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pred dose and immunosuppression - teaching & covid
Can anyone advise the red dose at which the immune system is considered working? .I am down to 2.5mg pred daily. I've had 4 covid jabs. I've been lecturing online only but am so keen to get back to face-to-face teaching Am I safe to do so? Grateful for any thoughts
Can anyone advise the red dose at which the immune system is considered working? .I am down to 2.5mg pred daily. I've had 4 covid jabs. I've been lecturing online only but am so keen to get back to face-to-face teaching Am I safe to do so? Grateful for any thoughts
Sanekate
in
PMRGCAuk
2 years ago
Steroid injection in knee - worth it?
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
rmros
in
NRAS
2 years ago
Visiting people in hospital
Does anyone know if those of us on immunosuppression drugs are allowed to visit poorly people in hospital? Thanks, Sarah
Does anyone know if those of us on immunosuppression drugs are allowed to visit poorly people in hospital? Thanks, Sarah
SLS2103
in
LUPUS UK
2 years ago
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Scotland’s Autumn 2022 Covid boosters starting on 5 September
See https://www.bbc.co.uk/news/uk-scotland-62565496 Appointments for immunosuppressed people will be sent in the post, so watch out for a blue letter. It’s also likely your appointment will show up on the Scottish appointments website before your letter arrives. That is at vacs.nhs.scot
See https://www.bbc.co.uk/news/uk-scotland-62565496 Appointments for immunosuppressed people will be sent in the post, so watch out for a blue letter. It’s also likely your appointment will show up on the Scottish appointments website before your letter arrives. That is at vacs.nhs.scot
vivdunstan
Volunteer
in
Vasculitis UK
2 years ago
Evusheld Update
Last week the Department for Health and Social Care said to the BBC that it would not be purchasing Evusheld for immunosuppressed people who do not have adequate protection against COVID-19 from vaccines. You can read more about this and what we think will happen next at https://www.lupusuk.org.uk/
Last week the Department for Health and Social Care said to the BBC that it would not be purchasing Evusheld for immunosuppressed people who do not have adequate protection against COVID-19 from vaccines. You can read more about this and what we think will happen next at https://www.lupusuk.org.uk/
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
Inflammation & microbiome in IvF
Hi all I’m currently on a treatment break whilst I spend some time working with a couple of holistic therapists - mainly acupuncture & osteopathy - in an attempt to naturally bring down inflammation in my body as well as get my microbiomes (both gut & vaginal) into as healthy a place as possible. Whilst
Hi all I’m currently on a treatment break whilst I spend some time working with a couple of holistic therapists - mainly acupuncture & osteopathy - in an attempt to naturally bring down inflammation in my body as well as get my microbiomes (both gut & vaginal) into as healthy a place as possible. Whilst
Bistbee
in
Fertility Network UK
2 years ago
Possible brain lymphoma
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Springbunny
in
British Liver Trust
2 years ago
Travel concerns on biologics
I have RA and take Humira we are booked to go on a cruise to the canaries in October and I’m becoming increasingly anxious about COVID on board and being immunosuppressed I have had 4 vaccinations and had COVID in February treated with antivirals. I will be due a 5th vaccine in the autumn round.
I have RA and take Humira we are booked to go on a cruise to the canaries in October and I’m becoming increasingly anxious about COVID on board and being immunosuppressed I have had 4 vaccinations and had COVID in February treated with antivirals. I will be due a 5th vaccine in the autumn round.
Pudding26
in
NRAS
2 years ago
Transplant immunosuppressant and vision changes
Has anyone noticed vision changes and blurry vision after transplant or from
immunosuppressants
?
Has anyone noticed vision changes and blurry vision after transplant or from
immunosuppressants
?
ESRDRLS
in
Kidney Transplant
2 years ago
PMR diagnosed August 2020, an ESR blood test taken recently & current taper at 1.25mg prednisolone
I had a rheumatologist appointment on June 14th last. My pred. dose was 1.75mg then & I was told to keep reducing as I was in no pain & some blood tests were taken including an ESR. I received a letter today from rheumatogy dept saying my ESR was raised to 35 ( it was 45 at diagnosis) & that I may
I had a rheumatologist appointment on June 14th last. My pred. dose was 1.75mg then & I was told to keep reducing as I was in no pain & some blood tests were taken including an ESR. I received a letter today from rheumatogy dept saying my ESR was raised to 35 ( it was 45 at diagnosis) & that I may
Hidden
in
PMRGCAuk
2 years ago
Covid and GCA
I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid. The NHS pharmacist phoned me and told me I wasnt eligible for the pill to stop it getting worse as you have to be on 10mg or more prednisolone
I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid. The NHS pharmacist phoned me and told me I wasnt eligible for the pill to stop it getting worse as you have to be on 10mg or more prednisolone
Boofie
in
PMRGCAuk
2 years ago
immune suppression during Covid is scary
Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding public and crowded places, ordering groceries. Am I being overly cautious? Everyone has stopped wearing masks so for me, it’s gotten even more dangerous out there. Yes, I’ve had 4 shots but they don’t really
Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding public and crowded places, ordering groceries. Am I being overly cautious? Everyone has stopped wearing masks so for me, it’s gotten even more dangerous out there. Yes, I’ve had 4 shots but they don’t really
MsAmyM
in
Kidney Disease
2 years ago
GPA and prostate cancer
I am in the unfortunate position that I have just been diagnosed with prostate cancer, Only went into remission for my GPA at the beginning of the year What a bugger I am waiting on appointments with oncology and surgeon to discuss the best way forward- has anyone been in the same position and had
I am in the unfortunate position that I have just been diagnosed with prostate cancer, Only went into remission for my GPA at the beginning of the year What a bugger I am waiting on appointments with oncology and surgeon to discuss the best way forward- has anyone been in the same position and had
stuc
in
Vasculitis UK
2 years ago
20+ Terms That Explain Living with Arthritis Part 2
PUBLISHED 07/05/22 BY EILEEN DAVIDSON
From spoonie to painsomina to brain fog, find out common terms used by those living with arthritis and chronic illness.
Those living with arthritis tend to speak another language that is mostly only known between others living with a chronic
PUBLISHED 07/05/22 BY EILEEN DAVIDSON
From spoonie to painsomina to brain fog, find out common terms used by those living with arthritis and chronic illness.
Those living with arthritis tend to speak another language that is mostly only known between others living with a chronic
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Spring booster
Hi guys I had my knee replacement and have been off Baricitinib for four weeks( two weeks either side) . I thought I would get spring booster to give it best chance to work while off meds and rheumy nurse said to start back on it a week later . I want to have Pfizer as didn’t have any reaction apart
Hi guys I had my knee replacement and have been off Baricitinib for four weeks( two weeks either side) . I thought I would get spring booster to give it best chance to work while off meds and rheumy nurse said to start back on it a week later . I want to have Pfizer as didn’t have any reaction apart
Mozart150
in
NRAS
2 years ago
Cosyntex (double dose) and tested positive for Covid ?antivirals
Good morning, I tested positive yesterday. The second pink line appeared really quickly! I feel really rough today. Called GP yesterday about antivirals but she said that once I’d uploaded my test to the NHS app it would trigger a response. That was nearly 24hrs ago and I’ve heard nothing. I’m
Good morning, I tested positive yesterday. The second pink line appeared really quickly! I feel really rough today. Called GP yesterday about antivirals but she said that once I’d uploaded my test to the NHS app it would trigger a response. That was nearly 24hrs ago and I’ve heard nothing. I’m
MadamePetitPois
in
NRAS
2 years ago
Skin pigmentation
Hi everyone Over the past couple of years or so, I've developed three different types of skin pigmentation: 1) hyperpigmentation - darker patches of skin located on my upper thighs 2) hypopigmentation - lighter patches of skin predominantly on my legs and trunk including back but makes an intermittent
Hi everyone Over the past couple of years or so, I've developed three different types of skin pigmentation: 1) hyperpigmentation - darker patches of skin located on my upper thighs 2) hypopigmentation - lighter patches of skin predominantly on my legs and trunk including back but makes an intermittent
Amakura
in
LUPUS UK
2 years ago
Still positive after 11 days
Has anyone else found this. I felt rough for a few days at the start but had antivirals ( Molnupiravir) and antibiotics and soon felt a lot better. I’m ok now just got a bit of a cough but I’m still testing positive on LFT every day. I know that I can now go out and about but I don’t really know if
Has anyone else found this. I felt rough for a few days at the start but had antivirals ( Molnupiravir) and antibiotics and soon felt a lot better. I’m ok now just got a bit of a cough but I’m still testing positive on LFT every day. I know that I can now go out and about but I don’t really know if
Downtime
in
NRAS
2 years ago
Lupus & COVID-19 Vaccinations - UPDATED 25/07/2022
Hi everyone, We have updated our information and guidance about COVID-19 vaccines and lupus - https://www.lupusuk.org.uk/covid19-vaccination/ This update includes: 💜 Details of the autumn booster programme (including the eligibility criteria). 💜 Updates to booster eligibility for immunosuppressed
Hi everyone, We have updated our information and guidance about COVID-19 vaccines and lupus - https://www.lupusuk.org.uk/covid19-vaccination/ This update includes: 💜 Details of the autumn booster programme (including the eligibility criteria). 💜 Updates to booster eligibility for immunosuppressed
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
hypothyroid with IBD & Covid
Silly question, has anyone else really struggled with Covid, Hypothyroidism and also a Colitis sufferer. I gather i am immunosuppressed, due to having IBD ( Colitis) Dont know if immunosuppressed applies to Hypothyroidism. I am Still testing strongly (8th day Positive after day 0 test!) i dont feel
Silly question, has anyone else really struggled with Covid, Hypothyroidism and also a Colitis sufferer. I gather i am immunosuppressed, due to having IBD ( Colitis) Dont know if immunosuppressed applies to Hypothyroidism. I am Still testing strongly (8th day Positive after day 0 test!) i dont feel
Wilko91
in
Thyroid UK
2 years ago
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