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Immunosuppressants
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Life beyond ITU
Hi everyone, so I’m new to this group so this is my first post. My key message is no matter how bleak things look keep fighting, life changing events can open new horizons. I am very lucky having received first class care and surrounded by caring family and friends. After 10 years of health service encounters
Hi everyone, so I’m new to this group so this is my first post. My key message is no matter how bleak things look keep fighting, life changing events can open new horizons. I am very lucky having received first class care and surrounded by caring family and friends. After 10 years of health service encounters
Longbottom
in
ICUsteps
5 years ago
Entry Requirements for Lupus Nephritis Clinical Trials Exclude Majority of Patients in UK Registry, Study Says
The standard of care for lupus nephritis is treatment using glucocorticoids or conventional
immunosuppressants
. Rituxan (rituximab), an antibody that dampens some immune cells, has been used off-label to treat some with lupus nephritis, but has not shown efficacy across several clinical trials.
The standard of care for lupus nephritis is treatment using glucocorticoids or conventional
immunosuppressants
. Rituxan (rituximab), an antibody that dampens some immune cells, has been used off-label to treat some with lupus nephritis, but has not shown efficacy across several clinical trials.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Test to be done to check further working of kidney and how to lessen immunosupperants??
My father is 64 years of age and underwent kidney transplant 4 years ago now the creatine level has up to 1.5 what are the precaution that i must take to avoid any further damage to kidneys and also is there any way to lessen
immunosuppressants
.
My father is 64 years of age and underwent kidney transplant 4 years ago now the creatine level has up to 1.5 what are the precaution that i must take to avoid any further damage to kidneys and also is there any way to lessen
immunosuppressants
.
Bagweaniket
in
Kidney Transplant
5 years ago
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Blood tests after new med!!
A week ago consultant put me on a new tablet ‘Myfortic’. Before taking the new medication AST was 37 now risen to 72 bilirubin was 9 and risen to 40 now. I’m not due to see my consultant for another two months. I am disappointed with him that despite having life threatening reaction from my previous
A week ago consultant put me on a new tablet ‘Myfortic’. Before taking the new medication AST was 37 now risen to 72 bilirubin was 9 and risen to 40 now. I’m not due to see my consultant for another two months. I am disappointed with him that despite having life threatening reaction from my previous
Hope1011
in
British Liver Trust
5 years ago
First post
Hi all, this is my first post. Thank you admin for excepting my request. A little about myself. I’ve just turned 50. 5 years ago I had key hole surgery to remove fibroids. The op went well but few days later I had an infection and was treated in hospital. They did intravenous therapy (antibiotics through
Hi all, this is my first post. Thank you admin for excepting my request. A little about myself. I’ve just turned 50. 5 years ago I had key hole surgery to remove fibroids. The op went well but few days later I had an infection and was treated in hospital. They did intravenous therapy (antibiotics through
Hope1011
in
British Liver Trust
5 years ago
Vaccines FYI
As with the safe vaccines, your body might not be able to mount the intended immunity if you are taking
immunosuppressants
. Varicella Vaccine Varicella is the virus that causes chickenpox.
As with the safe vaccines, your body might not be able to mount the intended immunity if you are taking
immunosuppressants
. Varicella Vaccine Varicella is the virus that causes chickenpox.
sashaming1
in
My MSAA Community
5 years ago
Fatigue in Systemic Lupus Erythematosus and Other Autoimmune Skin Diseases
Patients with CLE are placed on
immunosuppressants
when their disease is severe with widespread skin manifestations and is refractory to topical steroids and antimalarials.[10,11] Although disease activity was not examined in the multivariate analysis, patients with CLE on
immunosuppressants
may have
Patients with CLE are placed on
immunosuppressants
when their disease is severe with widespread skin manifestations and is refractory to topical steroids and antimalarials.[10,11] Although disease activity was not examined in the multivariate analysis, patients with CLE on
immunosuppressants
may have
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
I am puzzled - immunosuppressants or not?
I certainly don't want to be on
immunosuppressants
if I don't need to be. Why would he be keen to do so?
I certainly don't want to be on
immunosuppressants
if I don't need to be. Why would he be keen to do so?
bleeny
in
LUPUS UK
5 years ago
Thyroid eye disease (TED) symptoms, diagnosis and treatment options.
Graves’ Disease: Complications https://www.ncbi.nlm.nih.gov/books/NBK285551/?report=reader The closest thing to seeing an ophthalmologist. A comprehensive detailed piece about thyroid eye disease (TED) symptoms, diagnosis and treatment options. For those interested in finding out what their TED symptoms
Graves’ Disease: Complications https://www.ncbi.nlm.nih.gov/books/NBK285551/?report=reader The closest thing to seeing an ophthalmologist. A comprehensive detailed piece about thyroid eye disease (TED) symptoms, diagnosis and treatment options. For those interested in finding out what their TED symptoms
ling
in
Thyroid UK
5 years ago
Exercise and peak HR
If a cardiologist has said there is nothing wrong with my heart, bar hypertension and some plaque in arteries is it ok to jog and have a HR of 162? I love jogging but HR goes high when I do it. I can row and cycle and HR goes to 130 max but I don't get the buzz. Cardiologist suggested there may be autonomic
If a cardiologist has said there is nothing wrong with my heart, bar hypertension and some plaque in arteries is it ok to jog and have a HR of 162? I love jogging but HR goes high when I do it. I can row and cycle and HR goes to 130 max but I don't get the buzz. Cardiologist suggested there may be autonomic
Caitlyn6
in
British Heart Foundation
5 years ago
With a CLL diagnosis, knowing more about your immune system could save your life!
When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the longer we live with our diagnosis and also with CLL treatment, so infections can significant impact our life expectancy. (Growing older doesn't
When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the longer we live with our diagnosis and also with CLL treatment, so infections can significant impact our life expectancy. (Growing older doesn't
AussieNeil
Administrator
in
CLL Support
5 years ago
An analogy to help explain our condition to children and normals!
I wrote this as a reply to a post where someone was asking why we are always tired. I thought it may help others so have posted here for all to see: Why are we so fatigued? I think it is because with APS being an autoimmune condition this is happening in the body as I understand it (my analogy) When
I wrote this as a reply to a post where someone was asking why we are always tired. I thought it may help others so have posted here for all to see: Why are we so fatigued? I think it is because with APS being an autoimmune condition this is happening in the body as I understand it (my analogy) When
WendyWoo50
in
Hughes Syndrome APS Forum
5 years ago
Meds & the sun
I'm already aware to avoid the sun, especially since being on
immunosuppressants
after my transplant (6 years), and I've already had a few precancerous lesions removed. My question is does anyone else react badly to the heat?
I'm already aware to avoid the sun, especially since being on
immunosuppressants
after my transplant (6 years), and I've already had a few precancerous lesions removed. My question is does anyone else react badly to the heat?
Chattycat
in
Kidney Transplant
5 years ago
Cancer worries post and pre transplant
I had liver transplants back in 1995 and have been on
immunosuppressants
ever since (mychophenolate). I’ve been back on the transplant list now for 15 months due to having cirrhosis.
I had liver transplants back in 1995 and have been on
immunosuppressants
ever since (mychophenolate). I’ve been back on the transplant list now for 15 months due to having cirrhosis.
Smyally
in
British Liver Trust
5 years ago
A phase II trial of eltrombopag for patients with CLL and thrombocytopenia
Nov 2018 Eltrombopag is an oral thrombopoietin (TPO)‐receptor agonist that induces proliferation and differentiation of megakaryocytes. Eltrombopag is approved for the treatment of chronic immune thrombocytopenia purpura (ITP) after insufficient response to standard therapy. Approximately 5% of patients
Nov 2018 Eltrombopag is an oral thrombopoietin (TPO)‐receptor agonist that induces proliferation and differentiation of megakaryocytes. Eltrombopag is approved for the treatment of chronic immune thrombocytopenia purpura (ITP) after insufficient response to standard therapy. Approximately 5% of patients
Jm954
Administrator
in
CLL Support
5 years ago
A cause for concern?
So I had immunosuppressant treatment in September 2018. In February I had a lung function test which showed dclo low at 69.5%. Had a CT scan which showed 'no pulmonary lung consolidation..no fibrosis..no bronchiectasis. Slightly increased translucency of the lung parenchyma perhaps related to chronic
So I had immunosuppressant treatment in September 2018. In February I had a lung function test which showed dclo low at 69.5%. Had a CT scan which showed 'no pulmonary lung consolidation..no fibrosis..no bronchiectasis. Slightly increased translucency of the lung parenchyma perhaps related to chronic
Caitlyn6
in
Lung Conditions Community Forum
5 years ago
Confused! 😕
Hi Everyone, I'm new on here and wanted to ask if anyone else has experienced my situation. Over 6 years ago I became very unwell almost overnight. I turned yellow, got myself to A&E where I subsequently spent almost 6mnths in Hospital. Diagnosed with AIH, it hit suddenly and almost destroyed my liver
Hi Everyone, I'm new on here and wanted to ask if anyone else has experienced my situation. Over 6 years ago I became very unwell almost overnight. I turned yellow, got myself to A&E where I subsequently spent almost 6mnths in Hospital. Diagnosed with AIH, it hit suddenly and almost destroyed my liver
Hail1967
in
British Liver Trust
5 years ago
Joint pain/motor function loss & mercaptopurine
Since starting these
immunosuppressants
I’ve had to use a cane and noticed a kind of systemic floating pain in my limbs. In the mornings my fingers can be swollen, some of my face and by the evening one of my ankles.
Since starting these
immunosuppressants
I’ve had to use a cane and noticed a kind of systemic floating pain in my limbs. In the mornings my fingers can be swollen, some of my face and by the evening one of my ankles.
Gracey888
in
Crohn's and Colitis Support
5 years ago
How long until this awful moon face goes away??
I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come
I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come
Goldyukr
in
LUPUS UK
5 years ago
How long until this awful moon face goes away?
I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come off of prednisone. Of course, I’ve had to go really slow since I’ve been on it so long. My question is - I’ve been at 10 mg and below (just came down to
I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come off of prednisone. Of course, I’ve had to go really slow since I’ve been on it so long. My question is - I’ve been at 10 mg and below (just came down to
Goldyukr
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
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