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ITP , 6000 - 23000 platelet count, Age 69
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
RONALD-DASON-P
in
ITP Support Association
7 years ago
FCR after four years
When I was taken to the hospital with HB of 5.4 and Leukos 20.0 and lots of wrong b Cells, this was 9/2013, I had only little hope to recover again, as I was tested unmutated, CD 38 neg and ZAP 70 of 50% and Trisomie 12. I received 13 packs of Erytrocyt/Concentrate and 6 rounds of FCR. Only minor sideeffects
When I was taken to the hospital with HB of 5.4 and Leukos 20.0 and lots of wrong b Cells, this was 9/2013, I had only little hope to recover again, as I was tested unmutated, CD 38 neg and ZAP 70 of 50% and Trisomie 12. I received 13 packs of Erytrocyt/Concentrate and 6 rounds of FCR. Only minor sideeffects
seoul
in
CLL Support
7 years ago
blood test question
I just dug back through my blood tests, and found the ones that were negative, they were the cardiolipin IgG and IgM the lupus antio coagulant was not repeated at that time. what does it mean if you are positive lupus anticoagulant, but negative cardiolipin antibodies? I have a form to get bloods done
I just dug back through my blood tests, and found the ones that were negative, they were the cardiolipin IgG and IgM the lupus antio coagulant was not repeated at that time. what does it mean if you are positive lupus anticoagulant, but negative cardiolipin antibodies? I have a form to get bloods done
nuddle
in
Hughes Syndrome APS Forum
7 years ago
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What is a severe case of APS?
So far going by the checklist from the symptoms sheet taken from here: http://www.aps-support.org.uk/about-aps/what-are-the-symptoms.php I had: 1. Multiple strokes, only the last one affected me, specifically, my vision, the rest I was unaware of, but an MRI was done at that time and it showed multiple
So far going by the checklist from the symptoms sheet taken from here: http://www.aps-support.org.uk/about-aps/what-are-the-symptoms.php I had: 1. Multiple strokes, only the last one affected me, specifically, my vision, the rest I was unaware of, but an MRI was done at that time and it showed multiple
ellochka99
in
Hughes Syndrome APS Forum
7 years ago
Results
My platelets are now 42 after having bloods today ( dropped since ivig as it was a short term solution ) I am not too concerned my hemotologist mentioned we need to look at options I am quite happy to just get monitered but she mentioned holigistic approach as I had bad reactions with ivig drip and steroids
My platelets are now 42 after having bloods today ( dropped since ivig as it was a short term solution ) I am not too concerned my hemotologist mentioned we need to look at options I am quite happy to just get monitered but she mentioned holigistic approach as I had bad reactions with ivig drip and steroids
Topography52_-
in
ITP Support Association
7 years ago
High fever as side effect of Ibrutinib ?
Hi, I'm new here and follow this blog with great interest. I had 6 cycles of FCR 5 years ago which gave me 5 years of a nice remission. For the last 2 years I am on monthly IVIG because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about
Hi, I'm new here and follow this blog with great interest. I had 6 cycles of FCR 5 years ago which gave me 5 years of a nice remission. For the last 2 years I am on monthly IVIG because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about
GIDI
in
CLL Support
7 years ago
My mom and son both have ITP. Anyone else?
My 11 month old son was diagnosed with ITP almost 2 months ago. He was admitted to the hospital with platelets of 5000, given 3 courses of IVIG and started on steroids before his body responded. Last platelet count was 300,000 (woohoo!!!). This past week, my mother was also admitted with platelets
My 11 month old son was diagnosed with ITP almost 2 months ago. He was admitted to the hospital with platelets of 5000, given 3 courses of IVIG and started on steroids before his body responded. Last platelet count was 300,000 (woohoo!!!). This past week, my mother was also admitted with platelets
Kelly109
in
ITP Support Association
7 years ago
Ivig
I read all the time of peoples counts going up by the hundreds after ivig drip mine only went to 210 any thoughts please obviously mine have now dropped I am just curious why some people see a significant boost and others not : (
I read all the time of peoples counts going up by the hundreds after ivig drip mine only went to 210 any thoughts please obviously mine have now dropped I am just curious why some people see a significant boost and others not : (
Topography52_-
in
ITP Support Association
7 years ago
Migratory joint pain.
I have had fe and scattered episodes of migratory joking ain and sw long. Right now it is the lateral aspect of my right wrist, on the iulnar sidev 😢 I was wondering if anyone else is having this. Last time I had it is was on the top or dorsal aspect of the same hand. It is very painful and refractory
I have had fe and scattered episodes of migratory joking ain and sw long. Right now it is the lateral aspect of my right wrist, on the iulnar sidev 😢 I was wondering if anyone else is having this. Last time I had it is was on the top or dorsal aspect of the same hand. It is very painful and refractory
usapajgy
in
CLL Support
7 years ago
Further necessary tests for PA
Do I now need the Homosyctein and the other one mentioned -
Immunoglobulin
(sp ?) I'm determined to be proactive as I've other autoimmune diseases to deal with too! SM
Do I now need the Homosyctein and the other one mentioned -
Immunoglobulin
(sp ?) I'm determined to be proactive as I've other autoimmune diseases to deal with too! SM
CCSP-27
in
Pernicious Anaemia Society
7 years ago
Vacation
I have had CLL a couple of years now. I am a year and a half post FCR, and it has worked despite the fact that I am unmutated. I do tend to get infections a great deal, and IVIG helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections
I have had CLL a couple of years now. I am a year and a half post FCR, and it has worked despite the fact that I am unmutated. I do tend to get infections a great deal, and IVIG helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections
beanlake14
in
CLL Support
7 years ago
Oncologist told my Stepdad there is nothing else he can do for him.
His blood levels also stabalized and he ceased needing blood transfusions but continued to get
immunoglobulin
infusions.
His blood levels also stabalized and he ceased needing blood transfusions but continued to get
immunoglobulin
infusions.
lkw16
in
Advanced Prostate Cancer
7 years ago
gh intravenous immunoglobulin
Has anyone heard of using intravenous
immunoglobulin
treatments for PMR? They say it's a great treatment for autoimmune conditions.
Has anyone heard of using intravenous
immunoglobulin
treatments for PMR? They say it's a great treatment for autoimmune conditions.
jwb43
in
PMRGCAuk
7 years ago
Test results and what to ask next
Hi. I finally got ahold of my test results from 4 weeks ago. With these results and a few abnormalities with liver and protein tests the doc was going to just ask me back in 3 months like the test results suggested. When I started asking what could she do for my symptoms now and listed a few of them
Hi. I finally got ahold of my test results from 4 weeks ago. With these results and a few abnormalities with liver and protein tests the doc was going to just ask me back in 3 months like the test results suggested. When I started asking what could she do for my symptoms now and listed a few of them
AngieAsh
in
Thyroid UK
7 years ago
Fall i platelets count after ivig treatment
My platelates fall upto 2000 then after transfusion treated with ivig treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
My platelates fall upto 2000 then after transfusion treated with ivig treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
Vika0001
in
ITP Support Association
7 years ago
Globulins... Is there a link between high Anti-Thyroglobulin Antibodies, high Immunoglobulin A (IgA) and low C4 (Complement Component 4)?
So here's my results: Anti-Thyroglobulin Abs 484.8 <115 in December 2016
Immunoglobulin
A 4.6 g/L (0.7-4) in January 2017 C4 220mg/L (200-500) in 2009 Please note I'm looking back through my history as I've had hypothyroid symptoms since early 1990s when I was a teenager.
So here's my results: Anti-Thyroglobulin Abs 484.8 <115 in December 2016
Immunoglobulin
A 4.6 g/L (0.7-4) in January 2017 C4 220mg/L (200-500) in 2009 Please note I'm looking back through my history as I've had hypothyroid symptoms since early 1990s when I was a teenager.
tinkerbell22
in
Thyroid UK
7 years ago
My daughter is doing well. Thanks for your blessings
Dear all ... Here is update regarding my daughter . As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got IVIG infusion. In Dec ,We took her to Gayatri Institute ,
Dear all ... Here is update regarding my daughter . As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got IVIG infusion. In Dec ,We took her to Gayatri Institute ,
Toughytoughy
in
ITP Support Association
7 years ago
ITP DISORDER OF MY SON
Dear sir My name is Shilpi and I am from India. I have a son whose age is 6.6 years. Recently on 13th June I observed redish and blackish spots over his hands and legs. I took child specialist on 17th June to show these spots and he asked us for cbp done. In cbp report we found that his platelet were
Dear sir My name is Shilpi and I am from India. I have a son whose age is 6.6 years. Recently on 13th June I observed redish and blackish spots over his hands and legs. I took child specialist on 17th June to show these spots and he asked us for cbp done. In cbp report we found that his platelet were
Shilpid
in
ITP Support Association
7 years ago
I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. So far so good!!
Hello, As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though. I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and
Hello, As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though. I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and
Hoffy
in
CLL Support
7 years ago
Just diagnosed with APS
Hello all, I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going
Hello all, I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going
ellochka99
in
Hughes Syndrome APS Forum
7 years ago
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