ketotifen
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